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For the most part I have gone with the dosing interval recommended by the supplements. For the Joint supp - I take all 5 at once because it doesn't say "1 cap 5 times a day, it says 5 caps daily" However I'm sure taking them apart it okay too. For the curcumin I take 2 in the morning and 2 in...

Right on, it wasn't something I was looking out for at first. I was more concerned about feeling better and I was. However if I happen to miss a dosing which is rare, I notice the wrinkling speeds up. Keep in mind the warmer the water the faster it is going to happen. The testing in the study...

I am going to be doing the same as well. However I'm pretty sure my docs understand the significance of this. They're great. I had some doubts for a little while but I think it was more because I was taking the wrong approach to things at one point. I couldn't be happier right now. Also my...

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@LittleLab4CF As you follow my posts with interest, I take a lot of stock in the things you post as well. You always seem to have a good way of telling a story with the example. Something someone with great life experience as yourself can do, and do it well. I was dx'd in 1997 (one month from...

TTT

So are you saying your daughter is M1101K? There is going to be a lot of testing needed to be done to figure out which mutations Ivacaftor will work on. However I am still not sure I would try it given the chance. I've been playing it out over and over.

There is an inherent problem with Xolair, that being if it lowers IgE response, how do you know when you have have successfully treated the ABPA? Some food for thought.

Were you not on anything for a week and that's why it happened? Or were you not on anything for a week because it happened.

<a href="http://www.jbc.org/content/271/25/15139.full.pdf">http://www.jbc.org/content/271/25/15139.full.pdf</a> thats where I got that from.

MSDS is Material Safety Data Sheet. There is a MSDS for every chemical hazardous or not. Sure Tobramycin/Gentamicin (Aminoglycosides) and Colistin (Polymyxin) cause problems, but uhh they cause problems and we only take them IV for 2-3 weeks maybe 3-4 times a year for the average CFer. If you're...

I got my mutation results back from John Hopkins, came back with DF508, which I knew and M1101R. I can't really find any information on it and there are no recorded instances of it in the CFR2 database, I will be the first one in the database with it? We do know it is a Class II mutation similar...

I recommend Doctors Best Brand, Calcium Bone Marker. It has everything you need, including your K2 for bones, Zinc, and Vitamin D3 three things CFers traditionally lack or absorb poorly . The price is great as well. http://www.iherb.com/Doctor-s-Best-Calcium-Bone-Maker-Complex-180-Capsules/27750...

Very nice! Keep going!

I like my Inspiration Elite from Phillips Respironics. So much faster than the junk that is PARI Pro Neb Ultra. It's also better looking.. I think.

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>knobby</b></i> Saveferris, sorry about the bad link! I have no idea what Cymbalta even is. The appropriate link is http://pi.vrtx.com/files/uspi_ivacaftor.pdf Havoc, the MSDS has this for the Kalydeco from the link you sent: 11...

Did you type it or copy it? If you type it, I found it doesn't work... (tried just now) http://www.cysticfibrosis.com/ but if I copy it from my address bar <a href="http://www.cysticfibrosis.com/">http://www.cysticfibrosis.com/</a>

Weird... I give up. lol.

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i> ENNNNNNNNNNNNNIIIIIIIIOOOOOOOOOOOOO. Why do these URL's not hyperlink? We've been asking about this for months now.........</end quote> If you paste a link in the "quick reply" it will not parse the link. You...

Well I guess I won't be bike riding anymore as I let my brother use my bike to go to work. It got stolen good lock cut right through.....