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I am confused as to what the problem is. Are you trying to make another user name? All of your profile credentials that I can see say you're from PA... etc...
To the OP, it has been brought to my attention that your child has been already hospitalized 5 times by 3 months of age? Is this true? If you don't tell us the whole story we CAN NOT help you.
I understand where you are coming from, trust me I do. However what you just said is much better than sarcasm. That was my gripe. I am not going to edit anything you just wrote because there is no sarcasm. I do think that there are better ways than to tell someone all the bad they're doing. If...
@kitomd21 Your negative sarcasm will not be tolerated. I would prefer not seeing it again. This IS a warning. You are bashing someone who, 1. Admits they have a problem. 2. Is asking for help. Which you advised what you would do and that's fine. But the latter comments are not constructive...
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Colsophnel</b></i> Yeah he is. He's a rambunctious kid.</end quote>
A good sign would be to worry when he is not. Activity is key in young children with CF. If you do anything make sure to keep him active. I also second seeing a...
If it was me, (I am NOT a doctor) I would give him the albuterol and Pulmozyme. Skip on the Pulmicort. There is a lot of research suggestion cortisteroids in CF are useless and leave us more prone to infections. Especially if they can't tell. In theory the MSW (Medical Social worker) has the...
Hmmm this is tricky. Especially because he's so young. I know social workers can go NUTS and do a lot of damage if you aren't careful. I've seen it first hand. I am inclined to say if they can't tell the difference than keep doing what you're doing. What is the prescribed treatment regime that...
Are you working with an approved CF center? What are the doctors saying? Do they know he hasn't gotten a treatment in a year? I wan't diagnosed until I was 7 almost 8. It probably wouldn't have made much difference if I had been diagnosed at birth. I didn't really have any problems until I was...
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Havoc</b></i> Yeah I hear the boredom thing. I hate TV, so that isn't even an option for me most of the time. Sometimes you'll get a cool nurse or CNA that will sit down and chat for a bit. I usually take books and stuff and my laptop...
My mutation from what I can find is from ethnicity closer to the equator. I know for a fact I am part Native American Indian (possibly at least 1/4). Needless to say - I don't burn. I tan to a nice golden brown. Bactrim only makes this happen faster for me.
It is possible... I'm drawing REALLY loose assumptions. That the deficit of S-Adensosylmethionine (SAMe) and Phosphotidylcholine may play a role in ADD/ADHD in the CF population. <a href="http://www.ncbi.nlm.nih.gov/pubmed/15755840" target="_blank">http://www.ncbi.nlm.nih.gov/pubmed/15755840</a>
We are measure the interest of the Cystic Fibrosis community to see who is interested in them who has them etc... The Survey was sent to everyone who subscribes to our email listing. I do agree the timing is a coincidence and nothing more. <img src="i/expressions/face-icon-small-smile.gif"...
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>LittleLab4CF</b></i>. Kalydeco is a crack in the wall. I firmly believe in most Cfers lifetime, a design specific drug family will treat all combinations of CFTR mutations ideally without side effects. My last patent automated gene...
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