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I take more than the max dose of enzymes with every meal, and have never had an issue (knock on wood). I did once try lowering my enzyme dose after a discussion with the dietician, but after one meal I knew that wasn't going to work. I'm also wondering if there is a higher dose of enzymes you...

Thank you for sharing this, Autumn. I get extremely frustrated with my insurance company not approving medications, but this is a nice reminder to view the medication from their point of view as well.

I agree wholeheartedly with your post, Jet. I actually became an active art of planning my future when my mom shared that when her father died, they didn't know what he wanted done and it caused a lot of stress and arguments regarding what his family thought he wanted. I definitely don't think...

Hi Believing, I think anyone and everyone on this forum has something to contribute. We are all here because of our experiences with CF, and since no two people have identical experiences, every view counts. I think the difficult part, for anyone in an online forum, is that tone of voice is...

My parents have allowed me to dictate my health choices for many years now, even before I was 18. They wanted me to be responsible for my own health, and when the time came, my own death. I think the first time I told them I didn't want to be "a vegetable" was when I was about 12. I have a...

In my experience, yes. The whole tuneup package for me is IV medications, increased and intense airway clearance, and resting.

Just a word of warning about getting an Electro Flo 5000. When I had asked my doctor for that percussor, I was unable to get that specific brand/model. I don't know how your insurance will be, but the Electro Flo was not covered by ours. I was able to get a percussor, but it's a model they...

My colds, if they stay colds, follow an extremely predictable pattern, with only a day or two of variance. My colds always start as head colds, and those stick around for about 2-3 days. Then it becomes more of a chest cold. I have an absolutely horrible cough for about 4 days. And then it's...

I culture MRSA, even though it doesn't show up in high numbers in each lung. My family and I have unaffectionately dubbed my left lung the "Pseudo lung" and the right lung the "MRSA lung." It seems when a sputum sample comes from the left side, pseudo is really the only common bug. When the...

Believing, please take a few moments to calm yourself before posting, or just ignore the thread. Hostility helps no one. Purusha, I believe that if MMS was the miracle cure you say it is, more people would be talking about its benefits. Even if every doctor said something against it, the voices...

Sligo, I do believe staying active can help. I don't think it can 100% prevent problems, but I definitely think it helps. Most of my problems started when I had to stop competitively playing volleyball because of my feeding tube. I could no longer throw myself on the floor to save balls, and...

This looks amazing! It hunk I'll fill out an application, as it's getting to be a little expensive paying for the rec center membership to swim. It'd help me out a ton, even if I just got a little bit of help. Thanks for the link!

Believing, I am also DDF508, like your son. I turn 25 in just a couple months. It really is entirely possible that he doesn't have anything to cough up. This doesn't mean you shouldn't try to get another form of airway clearance, but I'm just saying that he may not have anything to cough up at...

Believing, not coughing anything up does not always indicate the Vest isn't working. When I am healthy, I am bone dry. No treatment makes me cough anything up. I can do 10% hypertonic, and still cough nothing up. Additionally, because your son is an adult, his clinic may not be able to speak...

I'm actually younger than you, Slugo, but CF has already impacted my life. Growing up, I played soccer and volleyball. During the summer, I was always hiking in the mountains. I loved to swim and play with my family (all the cousins on my dad's side are younger). Now, I can't do any of that...

Hi believing. The Areobika comes apart into four pieces: the mouthpiece, the top cover, the bottom cover, and the internal piece. I typically sterilize for 30 seconds to a minute in 90% alcohol, rinse with distilled water, and leave it to dry.

You are correct. I can always flush it, and IVs go through, but it's almost impossible to get a blood return without the frequent use of Cath-Flo. I was told my blood clots in almost a one-way valve fashion. Its like a one-way door. As long as I'm trying to push fluid through the line, it works...

I did not have as many problems as your son when my port was placed, however, I do share the flushable, but no blood return. When I'm accessed, I have to keep something going through the line all the time, or there will be no blood return. I have about a 20-30 minute window where I can be free...

Hi Amber. I have exactly the opposite problem now that I'm on birth control. There are certain antibiotics that I know will basically kickstart my cycle. Before I started birth control, I did experience what you're talking about. I'm not sure if it can be narrowed down to only the antibiotics...

My clinic has phased out the Acapella in favor of the Aerobika. Acapellas have a small metal component that rusts really easily, and my clinic and myself didn't like that I was inhaling air that ran over the rusted portion. The Aerobika does a similar treatment to an Acapella, but without the...