Cystic Fibrosis Forum (EXP)

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  1. T

    Opening a can o' worms

    <P>for those here diagnosed late in life had any other family member recentky diagnosed so that made you more aware of what your issues could be.or basically was it more that you finally stumbled upon a doctor who pieced it all together. I guess I kind of wonder. My son who will be 30 this year...
  2. T

    Opening a can o' worms

    <P><BR>for those here diagnosed late in life had any other family member recentky diagnosed so that made you more aware of what your issues could be.or basically was it more that you finally stumbled upon a doctor who pieced it all together. I guess I kind of wonder. My son who will be 30 this...
  3. T

    Question for CF Moms

    We had always been told that my daughter was probably sterile but I had heard of so many cases where people have been told that with or without CF that my daughter was on the pill. She was not really trying with her fiance and in fact she got a pounchy stomach we noticed one day, her periods...
  4. T

    CF Healthcare supplies to donate

    <P>Her oxygen supplier , I know in our case the supplier of tanks concentrator wheelchair etc we called them and they took them back. If none tubes and meds are opened you may want to check with locsl red cross. Sending prayers to her family and friends during this time</P> <P> </P> <P>Tammy</P>
  5. T

    CF Healthcare supplies to donate

    <P>Her oxygen supplier , I know in our case the supplier of tanks concentrator wheelchair etc we called them and they took them back. If none tubes and meds are opened you may want to check with locsl red cross. Sending prayers to her family and friends during this time</P> <P></P> <P>Tammy</P>
  6. T

    CF Healthcare supplies to donate

    <P><BR>Her oxygen supplier , I know in our case the supplier of tanks concentrator wheelchair etc we called them and they took them back. If none tubes and meds are opened you may want to check with locsl red cross. Sending prayers to her family and friends during this time</P> <P></P> <P>Tammy</P>
  7. T

    New way to think of hospice

    we discussed transplant did a lot of research, she talked with doctors etc buut she could not keep weight on. It was her decision once we did all research she felt that she knew about how much time she had with her son andshe did not want to risk going for surgery and loosing time. She spent  a...
  8. T

    New way to think of hospice

    we discussed transplant did a lot of research, she talked with doctors etc buut she could not keep weight on. It was her decision once we did all research she felt that she knew about how much time she had with her son andshe did not want to risk going for surgery and loosing time. She spent a...
  9. T

    New way to think of hospice

    <BR>we discussed transplant did a lot of research, she talked with doctors etc buut she could not keep weight on. It was her decision once we did all research she felt that she knew about how much time she had with her son andshe did not want to risk going for surgery and loosing time. She spent...
  10. T

    New way to think of hospice

    I am not sure if this helps. My daughter was end stage for over a year.  Her complications really came after she had a baby and she made the choice willingly to carry and have her baby. Anyway I think Hopsice may vary state to state and maybe even county. We did have a visit with our local...
  11. T

    New way to think of hospice

    I am not sure if this helps. My daughter was end stage for over a year. Her complications really came after she had a baby and she made the choice willingly to carry and have her baby. Anyway I think Hopsice may vary state to state and maybe even county. We did have a visit with our local...
  12. T

    New way to think of hospice

    <BR>I am not sure if this helps. My daughter was end stage for over a year. Her complications really came after she had a baby and she made the choice willingly to carry and have her baby. Anyway I think Hopsice may vary state to state and maybe even county. We did have a visit with our local...
  13. T

    living alone and being sick

    <P>I am so sorry to hear of your struggles. I know when my daughter wanted to live alone with her son, I ended up going down to her place to clean put her laundry away,and bring her dirty clothes home to wash, it started  2 times a week but as she became more sick it was just about every day ...
  14. T

    living alone and being sick

    <P>I am so sorry to hear of your struggles. I know when my daughter wanted to live alone with her son, I ended up going down to her place to clean put her laundry away,and bring her dirty clothes home to wash,it started 2 times a week but as she became more sick it was just about every day ...
  15. T

    living alone and being sick

    <P><BR>I am so sorry to hear of your struggles. I know when my daughter wanted to live alone with her son, I ended up going down to her place to clean put her laundry away,and bring her dirty clothes home to wash,it started 2 times a week but as she became more sick it was just about every day ...
  16. T

    My baby girl

    <P>sending lots of prayers to give you strength and for your little girl to get better </P> <P> </P> <P>Tammy</P>
  17. T

    My baby girl

    <P>sending lots of prayers to give you strength and for your little girl to get better </P> <P></P> <P>Tammy</P>
  18. T

    My baby girl

    <P><BR>sending lots of prayers to give you strength and for your little girl to get better </P> <P></P> <P>Tammy</P>
  19. T

    Perceptions of CF

    <P>Truthfully I can say I have not seen any commercials etc for CF. The one show where I sasw it mentioned was like you say its pesty but no biggie.</P> <P>That was an issue when my daughter got pregnant she really had been mostly healthy doing her tx in hospital rarely so her fiance never saw...
  20. T

    Perceptions of CF

    <P>Truthfully I can say I have not seen any commercials etc for CF. The one show where I sasw it mentioned was like you say its pesty but no biggie.</P> <P>That was an issue when my daughter got pregnant she really had been mostly healthy doing her tx in hospital rarely so her fiance never saw...
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