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<P><BR>Truthfully I can say I have not seen any commercials etc for CF. The one show where I sasw it mentioned was like you say its pesty but no biggie.</P> <P>That was an issue when my daughter got pregnant she really had been mostly healthy doing her tx in hospital rarely so her fiance never...

<P>Sounds like you are off to a good start.  The hospital we used had a family lounge that had TV a computer games etc. </P> <P>There was a sink and locked cupboards that they kept filled with things like popcorn pudding  all kinds of goodies. Only CF patients had a key to these cupboards so no...

<P>Sounds like you are off to a goodstart. The hospital we used had a family lounge that had TV a computer games etc. </P> <P>There was a sink and locked cupboards that they kept filled with things like popcorn pudding all kinds of goodies. Only CF patients had a key to these cupboards so no one...

<P><BR>Sounds like you are off to a goodstart. The hospital we used had a family lounge that had TV a computer games etc. </P> <P>There was a sink and locked cupboards that they kept filled with things like popcorn pudding all kinds of goodies. Only CF patients had a key to these cupboards so no...

Thank you all for your kind words and prayers. Hard to believe I posted this almost a year ago, what a lesson to learn time does not stop cause you want it to nor does lives stop and hold. Tomorrow is her birthday she would be 26. Her son is now out of state with his father and step mom and...

Thank you all for your kind words and prayers. Hard to believe I posted this almost a year ago, what a lesson to learn time does not stop cause you want it to nor does lives stop and hold. Tomorrow is her birthday she would be 26. Her son is now out of state with his father and step mom and...

Thank you all for your kind words and prayers. Hard to believe I posted this almost a year ago, what a lesson to learn time does not stop cause you want it to nor does lives stop and hold. Tomorrow is her birthday she would be 26. Her son is now out of state with his father and step mom and...

For our family my daughter had 2 good rings we gave hr for xmas, we were instructed to give them to her son when he turns 18. For myself it was her coat, and her comfy jamma pants and a pair of sneakers . She had an Ipod her brother has and a cell phone yes we still have that handy and her...

For our family my daughter had 2 good rings we gave hr for xmas, we were instructed to give them to her son when he turns 18. For myself it was her coat, and her comfy jamma pants and a pair of sneakers . She had an Ipod her brother has and a cell phone yes we still have that handy and her...

For our family my daughter had 2 good rings we gave hr for xmas, we were instructed to give them to her son when he turns 18. For myself it was her coat, and her comfy jamma pants and a pair of sneakers . She had an Ipod her brother has and a cell phone yes we still have that handy and her...

Megan, I would say have that conversation with your mom at least. My daughters conversation was with myself her brother sister and daddy. Her biggest fear was we would be mad at her becasue she wanted to sign a DNR/DNI. Once she knew that we would support her decisions the whole conversation...

Megan, I would say have that conversation with your mom at least. My daughters conversation was with myself her brother sister and daddy. Her biggest fear was we would be mad at her becasue she wanted to sign a DNR/DNI. Once she knew that we would support her decisions the whole conversation...

Megan, I would say have that conversation with your mom at least. My daughters conversation was with myself her brother sister and daddy. Her biggest fear was we would be mad at her becasue she wanted to sign a DNR/DNI. Once she knew that we would support her decisions the whole conversation...

When my daughter was told she was kind of at end stage we had a family meeting where she told us what her wishes were. She signed her DNR/DNI order . Some of her plans changed, one thing we thought she might be under hospice but she was not and she wanted when time came for her son to be sitting...

<p>When my daughter was told she was kind of at end stage we had a family meeting where she told us what her wishes were. She signed her DNR/DNI order . Some of her plans changed, one thing we thought she might be under hospice but she was not and she wanted when time came for her son to be...

I feel for your baby and for you.  I too had a husband who left for his friends wife real classy. My kids were 10 8 and 6 and he was barely available and certainly did not handle any cf appointments etc, but he never did. Unfortunatley my children are older son with CF is 29, my middle daughter...

I feel for your baby and for you. I too had a husband who left for his friends wife real classy. My kids were 10 8 and 6 and he was barely available and certainly did not handle any cf appointments etc, but he never did. Unfortunatley my children are older son with CF is 29, my middle daughter...

<p>I feel for your baby and for you. I too had a husband who left for his friends wife real classy. My kids were 10 8 and 6 and he was barely available and certainly did not handle any cf appointments etc, but he never did. <p>Unfortunatley my children are older son with CF is 29, my middle...

 we had a spot and set up a pinwheel garden. people wrote name on paper of a person with or passed from CF taped that paper to the pinwheel stem .  Then that individual placed it in pinwheel garden. It was kind of funny we used to call my daughter turtle and they brought a turtle out and placed...

we had a spot and set up a pinwheelgarden. people wrote name on paper of a person with or passed from CF taped that paper to the pinwheel stem .Then that individual placed it in pinwheel garden.It was kind of funny we used to call my daughter turtle and they brought a turtle out and placed it so...