Cystic Fibrosis Forum (EXP)

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  1. A

    Cayston

    I shake mine so that every drop goes into the eflow, but even still it only takes a couple minutes. love love love the cayston!
  2. A

    Cayston

    I shake mine so that every drop goes into the eflow, but even still it only takes a couple minutes. love love love the cayston!
  3. A

    Cayston

    I shake mine so that every drop goes into the eflow, but even still it only takes a couple minutes. love love love the cayston!
  4. A

    Coughing.......UGH!

    I'm with Jenny on this one. I know we're not really supposed to suppress our cough because you don't get anything out that way, but sometimes I feel like I don't have a choice. My night time cough is just a dry hacking that doesn't stop all night. I figure if I suppress a cough that isn't...
  5. A

    Coughing.......UGH!

    I'm with Jenny on this one. I know we're not really supposed to suppress our cough because you don't get anything out that way, but sometimes I feel like I don't have a choice. My night time cough is just a dry hacking that doesn't stop all night. I figure if I suppress a cough that isn't...
  6. A

    Coughing.......UGH!

    I'm with Jenny on this one. I know we're not really supposed to suppress our cough because you don't get anything out that way, but sometimes I feel like I don't have a choice. My night time cough is just a dry hacking that doesn't stop all night. I figure if I suppress a cough that isn't...
  7. A

    Pseudomonas Culture Questions

    I can't remember a time when I didn't culture PA. I probably got it when I was a kid going to CF Camp- who knew it was bad that we were all coughing on each other? Anyway, I do TOBI every other month and Cayston every other month to keep the infection under control. And when it gets crazy, I...
  8. A

    Pseudomonas Culture Questions

    I can't remember a time when I didn't culture PA. I probably got it when I was a kid going to CF Camp- who knew it was bad that we were all coughing on each other? Anyway, I do TOBI every other month and Cayston every other month to keep the infection under control. And when it gets crazy, I...
  9. A

    Pseudomonas Culture Questions

    I can't remember a time when I didn't culture PA. I probably got it when I was a kid going to CF Camp- who knew it was bad that we were all coughing on each other? Anyway, I do TOBI every other month and Cayston every other month to keep the infection under control. And when it gets crazy, I...
  10. A

    Trying to understand Appetite loss

    Here's the way my doc explained weight loss to me. When you get an infection and your lung function gets compromised, your body basically turns off "non-essential" functions. All of it's focus goes to keeping your heart beating, breathing and brain function. Blood circulation slows, digestion...
  11. A

    Trying to understand Appetite loss

    Here's the way my doc explained weight loss to me. When you get an infection and your lung function gets compromised, your body basically turns off "non-essential" functions. All of it's focus goes to keeping your heart beating, breathing and brain function. Blood circulation slows, digestion...
  12. A

    Trying to understand Appetite loss

    Here's the way my doc explained weight loss to me. When you get an infection and your lung function gets compromised, your body basically turns off "non-essential" functions. All of it's focus goes to keeping your heart beating, breathing and brain function. Blood circulation slows, digestion...
  13. A

    Night time routine..

    Hi....I've actually never posted in the "Family" forum before, I just kinda read through them every once in a while. I'm 28 with CF (diagnosed at 3 months old), single, no kids. When I was a kid there were very few drugs and treatments available to my parents. Mainly albuterol, amoxicilin and...
  14. A

    Facebook?

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.facebook.com/aimeesue82 ">http://www.facebook.com/aimeesue82 </a> You can add me, I enjoy meeting new CFers. ~Aimee, 28 CF w/ PA & MRSA
  15. A

    Facebook?

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.facebook.com/aimeesue82 ">http://www.facebook.com/aimeesue82 </a> You can add me, I enjoy meeting new CFers. ~Aimee, 28 CF w/ PA & MRSA
  16. A

    Facebook?

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.facebook.com/aimeesue82 ">http://www.facebook.com/aimeesue82 </a><br /> <br />You can add me, I enjoy meeting new CFers. <br /> <br />~Aimee, 28 CF w/ PA & MRSA
  17. A

    cayston

    I've been doing Cayston every other month for about 6 months now (3 on and 3 off). The first few days I start at the beginning of every month, I cough quite a bit during the treatment. I do albuterol, then Pulmozyme, then my airway clearance, then Cayston. Always do the antibiotic last so it...
  18. A

    cayston

    I've been doing Cayston every other month for about 6 months now (3 on and 3 off). The first few days I start at the beginning of every month, I cough quite a bit during the treatment. I do albuterol, then Pulmozyme, then my airway clearance, then Cayston. Always do the antibiotic last so it...
  19. A

    cayston

    I've been doing Cayston every other month for about 6 months now (3 on and 3 off). The first few days I start at the beginning of every month, I cough quite a bit during the treatment. I do albuterol, then Pulmozyme, then my airway clearance, then Cayston. Always do the antibiotic last so it...
  20. A

    sex

    Obviously the OP is not alone in this situation! I too have libido problems, but I've heard many times that the more sex you have, the more you want it. My bf would have sex several times a day if it were up to him! I limit him because I don't have the energy for that. But because he knows I'm...
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