Cystic Fibrosis Forum (EXP)

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  1. A

    HELP! 21st bday and possibly have to spend in hospital!

    Happy Birthday Megan! You might be away from friends and family, but there are people still thinking about you! Did the hosp do anything special for you today? I'm glad you decided to stay and I think going to college closer to a real CF Clinic is an excellent idea! Happy 21st! ~Aimee, 28 CF...
  2. A

    HELP! 21st bday and possibly have to spend in hospital!

    Happy Birthday Megan! You might be away from friends and family, but there are people still thinking about you! Did the hosp do anything special for you today? I'm glad you decided to stay and I think going to college closer to a real CF Clinic is an excellent idea! Happy 21st! <br /> <br...
  3. A

    HELP! 21st bday and possibly have to spend in hospital!

    Can you call your CF doc and explain that they're not using the right drugs and that it's having a negative impact on your recovery? Don't leave it up to them to call your clinic. No doc wants to admit that they did something wrong, they'll just keep treating you incorrectly- I've been in that...
  4. A

    HELP! 21st bday and possibly have to spend in hospital!

    Can you call your CF doc and explain that they're not using the right drugs and that it's having a negative impact on your recovery? Don't leave it up to them to call your clinic. No doc wants to admit that they did something wrong, they'll just keep treating you incorrectly- I've been in that...
  5. A

    HELP! 21st bday and possibly have to spend in hospital!

    Can you call your CF doc and explain that they're not using the right drugs and that it's having a negative impact on your recovery? Don't leave it up to them to call your clinic. No doc wants to admit that they did something wrong, they'll just keep treating you incorrectly- I've been in that...
  6. A

    Ports in the Arm?

    I have an arm port. It's a pediatric port placed on the inside of my left bicep, about 4 inches from my armpit. I LOVE LOVE LOVE IT!!! I got my first one about 10 years ago, it lasted a few years before it turned and needed to be replaced, now I've had my 2nd one about 7 or 8 years. I got it...
  7. A

    Ports in the Arm?

    I have an arm port. It's a pediatric port placed on the inside of my left bicep, about 4 inches from my armpit. I LOVE LOVE LOVE IT!!! I got my first one about 10 years ago, it lasted a few years before it turned and needed to be replaced, now I've had my 2nd one about 7 or 8 years. I got it...
  8. A

    Ports in the Arm?

    I have an arm port. It's a pediatric port placed on the inside of my left bicep, about 4 inches from my armpit. I LOVE LOVE LOVE IT!!! I got my first one about 10 years ago, it lasted a few years before it turned and needed to be replaced, now I've had my 2nd one about 7 or 8 years. I got it...
  9. A

    Middle income and doctor bills

    Are they all medical bills? I've requested assistance from my hospital before. You have to provide income info, so you might be too high for them to write the entire bill off, but maybe they'd do something. Or set you up on a payment schedule. Call the debt collector or bill sender and just beg...
  10. A

    Middle income and doctor bills

    Are they all medical bills? I've requested assistance from my hospital before. You have to provide income info, so you might be too high for them to write the entire bill off, but maybe they'd do something. Or set you up on a payment schedule. Call the debt collector or bill sender and just beg...
  11. A

    Middle income and doctor bills

    Are they all medical bills? I've requested assistance from my hospital before. You have to provide income info, so you might be too high for them to write the entire bill off, but maybe they'd do something. Or set you up on a payment schedule. Call the debt collector or bill sender and just beg...
  12. A

    Flatulence with beer

    I wish only got gas when I drank beer! Maybe it has something to do with the yeast or something? I drink a lot of soda, which also has no fat, but it can give me stomach aches and gas from the sugar (that's my theory, anyway). Although I can drink water and get a stomach ache, so maybe I have...
  13. A

    Flatulence with beer

    I wish only got gas when I drank beer! Maybe it has something to do with the yeast or something? I drink a lot of soda, which also has no fat, but it can give me stomach aches and gas from the sugar (that's my theory, anyway). Although I can drink water and get a stomach ache, so maybe I have...
  14. A

    Flatulence with beer

    I wish only got gas when I drank beer! Maybe it has something to do with the yeast or something? I drink a lot of soda, which also has no fat, but it can give me stomach aches and gas from the sugar (that's my theory, anyway). Although I can drink water and get a stomach ache, so maybe I have...
  15. A

    FEV1%?

    Diane, The above responses have answered your question, but more importantly than your number is: how do you feel? While the numbers are a decent measurement, the way you feel is far more important. Some people can be 60% and feel great, others can be at 60% and feel horrible. There is rarely a...
  16. A

    FEV1%?

    Diane, The above responses have answered your question, but more importantly than your number is: how do you feel? While the numbers are a decent measurement, the way you feel is far more important. Some people can be 60% and feel great, others can be at 60% and feel horrible. There is rarely a...
  17. A

    FEV1%?

    Diane, <br />The above responses have answered your question, but more importantly than your number is: how do you feel? While the numbers are a decent measurement, the way you feel is far more important. Some people can be 60% and feel great, others can be at 60% and feel horrible. There is...
  18. A

    Anger/refusal to cooperate with doctors?

    Wow, poor little guy. I wasn't every very sick as a little kid, but I did get very stressed out about clinic appointments and getting shots- I would panic before we got there, freaking out, crying, hyperventilating, etc. Eventually Aidan will realize this is just something he has to go through...
  19. A

    Anger/refusal to cooperate with doctors?

    Wow, poor little guy. I wasn't every very sick as a little kid, but I did get very stressed out about clinic appointments and getting shots- I would panic before we got there, freaking out, crying, hyperventilating, etc. Eventually Aidan will realize this is just something he has to go through...
  20. A

    Anger/refusal to cooperate with doctors?

    Wow, poor little guy. I wasn't every very sick as a little kid, but I did get very stressed out about clinic appointments and getting shots- I would panic before we got there, freaking out, crying, hyperventilating, etc. Eventually Aidan will realize this is just something he has to go through...
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