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<p>we had a spot and set up a pinwheelgarden. people wrote name on paper of a person with or passed from CF taped that paper to the pinwheel stem .Then that individual placed it in pinwheel garden.It was kind of funny we used to call my daughter turtle and they brought a turtle out and placed it...

First time my daughter came home on IVS I was a wreck she was about 16 17 and it was actaully an IV with poll and machine that you had to start.  I can remember her IV backing up and being a nervous wreck our visiting nurse was 3 hrs away, but something just kicked in and all I remember is...

First time my daughter came home on IVS I was a wreck she was about 16 17 and it was actaully an IV with poll and machine that you had to start. I can remember her IV backing up and being a nervous wreck our visiting nurse was 3 hrs away, but something just kicked in and all I remember is...

<p>First time my daughter came home on IVS I was a wreck she was about 16 17 and it was actaully an IV with poll and machine that you had to start. I can remember her IV backing up and being a nervous wreck our visiting nurse was 3 hrs away, but something just kicked in and all I remember is...

We learned how long tanks would last as my daughter started on 4 then went up to 5 then nine , she started with small tanks then had bigger. That being said she would tell me about how long she would be out shopping usually a friend went with her on long shopping trips or her brother. We would...

We learned how long tanks would last as my daughter started on 4 then went up to 5 then nine , she started with small tanks then had bigger. That being said she would tell me about how long she would be out shopping usually a friend went with her on long shopping trips or her brother. We would...

<p>We learned how long tanks would last as my daughter started on 4 then went up to 5 then nine , she started with small tanks then had bigger. That being said she would tell me about how long she would be out shopping usually a friend went with her on long shopping trips or her brother. We...

I do not know of one that has the title christian charity but there may be some that deal directly with helping CF patients and families with day to day needs which to me is as important as research.  I know in my area where my daughter went to CF center there was an organization started...

I do not know of one that has the title christian charity but there may be some that deal directly with helping CF patients and families with day to day needs which to me is as important as research. I know in my area where my daughter went to CF center there was an organization started byfamily...

<p>I do not know of one that has the title christian charity but there may be some that deal directly with helping CF patients and families with day to day needs which to me is as important as research. I know in my area where my daughter went to CF center there was an organization started...

My daughter started out at 2 so she just went out and about with her small tanks her friends really did not think much about it, it was just a part of what she had to do now. As her O2 had to be higher and she had to use the bigger tanks that bothered her briefly. But we always focused on she...

My daughter started out at 2 so she just went out and about with her small tanks her friends really did not think much about it, it was just a part of what she had to do now. As her O2 had to be higher and she had to use the bigger tanks that bothered her briefly. But we always focused on she...

<p>My daughter started out at 2 so she just went out and about with her small tanks her friends really did not think much about it, it was just a part of what she had to do now. As her O2 had to be higher and she had to use the bigger tanks that bothered her briefly. But we always focused on she...

I believe I have a physical vest not machine but its a child large my daughter was petite. I am not sure if that will help

I believe I have a physical vest not machine but its a child large my daughter was petite. I am not sure if that will help

I believe I have a physical vest not machine but its a child large my daughter was petite. I am not sure if that will help

we were told my daughter(CF) could not get pregnant but as I have heard of many people being told that and then they got a surprise, she decided to go on the pill. Her cycle was never really regular. Apparently at some point her pill failed however she never really looked pregnant. Then one day...

we were told my daughter(CF) could not get pregnant but as I have heard of many people being told that and then they got a surprise, she decided to go on the pill. Her cycle was never really regular. Apparently at some point her pill failed however she never really looked pregnant. Then one day...

we were told my daughter(CF) could not get pregnant but as I have heard of many people being told that and then they got a surprise, she decided to go on the pill. Her cycle was never really regular. Apparently at some point her pill failed however she never really looked pregnant. Then one day...

My daughters were closed . Our biggest battle was with because it was a full face mask one doctor insisted she had to go into ICU becasue of it. The next day her CF doctor and social worker came on the floor and set the resident straight. However the resident of course terrified everyone. If...