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Maggie needs to put on a little weight. She is a big snacker but I running low on ideas of good healthy chock full o calorie snacks. She's getting tired of the same old stuff; chips, pretzels; etc. Another problem we are having is other members in our family not needing the high fat/high cal...

We recently used Rock Band on the Wii, comes with guitar, drums, and microphone for singing...Kids love it almost as much as hubby, Maggie loves to sing, so she's the singer, anyone ever try it and notice how it really does work your lungs to try to sing and hold the notes? I like to do the...

When you do oral antibioitics three times a day do you do take them every 8 hours or do you space it out while awake 3 times a day? The reason I ask is because Maggie has to take Zyvox 3 times a day and I know it upset her stomache so to wake her up to take it stinks. Last time she took it it...

Maggie has a upper resp bug. Started coughing a little Tuesday, stayed home from school today and yesterday and has a harsh cough. Lungs sound good and clear. Increased the VEST and nebs. Definately a viral thing. Just not sure if I should call the CF doc tomorrow for an oral antibiotic or...

I realized that Maggie script for her enzymes allows for 3 meals a day and 3 snacks a day. She eats more than that! Being that Cheetos can be a meal with the amount of fat in them that I need to get her doc to increase the amount of enzymes per day she can have. Our insurance company is now...

So, I was looking at the Febuary issue in SELF magazine and they are having a contest to nominate extraordinary women doing good. The winner will be honored with a $10,000 donation to their charity of choice, featured in the magazine(June issue). I sound like an advertizement, but wouldn't...

Just thinking of our annual walk and fundraising efforts. Usually, we do a letter writing campaign. I feel bad to even ask for money this year. People are losing their jobs, hours cut and so on. I guess I'm looking for ideas to raise funds. Maggie had an idea to do a garage sale but make...

Is there anything you have a desire to see get passed with our new President? I hope to see an ease on the legislation opposing stem cell research. I also hope for increased funding for the NIH(national Institute of Health). A health care system with access for all. New jobs in...

Just looking for a little advice from those of you with children whose sibling do not have CF. getting ready for school in the morning is a race against time and my son without CF has been giving me attitude about how he is always late for school(which is not true). He is very Type A, does...

We traveled yesterday to visit family, we are staying at a hotel. Today, at my sister's Maggie kept saying her stomache was upset, which is not unusual for her after traveling. So I wasn't too concerned. UNTIL she sat on my sister's couch and started turning green. I looked at my sis and...

Well, we have been very lucky so far having good health coverage. We have a plan which covers 100%; we have lots of co-pays for drugs, specialists and lab test, sputum cultures, etc. But overall it has been ok, few glitches here and there but I turn on my inner b*itch and things have gotten...

Maggie is very panceatic insufficient. However, she takes her high does enzymes and lately she's been doing just ok. Yesterday, I made the error of letting her have some chocolate bar AND pepperoni(so fatty). I gave her a honking dose of enzymes but today her tummy was really bothering her...

Our CF clinic day lasts for at least 2 hours; every 3 months we see the CF doc, nurse, nutritionist, RT, sometimes social worker, Now we do PFT's each time. It's a LONG day. I got this idea from another post but what is helpful for you to have while waiting with a young child? We are stuck in...

I was dropping Maggie off at school today. Today is show and tell in kindergarten. One of the other moms helps at for show and tell. She told me how outgoing Maggie was. She said Maggie had come up to her and said"My name is Margaret but everyone calls me Maggie and I have cystic fibrosis...

A co-worker of my husband gave him this article; from a chemical and engineering news publication; it was the cover story. It is extremely well done and I need to read it again to get a better understanding of the drugs. Thought you all would/should read this. Hope the link works. You may...

i was at my kid's pediatrician's office yesterday and he was mentioning about the flu mist. He thought the "live" flu mist would provide a better protection/immunity againt the flu than the "killed" flu vaccine. He was not sure if it was ok to give a Cf'er the flu mist , though and wanted me...

Just wondering if you clean the spacer or aerochamber for an inhaler, how often and with what. Thanks!

Maggie started kindergarten on Tuesday. So far, so good. She gets up at 6 am, does her 3 nebs and VEST then she goes on the bus at 8 am with her big bro. I pick her up at 3pm; then home for neb and VEST. Maggie loves school, loves it. She is self-administering her enzymes. Yes I know...

School is just around the corner. I am wondering how you organize your child's lunch and snacks, water and drink supply and enzyme dosing and dispensing for the young kids. My daughter is starting kindergarten and will have snack and lunch, and I am guessing another afternoon snack. The...

My boxer got into my daughter's pillbox I had set up last night because we are going away. Apparently, she chewed up the box, maybe 3 Singulair are missing, a some fish oil, and ?2 AquaAdeks. I called poison control and they said she'll be ok, sigh of relief. I had also had 10 days worth of...