Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. I

    PFT Goal's thread. Trying to achieve 60% FEV1.

    Keep at it Mike, never stop! You got this!
  2. I

    How are you treating your MRSA?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>travlinuf</b></i> Has anyone ever heard of Colloidal Silver to treat MRSA in CF kids? My 2 yr old just cultured MRSA for the first time and a friend said she had luck with Colloidal Silver orally in her teenage CFer. I was unsure of...
  3. I

    Salty Hands

    He'll probably tell you thats how CF works and not say anything else about it.
  4. I

    My teeth are gross...

    Xylitol is like sugar in every way except it has 75% less sugar and is not taken up with insulin so people who are insulin dependent need not worry. It is very safe if that's your main concern... A while back I did research and there is actually proof that it can heal cracks in teeth and get rid...
  5. I

    Who cooks?

    Resized my picture, go ahead and try now.
  6. I

    PFT Goal's thread. Trying to achieve 60% FEV1.

    Glad I can inspire, for a short time ago I found my inspiration in Jonny Pop Simpson and it has helped me a lot.
  7. I

    Who cooks?

    I'll start.. This was my 4am snack... Salmon w/Bacon, Elbows... Spinach, Shitaki mushrooms, Ginger & Scallions w/ Garlic <img src="https://lh4.googleusercontent.com/-S2h2oZW5Ibw/T8zjVICr5oI/AAAAAAAAAZk/XxISnHkpbAU/s403/foods-001.jpg" alt="" width="403" height="403" />
  8. I

    What do you do to limit bouts of sinusitis?

    No problem, Havoc is using it too for his Sinus issues, he will see this and give his 2 cents as well. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  9. I

    What do you do to limit bouts of sinusitis?

    Get some Puracyn hydrogel and spray it up her nose.
  10. I

    My teeth are gross...

    You can buy Xylitol packets and take about 2-3 per day just dump into your mouth and let your saliva break it down keep it there for 3-5min each time. I will help kill thrush (Candidiasis) as well as strengthen your teeth, it also helps with the bathroom for those that find themselves backed up...
  11. I

    Intravenous Ozone has greatly helped my sinusitis

    Its funny, Jonathan and I were talking earlier today. I told him if anyone had tried it, and knew it'd be you. I didn't realize you were just now doing it however. Unfortunately I am in no position to be able to afford something like this. Granted there are other ways. When you come back from...
  12. I

    Intravenous Ozone has greatly helped my sinusitis

    I have researched A LOT of stuff. This was one thing that never appealed to me. It is very risky. However the fact that it is used in Germany makes me wonder, as the German medical system is very stringent on what they do, and do not allow. The problem with CF is not bacteria in the blood and...
  13. I

    Motivating Others

    I will say this, Weight lifting = Lung function, Running, Swimming.. ect = Cardio Vascular support. Know the difference and how each severly affects your quality of life. <img src="https://fbcdn-sphotos-a.akamaihd.net/hphotos-ak-snc7/581254_10151781448985080_783995079_24588839_404487569_n.jpg"...
  14. I

    Kangaroo Joey Feeding pump

    When you turn it on, it will ask you if you want to "Keep Settings" say yes. Then on the next screen pretty the button for "More" under the next screen you will see "Buzzer" at the top. Enter that menu and then you can decrease of increase the noise from there. I hope this is what you mean.
  15. I

    PFT Goal's thread. Trying to achieve 60% FEV1.

    Originally posted by: scarecrow WOW!! You look like a different person in 5 months. Well done!! Keep it up. How much weight have you gained? I have gained around 20lbs. To everyone else who commented thank you! @Melissa I posted in the exercise section too :) @Mark I deff feel ya man...
  16. I

    Cystic fibrosis related Narcolepsy????

    Classic narcolepsy you are constantly tired but also have a hard time staying asleep. In some people it can mean falling asleep as soon as you hit the pillow and some you struggle to sleep. Usually depends on how much hypocretin you have left. Another sign of narcolepsy is when you do fall...
  17. I

    My aquagenic wrinkling factor test results.

    Good! Thanks a lot I figured a few people would be interested. I don't know about very smart, but I know some stuff. <img src="i/expressions/face-icon-small-wink.gif" border="0">
  18. I

    My aquagenic wrinkling factor test results.

    Post removed.
  19. I

    new, pls help

    ^^^ The VA can do just about whatever they want and no one can tell them otherwise. They have the mentality that these men and women are soldiers and can tough it out. VA's aren't required to follow standard procedures IIRC. It's slightly different than a public military base run...
Top