Cystic Fibrosis Forum (EXP)

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  1. R

    Horseback riding and CF

    Sorry couldn't resist<img src=""> I was talking to a friend of mine and she mentioned doing horseback riding lessons for our daughters, together to share the cost. My daughter would (I'm sure ) absolutely love the idea of learning to ride a horse. She has no allergies to animals that I know...
  2. R

    Enzymes being adjusted

    Just wondering if you adjust your child's enzymes over the phone with your doc or see them in person. Maggie has been having HUGE poops this past week. Yesterday, she was VERY grumpy(not like her) took 2 enormous man poops and was almost crying that her bum hurts<img...
  3. R

    Montage Help

    http://www.onetruemedia.com/otm_site/share_skin?work_id=4917276&type=email Anyone know how to make this a link. I'm all done. Feel free to critique.
  4. R

    Need help starting Great strides Letter

    Looking for some input/ideas on the Great Strides fundraising letter. It is hard to send every year. I want to somehow incorporate, how dedicated our family is to being involved not only in monetary input for CF but also that my husband will be actually doing CF research. Not sure if it's...
  5. R

    Maggie's Great Strides Fundraising Page

    http://www.cff.org/Great_Strides/dsp_DonationPage.cfm?walkid=5626&idUser=165078
  6. R

    E-mail Pal or IM pal

    My husband and I were talking about how little kids with CF can't play together. I guess it started cause I was reading a book to Maggie about a boy with CF(I got from clinic) and Maggie just said"Hey I have CF! Which boy has CF! in the picture" She really liked looking at the pictures of...
  7. R

    Prune juice trick

    Maggie used to drink prune juice everyday. Now she refuses, just won't drink it. I do try to get fiber in her diet from fruits and veggies which she loves but for some reason prune juice does the trick when she's backed up. My husband suggested mixing prune juice with a little Pepsi or...
  8. R

    5th Birthday

    I don't have a blog, still can't figure it out. Maggie turned 5 yesterday; she is growing up so fast. Tomorrow we are having a party for her, with about 8 other children from her nursery school. This is her first real party, more than just 2 or 3 friends at our house. She's so excited. We...
  9. R

    Nose whistle

    Well, Maggie finished her anti's Tuesday, still her cough not completely gone, but it definately seems like sinus/post nasal stuff. She's developed a nose whistle, reminds of my boxer puppy when she's needs to go out. To me and Sammy it's really annoying. Maggie thinks its hysterical; she can...
  10. R

    Throat mucus

    OK, maybe weird question. Maggie had a cold, stuffy nose, sore throat throat clearing cough. She is on oral anti's and all her usual nebs/VEST and stuff. She is not acting sick, doing regular activities. She is on day10 of her anti and still she wakes up with mucus in her throat which she...
  11. R

    My elf Family

    http://www.elfyourself.com/?id=1314022185 Hope the link works
  12. R

    Clinic Appointment yesterday

    Maggie went for a routine clinic appointment yesterday.She was in a funny mood yesterday. Woke up at 5 am before clinic coughing.(left over from her cold). Worked out ok to get up that early though cause takes us forever to get to clinic and fit in treatments. We drove in a snowstorm too but...
  13. R

    Spoke too soon

    Well, My son no CF is getting over strep throat, he was pretty sick sore throat bad tummy aches, nausea, fever. Our pediatrician, who is alway looking out for Maggie, let me know to watch out for tummy upset which is usually what younger kids complain about when they have strep. So that...
  14. R

    Need ideas for almost 5 year old

    Well, Maggie has been asking to do a fundraiser for CF. Something she could actually do, she said not a lemonade stand<img src="i/expressions/face-icon-small-smile.gif" border="0"> I was thinking of something simple; maybe even to be used as a Holiday theme. Stringing beads and selling them...
  15. R

    Something to make you smile

    I took my son to the orthodontist yesterday, we've been there several times so Maggie went right into the waiting room while Sammy and I got signed in at the desk. I peek in to the waiting room and I can see Maggie sitting in a chair with this smirk on her face, looking coy. Two other...
  16. R

    OT Proud mom Alert

    I got back from my son's parent teacher conference, he's in 4th grade and does not have CF. In every subject he is doing above average. HIs teacher, who has a reputation for being hard gave him a glowing report. She said she enjoys teaching him. Socially he is doing well, too. Her words"he...
  17. R

    Stress vent

    It's wierd. Maggie's health is stable, she's loving school doing well, going to a huge b-day party tomorrow. Sammy's good, had a fever this week better in ONE day, back to school, he's good. I feel so stressed lately. I'm ALWAYS in motion, doing everything for everybody and then some. I...
  18. R

    Pari Proneb Ultra compressor

    Maggie's compressor is not working as well , AGAIN. First we had the Pari Proneb, died after 6 months of use. They upgraded us to the Proneb Ultra, which we've had maybe a year? It's definately not working as well. So looks like I'll be sending it back to the company. You'ld think they'ld...
  19. R

    Spinoza Bear

    Yesterday, Maggie got a Spinoza Bear from a charity grant from our state. It was a total surprise. I guess she was "picked" to get it. I had never heard of a Spinoza Bear before. It is a stuffed bear that comes with a CD player inside and plays songs and teaches breathing techniques. It is...
  20. R

    Found a new activity while doing nebs/vest

    Maggie watches tv doing nebs/vest, plays on the computer, we read books to her. She even eats and drinks while doing the vest. Recently, we started doing "homework" while she does her nebs and VEST. We had bought a preschool workbook(it's huge) at Target. She can do most of the activities...
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