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Maggie had ballet class today after nursery school. She wears a pink leotard and her belly is round and sticks out but maybe its more noticeable in the leotard. Anyway, Maggie got out of class and said "I have a big tummy" to me. She did not seem upset about it. She said someone asked me if...

My daughter is such a character. The other day she was doing her Hypertonic saline. She has been complaining lately how she doesn't like to do her "puff-puff"(neb) and VEST. The puff-puff takes too long and the VEST hurts her tummy. Anyway, I gave her the hypertonic saline neb and walked out...

I called CF Sevices Pharmacy this am. Hypersal is available there(which is 7% hypertonic saline premixed). I had our CF nurse call in a 3 month supply of Hypersal today and they said it should be shipped out in a couple days. Our co-pay is more than the Hypertonic we mix ourselves, in fact...

I tried to refill Maggie's script for 10% saline for mixing her HTS, they said the manufacturer is backordered. PIA. Called around to a couple pharmacys, found one that can compound HTS, but it's over an hour away! It's just salt water. Argh!!!! I don't want Maggie to run out of the saline...

We live in a tourist type area. We have a nice family who is renting a house next to us for 3 weeks. I talked to the parents yesterday, they have 2 kids close to my kids age so it's great; they can play together, both sets of children are psyched. So Maggie who is 4 1/2 going on 30 knocks on...

The outside of my daughter nostrils gets irritated from the HTS 7%. we use a mask when we do nebs for her sinuses. She had a little scab right on the skin outside her nostril, looked ouchy. So I gave her nose a break and we used the mouthpiece for a few days while doing nebs. looked all...

Maggie will go to day camp this week, just from 9:30 - 1pm each day. She is so excited. My main concern would be her overheating, not drinking enough cause she's having too much fun. She does drink ALOT, she doesn't seem to sweat alot or look overheated when playing but she gets very thirsty...

I am going away, by myself, this weekend. I am leaving both kids with my hubby and he will be responsible for the 2 kids, Maggie's numerous meds and treatments, taking care of our puppy and 2 cats! i have never left my kids overnight. I trust my hubby but I KNOW it is ALOT of work. I left...

My son, who does not have CF got this awful rash/hive/? bug bites all over his legs yesterday. It looked pretty awful, itchy and red, not sure where he got it. But I immediately gave him a good dose of benadryl and rubbed on hydrocortisone cream. It helped sooo much. Our CF doc and ped...

My daughter, 4 1/2 with CF, does about 6 nebs a day, albuterol/pulimicort,pulmozyme and HTS. Lately, she'll like to lie down on the couch while doing nebs and watching TV. I don't make a big deal out of it, usually she goes through phases, little quirky things and then forgets about them onto...

Maggie is feeling better, phew. She got one Heck of a virus but she's on the mend. She's on her anti's for 2 weeks. Maggie finished her predinisone Sunday, she was so difficult on the steroids. It made her hyper, talking non-stop, so manic. But she had needed them. A friend of mine had...

My house has been a whirlwind of activity with Maggie being sick and my husband sick with the same thing, so I am not getting any help cause he doesn't want to cough on her and he feels yucky, tired. This morning while Maggie was doing her HTS neb she was coughing alot so much so that she threw...

We went for the annual work-up yesterday. Maggie had been doing really well, I thought. Last week she caught a nasty virus(my husband has it too). Cough/fever for two days then cough/runny nose since. We had upped her treatments to 4 times a day, upped her albuteral. Her energy was...

Oh well, my husband thought he was getting a cold over the weekend, scratchy throat , spacey feeling, now a little boogery. Now maggie seems to have it. Bummer. She has a irritated cough, no fever. I hate that worried feeling I get. It's like a pit in your stomache. We have an appoinment...

i was talking to my old college roommate, catching up on things. We haven't talked in a long time. She had a tough year, separating from her husband and it will end in a divorce most likely. It was good to talk to her. She asked how Maggie was doing , how the year went with her. I...

Yesterday was a very busy day for us, in a good way. I had to help out in sammy's class so Maggie had to go to a friends's house after nursery school for me to do that. This friend was also going to take Maggie and her son(Maggie's same age) to a gymnastics class. So, I'm running like a...

Just thought I'ld share, we got a female boxer puppy on saturday. She is so sweet, it's almost like having a new baby! Her name is Greta. She's good with the kids and my oldest son just loves her so much(we all do). My son (no CF) was pretending to be sick on Monday because he wanted to stay...

just thought I'ld share how maggie is doing since we've added HTS to her meds. She takes it two times a day the 7%. She's been doing it for a few weeks and we use a mask to help her sinuses. It makes her cough while she's doing it but she doesn't seem upset by it. The first treatment in the...

We are doing the great strides walk again this year. Maggie's nursery school teachers want to involve the class somehow. My suggestion(of course I borrowed this idea from someone else) was to have the kids do a change collection to raise $ for CF. To make it fun, I am going to provide each...

Looking for some input from the experts. The flu is in our area and some kids are getting it even though thye have been vaccinated. Our neighbor had it who of course plays with my son(no CF). So this am my son said his tummy hurt and legs hurt. He has no fever and ate some toast, kept him...