Cystic Fibrosis Forum (EXP)

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  1. K

    Fertile CM

    Hello, Ive been looking into why I have fertility problems lately. Not fully ready to have a baby but getting there. I was looking up some stuff online and I found this product called Fertile CM. CM stands for cervical mucus. This is my back story..... I am a 27 year old woman, never been on...
  2. K

    CF Walk San Diego

    Is anyone from this website doing to the walk in San Diego on May 18th?
  3. K

    Does anyone else have foul BO?

    Yes and nothing works for me for an extended period of time either. I take a shower every day, wash under arms, and use clinical protection. I wanted to find a natural deodorant that worked and wasn't putting harmful chemicals in my breast and lung area. I bought this one on ebay and Im in love...
  4. K

    i'm gonna suffer in years too come!!

    I want to say first off, thank you for having an opinion towards what I said but talking to me in a respectful manner. Appreciate it! I never gave him advice though. I just said basically I am similar to you since he asked if anyone does the same. I said if you choose not to do your treatments...
  5. K

    Very Low Fat Diet & CF

    You should try eating more monounsaturated fats like olive oil and avocado. I have no problems with these fats. Also smart balance butter is awesome, 85% chocolate bar (Trader Joe's). I hear that extra virgin coconut oil is great for people with cystic fibrosis. My dad has read that in many...
  6. K

    i'm gonna suffer in years too come!!

    I have no idea , that is just what I was told by two cf doctors, children's and adult in southern California.
  7. K

    i'm gonna suffer in years too come!!

    If you have also only ever cultured staph, do you take any other meds besides hyp saline, enzymes, the basics? Yes my doctor said to focus on hyp saline, vest, and exercise, enzymes, vitamins. The basics.... We are the ones with cf though and we have to listen to our body. One time my doctor...
  8. K

    i'm gonna suffer in years too come!!

    I was also told by my doctor that it is the most common but not normally a mild mutation. There are other mutations that tend to be more on the mild side. Not totally sure on this, just want was said to me when I first got dx at children's hospital.
  9. K

    i'm gonna suffer in years too come!!

    "You have a 100% lung function at 33 without having to do jack for it? Good for you, let's encourage this kid not to take any as well and spin the Russian roulette to see if this one is as lucky. " To respond to this, I am not the person with 100% lung function, I was the one in the 80s. The...
  10. K

    i'm gonna suffer in years too come!!

    I totally agree with you, well said! I also think running and exercising is better then any treatment, any day. Taking care of your body doesn't mean you have to load up on meds, you can just take care of your body. Eat healthy, drink lots of water, get lots of sleep, ect. I have a different...
  11. K

    i'm gonna suffer in years too come!!

    I am one too that also doesn't do meds. I am 27 years old, ddf508. It is really hard when you are dx later in life and you feel healthy to start on a bunch of meds. I am almost 5'8 in height and 150 lbs. I don't see a need for enzymes esp since vitamin levels are really good. Lung function is...
  12. K

    Feet problems

    Thanks for the advice everyone. I think you are right that it isn't a pre diabetic thing, but Im sure it has something to do with CF. Everything is always some how related to CF lol. I am going to try the flax seed oil, that sounds like a good idea. The soak has really been helping. Been doing...
  13. K

    Health decline after becoming a mother?

    This is something that has been on my mind also as I get older. I have always wanted to have one kid but I am wondering how I am going to do it. I have a mild form of cf but that is because I rest all the time. I get 9-10 hours of sleep a night and when ever I feel like Im getting run down, I...
  14. K

    Feet problems

    My problem also looks like snake skin. I am not on any antibiotics and try to avoid them as much as possible. The last time I was on any antibiotics, they were iv, and that was February 2012. I did an Epsom salt and tea tree oil foot soak yesterday and it did provide a lot of relief. I am going...
  15. K

    Obesity in CF

    I am not obese but I am at a overly healthy weight. I am 5'7 and 150lbs. Anything more then 150lbs makes it harder for me to get around. I am a huge eater which is why I think I have always been so healthy. All I think about is food, and I eat large portions. I eat very healthy though, and am on...
  16. K

    Feet problems

    Hello, I am pre diabetic and I was wondering if anyone else has feet problems. I have what looks like athletes foot and I have tried everything to make it go away. Some times it goes away for 3 days and then comes right back. It is itchy and horribly annoying. Ive tried every natural and over...
  17. K

    Curcumin

    I am going to try the oil of oregano, thank you for the advice. Have you tried turmeric? Its great for inflammation! I just started putting it in my nutribullet along with oranges and other fruits and veggies that are high in vitamin C. Look into the nutribullet, it has helped me so much. I have...
  18. K

    Working and Health Benefits

    Im not sure if it is true or not but I have genetically handicapped medi-cal insurance through California. I still work and go to school and my insurance is still free to me. My work does not offer insurance and I am unable to get insurance on my own.
  19. K

    CF and therapy dogs???

    When I was living by myself in a one bedroom apartment, I decided to get a cat even though my apartment complex didn't allow animals. I saw a woman with a dog in the apartment over so I assumed they were relaxed on the rules. They ended up finding out about my cat and I asked why the other woman...
  20. K

    Curcumin

    How are you taking these? What have you noticed a difference with? I want to really start focusing on some anti-inflammation natural stuff. I randomly coughed up some blood the other day and it really freaked me out. I have not done this in about 5 years. I feel completely fine, not sick at all...
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