Cystic Fibrosis Forum (EXP)

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  1. M

    follow up appts

    How often are follow up appts? Weekly? Monthly? If the center is 4 hours away, are the appts still weekly? What happens if something acute occurs? Where do you go, the local hospital? do you 'trade in' your cf nurse hotline for a transplant nurse hotline? (some sarcasm there) thx
  2. M

    hemoptysis

    Is there any of you that noticed an episode of hemoptysis within a few hours of PFT's or other hard physical activity. I had an appt today. I wasn't feeling too bad but after my PFT's I was coughing a lot. (no hymoptosis) But then when I got home I was taking a walk and it started. Ironic that...
  3. M

    Did you have a dog therapist? :)

    Has anyone had a therapy dog come visit them while they were in recovery at the hospital from transplant? Many hospitals have therapy dog programs. Did the hospital where you got transplanted allow therapy dogs to come visit? I know transplant is much different than a regular pre-tx admission...
  4. M

    contest

    Who would be interested in participating in a hot chick contest? I think this would be fun. Anyone up for it??
  5. M

    time in hospital after transplant

    I am curious what the average time is for days in the hospital after your transplant? How many days were you in before you could go home? Thanks for sharing.
  6. M

    Nectadyn homeopathic treatment

    I was wondering if anyone heard of this or tried it: <a target=_blank class=ftalternatingbarlinklarge href="http://www.naturalhealthyconcepts.com/nectadyn-H125-p-cold-flu.html ">http://www.naturalhealthyconce...-H125-p-cold-flu.html </a> Is there a topic on here for 'Alternative medicine' (CAM...
  7. M

    recipes

    Is there a topic just for high calorie recipes? If not, where do we share?
  8. M

    shrek 4

    I don't have kids but I was wondering to the parents out there, do all Shrek movies have alcohol consumption? And doesn't that bother you that this is a cartoon movie that shows Shrek getting drunk on Martinis? What if he was smoking cigarettes? Wouldn't people be upset? I guess that's why I...
  9. M

    after transplant questions

    after transplant: do you still have a constant 'hoarse throat' voice that is really annoying? do you still get exhausted after doing 1 errand or have to limit yourself on activities based on how much energy you'd be using during the day? do you still wake up in the middle of the night out of...
  10. M

    CONFUSED ABOUT CAYSTON

    I have questions about the bottle sterilizer they sent: 1. does yours have an on/off button? or does it need to be plugged in/out to turn it on and off? I can't get the 'button' to work~it appears to be a button but i can't get it to move 2. how much water do we use? which fill line on the...
  11. M

    article

    <a target=_blank class=ftalternatingbarlinklarge href="http://abcnews.go.com/Health/Wellness/cdc-swimming-pools-pose-infection-risk/story?id=10711137&page=3">http://abcnews.go.com/Health/W...ory?id=10711137&page=3</a>
  12. M

    multiple transplant centers

    Is it possible to be on the list at multiple hospitals at once?
  13. M

    interesting article

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.lifenews.com/bio3080.html">http://www.lifenews.com/bio3080.html</a> nothing like some good old discrimination. i think we should start calculating the total gov't tax dollars that are distributed to the decay of western...
  14. M

    mucus is gross

    sorry this is gross I think I am getting to the bottom of all the stuff that has been cooped up down there. Does anyone else get this nasty junk? I am feeling great otherwise and pfts are fine. I think its a combination of the tobi/cayston back and forth every month. Its getting all this old...
  15. M

    Where do I donate my vest?

    Does anyone know where I can donate my vest? I have a new one but my previous unit still works. Thanks for reading.
  16. M

    Free Vest System

    I got a new one and the old one works but I don't need it. You'll need two new plastic pipes and the vest part. The machine works great.
  17. M

    Free Vest System

    I have a vest system. I got a new one and now I don't need the old one. There is nothing wrong with it. You'll need two new pipes and the vest part. It works great.
  18. M

    Athlete with CF - Dottie Lessard

    She received a double lung transplant several years ago. She had a contract with Nike and was releasing a book but I can't find anything recent about her on the internet. Does she still have a website and non profit org? Anyone know anything about her?
  19. M

    protein shakes for body builders / OT?

    I was wondering if anyone drinks protein shakes and lifts weights. If so, what have you found to work the best at building mass?
  20. M

    new topic

    Why don't we have a topic here called, 'medical/drug trials' or something like that? There is adults, families, pregnancy, newly diagnosed, nutrition, in the hospital, ect. Isnt there enough discussion about new trials to have its own topic heading? It would awesome if there was. I know...
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