Search results

Good idea to move the research threads all to one topic whoever did that.

What ipod app do you find the most helpful for medical stuff? What app in generaldo you usethe most? Or is most useful? Thanks!

Is anyone taking VX770 and planning to become pregnant?

I got back from a vacation tonight. Flying about 4 hours in the air total today. I have been feeling ok all week out of town. I haven't had a bleed in about a year. Then I got home from the airport and I started having some hemoptysis. About a couple tbs. (same volume as last year) I was...

If you have private insurance (with a deductible) AND medicare part D, do you notice that medicare ends up picking up most of the deductible?

does anyone know if you can make closed captioning on news videos on the computer? Like for example on CNN, when they show a video clip, is it possible tohave cc show up on the computer screen? when i do my meds my machine is so loud, i can't hear videos, but I wanted to know without putting on...

<P>i feelMUCH better and movingA LOTmore air and pfts wereMUCH easier a week after A week of IV's but my PFTs have remained the same. NO change. WHY?</P> <P></P> <P>does this happen to anyone else?</P>

<P>Our hospital started a contract with a massage therapist and she comes around to give massages to patients (covered as part of hospital stay). </P> <P></P> <P>Anyone else get massages in the hospital room? </P> <P></P> <P>If not, its something worth asking about--it is something nice to have...

Just wondering if anyone knows or heard if the VX 770 helps the pancreas make more insulin like it has helped resolved the digestive issues of some people.

Does anyone experience tingling toes or feet? I have had CFRD for about 5 years and ALWAYS had a super low A1C. My last one was 6.1. Still, I have tingling in my toes and heels. Anyone ever get this feeling?

<P>Go to CBS news and type in Cystic Fibrosis. </P> <P>They featured Lauren and the new drug on yesterday's news report. </P> <P>Sweet!</P>

Last night I was trying to get on the sight for an hour and the website wasn't working. Were they doing updates?I still like this site, it just needs some tweaking.

http://www.businesswire.com/news/home/20111026005971/en/Cystic-Fibrosis-Patients-Significant-Results-Regenocyte-Adult<br><br><br>

<P>Why don't the teams have a psychologist as part of the cf team. There is nutritionist, RT, doc, nurse and  social worker. Am I missing anyone? </P> <P>Why not have someone address the mental well-being issues that go along with having a terminal illness/chronic disease? </P> <P>The social...

how come I have sent several private messages but when I go to sent items, they don't appear? what's wrong with this?

<P>Just wondering if anyone is going to the conference this year?</P> <P> </P>

<P>Congrats on your success with the new drug! We heard about your meeting!</P> <P> </P> <P>I wanted to ask you if you wouldn't mind sharing what your numbers were 1-before the treatment of the drug began and 2-what your numbers are currently (fev 1)</P> <P> </P> <P>Also, have you been on antbx...

<P>I'm in a bad mood so I want to start a thread. </P> <P>Top five things that make you mad, annoyed, or PO.</P> <P> </P> <P>1. time it takes for treatments and everything else</P> <P>2. celebrities on tv</P> <P>3. media and television (i don't even have tv!)</P> <P>4. not being able to run fast...

Just wanted to get an idea of what or how many people are currently participating in a study?

I know this might not be the right time to ask this, but what caused the bleeding? The pregnancy? Or the stress of it?