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I don't have it all the time but having a CF child just makes me on edge at times. As moms and parents we worry about our children; CF just gives us extra to worry about. So, I'm curious how you all cope with that low-level, or high level anxiety. I have a few strategies; exercize, especially...

So, I took Maggie to a birthday party today, lots of her little girlfriends there.. Maybe 20+ kids plus their parents. Course I do the "scanning of the area", make sure no kids have green goo coming from their noses or hoarse coughing. All clear, kids look fairly healthy. Yeah I can...

So, I watched the movie Jack and Jill vs. the World. I liked it. Course It was a little cheesey, but I like cheese<img src="i/expressions/face-icon-small-wink.gif" border="0">. It's about a free-spirited girl with CF, she fall in love with and uptight gorgeous Freddie Prince jr. I thought...

I run frequently and have run a few races before. Maggie is 5 1/2 with CF and wanted to run a kids "fun run" which is a one mile race for kids. She does not know how to pace herself at all. She went out full speed at the beginning, I never saw her get so short of breath, we'ld rest or I'ld...

My husband's aunt passed away over the weekend. We are making plans to go to the funeral. My sister said she would watch the kids while we go to the funeral. I typed out a list of meds, will show her how to do the nebs etc. But she mentioned her husband has a "bad cold". She said he's not...

My husband brews his own beer and it's actually quite good. He has a couple different batches he's making. Jokingly, I said we should have a beer tasting. Like a wine tasting, with home brew...Something to clear your palate like salty pretzels in between.. Charge a overall fee and donate the...

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I was looking for parenting advice for how to get your child to make sure they eat enough and drink enough while they are at a friend's house or at school. It's not really a CF issue except that if Maggie doesn't drink enough she doesn't feel well and if she is not eating of course, she'll be...

My daughter is going for her kindergarten screening tomorrow. She is excited for it. She must have been thinking about kindergarten while we were in the car, whn she said"It would be easier if I didn't have Cystic Fibrosis" I wouldn't have to take enzymes, do puff-puffs(nebs), no VEST. I...

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http://health.yahoo.com/experts/eatthis/139/the-20-worst-foods-in-america/

Just curious. Maggie tells me she doesn't smell very well. She can only smell"bad things or things that smell bad" I asked her if she can smell good things like when I'm cooking something yummy in the house and she said no. That's a bummer. Sinus wise, she hasn't been too bad, especially...

I have noticed, Maggie doesn't necessarily sweat alot but just plain overheat. Two times this past couple weeks, she has overheated(which is wierd anyway cause it's not warm out). This first time, Sammy and Maggie were running back and forth in the house. THen I said it was time to stop, she...

My husband and I were talking about how Maggie is growing. Her BMI is great right now. In fact, according to the charts, she should have a little chub...But she doesn't have much fat on her. We were thinking she's more muscular than chubby, yes weird for a 5 year old. Anyway, my husband...

Just thought it would be nice to share what your non-CF child does during the neb/VEST times on a daily basis. My son(no CF is 9) Morning treatments alot of them can be done after he goes to school, so that's good. When Maggie does do treatments is the am while he's home; he's getting ready...

Just wondering as I am doing paperwork for Maggie to start kindergarten this year. Do you give a list of ALL the meds your child takes on a daily basis to the school nurse? I am very much for protecting Maggie's privacy but if there was an emergency they(the hospital) may need this info. So...

Just wondering if anyone wanted to check out the Newly diagnosed board. The topic Any advice?? please. There is a mom looking for input about her daughter who does not have a definitive CF diagnosis but going through alot respiratory wise. I know some of you guys would have some good info to...

Maggie was doing her vest this afternoon, when she was done she took off her vest and said"mommy there's something inside my vest". Sure enough in the bottom of the back of the vest was a marker. Somehow, someone had slipped the marker in through one of the side wholes of the vest. Maggie...

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