Cystic Fibrosis Forum (EXP)

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  1. E

    How long would an e-cig stay in my body for?

    So I'm going to a friends house and he always smokes his e-cig, if I were to smoke it a few times, how long would the nicotine stay in my system and lungs for? I'm going to the CF clinic in about 2 weeks, next week I have an app. With my primary care doctor so he can refer me to my CF clinic I...
  2. E

    Taking testosterone

    i also believe I have almost no libido. Like, when TV shows mention how all they thought about was sex when they were teenagers, I think, I've never been like that. I rarely think about sex. I honestly believe I could go with sex for another 18 years, I'm in no hurry cause I feel no rush.
  3. E

    Taking testosterone

    I really want to take testosterone, but how can I hint to the drs i need it without me actually saying it? during school, I have 0 energy. Absolutely 0. I have a hard time gaining muscle, I have noticed decrease appetite, I have a high voice, and I look like I'm 14 when I'm 18. just recently...
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    Gross, embarrassing things that come with CF!

    pdamaged teeth? CF causes bad teeth? Cause I have bad teeth, like, I have bone missing, naturally. It's not cause I don't take care of my teeth, my dentist says I was handed a bad pair of cards. I guess sweat can be embarrassing, like if I'm sleeping in class on a book my hand literally sticks...
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    What will I so without my Albuterol for CF day?

    Well when I went in I did Albuterol before the test and asked if that was cheating and they said its not cheating, cause before I would rarely use Albuterol. The clinic never mentioned me to skip it, yes. I need another perscription for it. whats national Jewish? yeah I worry about these tests...
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    How do I ask for testosterone? Is it normal for CFers to need testosterone?

    So I think I might need testosterone. But how do I ask the doctor for testosterone help without actually asking? I say this because: I have a hard time building muscle, and I have a high voice. I'm 18 btw, oh, and I also look like I'm 15. Is it normal for guy CFers to need testosterone help?
  7. E

    Kalydeco

    i have cf day Friday so I'm gonna say I want in. Especially since its free (I'm assuming), he mentioned it to me a few months ago so I hope I can still participate.
  8. E

    Kalydeco

    for like 120 pils it costs $30,000, how can anyone afford to take it forever? No one could afford that. How often must it be take? One a day? One a week? What did the doctor say to your daughter, like when she can stop taking it? Like can she slowly withdraw from it at a certain point?
  9. E

    What will I so without my Albuterol for CF day?

    What will I do without my Albuterol for CF day? So I'm going to the doctors tomorrow and I'm kinda freaking out about the lung test because I don't have any more Albuterol! Now I won't do as good on the test. What do I do so I do extra extra good?
  10. E

    Kalydeco

    So what exactly does it do? Is it true it cures 1/2 of CF? How does it make your liver produce more enzymes? How long do you have to use it until you can stop and you're fixed? Why is it so expensive? My doctor said I can be in phase 2 of the studies, but is it safe? I'm worried I'm gonna...
  11. E

    St Johns Wort

    Could this natural herb interfere with Creon, Pulmozyme and Albuterol? Is this safe for CFers?
  12. E

    Is any other CFer jealous of other diseases?

    how do you get a handicap pass? Could I get one? I ask cause you say you're relatively healthy
  13. E

    Is any other CFer jealous of other diseases?

    holy crap that's what it's like! I HATE HATE HATE getting stories of "well CF can/has be(en) outgrown" and I even had "I had CF when I was younger, and I outgrew it", when someone told me that, that honestly made me want to cuss a storm at them. Obviously you never had CF and the drs who...
  14. E

    Does water really help loosen mucous? Other ways to get rid of it?

    i hate running with the passion of my soul. It also kinda hurts to run. so coughing is good correct? The more violent and frequent my coughing is the better? Like my grandma will say "Oh my this isn't good you're coughing so much! Are you ok!?" And it gets annoying cause even if I cough a...
  15. E

    How can lung transplants change in 10, 20 years?

    The idea of having to get a transplant one day freaks me out, like when people say the success rate is 90% it doesn't seem all that great, cause what if I were that 10% and I die in the hospital?! is there any way of knowing what the future holds for lung transplants, like 5, 10, 15, or even...
  16. E

    Sweaty hands!

    I never knew this was normal for CFers cause I'm the same way. Both my feet and hands are drenched in sweats after an hour of just having them on (maybe a tad over dramatised lol). But yeah my hands have even started to sweat when it was cold outside, and one weird thing I experience is my...
  17. E

    Advice please!

    Maybe he's suffering from depression, or honestly, he feels he doesn't have the time. I too have been neglecting my treatments and I did in the past. If you feel it's because he's invincible, you need to tell him the cold hard truth. Shock him and scare him, tell his girlfriend to encourage...
  18. E

    Gross, embarrassing things that come with CF!

    ermehgad, I know that feeling, except at school or somewhere! One time I was at school and I had a very productive cough, so I coughed into my shirt on the short sleeve, not noticing it there I continud on the computer, I was about to sneeze, when I looked on my shoulder and saw phlegm was...
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    Is any other CFer jealous of other diseases?

    Alright. I feel horrible for saying this, but I wanna see if other people like me think like this. I feel jealous of other diseases and conditions like cancer and diabetes and asthma, because they get so much attention, for me, when someone says they have asthma or cancer it's an automatic "Oh...
  20. E

    Can Mucinex help a CFer?

    I don't see why it couldn't personally, being sick for a normal person is kinda like a day in the life of a CFer (when it comes to mucous), right?
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