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I had a question or was looking for input about culturing staph areus. My daughter ' last culture showed a few staph aureus which is sensitive to penicillen and oxacillen. Maggie has cultured MRSA as well but not since Aug of last year though we can assume it's always there. Anyway, her...

I took maggie to her CF clinic appointment today. She's doing pretty good, lungs were clear, but after having cold after cold this winter it's left her with a dry cough. The doc said we could try the Hypertonic saline to see if it helps. We already did the first treatment in the office and...

I was curious what meds you use for inflammation. Maggie uses pulmicort twice a day by neb. She seems to get upper airway inflammation, especially after a cold with coughing. She's had a reasonable winter but she's had a cold about every 3 weeks or so. She's now left with a sort of dry...

Well, the kids and my husband really , really want a puppy. I am an animal lover ,too but I'm sure I'll be the "care-taker" for the most part of the pup's needs. Looking for advice and info about what it's like to take care of a puppy, probobly have to housebreak as well the pup. I'm super...

I was curious how to tell if you have a cough from post-nasal drip vs. a real sinus infection or does it matter? My daughter gets the usual winter colds and it seems once she starts coughing from post-nasal drip she usually doesn't stop til we put her on antibiotics. She keeps getting colds...

I was looking for a little input. My daughter Maggie had a cold/cough last week, alot of kids in her nursery had it. It was not a "bad" cough, no fever, she's acting fine, energy good, appetite regular. She seems like her regular self. She has occasional boogers after I use Simply Saline...

I finished our webpage this year for fundraising. Just showing off how cute my kids are. The picture is from Maggie's dance recital from last year. The site is http://www.cff.org/Great_Strides/MaggieMurray

Finally finished the fundraising web-page. Just wanted to show off how cute my kids are. the pic is from maggie's dance recital from last year.

I am trying to be more organized with cleaning Maggie's nebs. She does 4 nebs a day and we boil once a day. So, after each neb do you rinse off the medicine before the boil or just boil it? Before I was using one neb for the day washing with antibacterial soap between uses then boiling once a...

My son who is 8 no CF is home with a hacking cough, alot of his friends have it too. Maggie, with CF, is bound to get it if she doesn't have it already. She started with a runny nose yesterday, and a little bit of juicy cough today( she coughs usually with flare-ups or if she getting a cold...

Today I'm home with the kids, my older one's home with a hacking cough(holding my breathe Maggie doesn't get it). So, I thought I'ld work on the Great Strides fundraising stuff. I set up a webpage and to get Maggie involved i asked her to give me three things that are good about CF and three...

My daughter's compressor seems to be on the fritz. We us it at least 4 times a day. When i tried to do her evening treatments lastnight the proneb just wouldn't switch on. My husband thought perhaps the compressor blew a fuse(like a hairdrier might). Anyone have this happen before...

I know this has been discussed before but do any of you give your child with CF Fish oil supplements? I was thinking of doing this for my daughter with CF but the supplement is expensive and I don't want to add something if it's expensive with minimal improvements. my daughter does eat fish...

Hi all, Things have been so busy lately. I just started to go back to work, this part week. I plan on working per diem as an RN maybe once or twice a week. we need the income and I feel ready to go back to work. juggling work (even per diem) and two kids and all the treatments and such will...

My daughter's nutritionist recommended culturelle(a probiotic) for my daughter's digestion. Where is the best/cheapest place to get it? It is more expensive than what i am giving her now which is rhino-acidophilus for children which I get a huge bottle(120 chewables) for$15. online it looks...

Just thought I'ld share how it went flying and traveling with my almost 4 year old with CF and husband and son and what worked for us. First off, we packed light, my husband and i shared a suitcase and my daughter and son shared one(both of which we checked) also checked a carseat for my...

I'm tired of cold season already and it's just begun. maggie is doing a round of anti's for a lingering cough/cold that went through her nursery school, she was even on prednisone for it for a couple days. Now , her good little friend(two peas in a pod) whom she was with at nursery school woke...

For some reason my computer wouldn't let me post with a username(only anonymous). So just a quick into, I have two children, Sammy 8 no CF and Maggie almost 4 with CF. Maggie is having a fair fall healthwise. She started nursery school and has had 2-3 colds as well as a stomach bug. She's...