Cystic Fibrosis Forum (EXP)

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  1. M

    CFers over 40

    I'm almost 43. I was diagnosed at 6 months of age. My PFT's are around 35%. Had a evaluation for transplant, but not sick enough yet. Mark
  2. M

    CFers over 40

    I'm almost 43. I was diagnosed at 6 months of age. My PFT's are around 35%. Had a evaluation for transplant, but not sick enough yet. Mark
  3. M

    CFers over 40

    I'm almost 43. I was diagnosed at 6 months of age. My PFT's are around 35%. Had a evaluation for transplant, but not sick enough yet. <br />Mark
  4. M

    Good CF doc in Ohio?

    I've been going to the CF Clinic at The Toledo Hospital since it opened in the 1970's. I've always been satisfied with the care I received. This is the only clinic I have gone to over the past 35 years so I can't compare it to other clinics. Good luck with your search. Mark
  5. M

    Good CF doc in Ohio?

    I've been going to the CF Clinic at The Toledo Hospital since it opened in the 1970's. I've always been satisfied with the care I received. This is the only clinic I have gone to over the past 35 years so I can't compare it to other clinics. Good luck with your search. Mark
  6. M

    Good CF doc in Ohio?

    I've been going to the CF Clinic at The Toledo Hospital since it opened in the 1970's. I've always been satisfied with the care I received. This is the only clinic I have gone to over the past 35 years so I can't compare it to other clinics. Good luck with your search. <br />Mark
  7. M

    Kidney Failure?

    At Lex- was the pancreas tranplant offered by your CF, endocrine or transplant doc. I'm getting close to needing a lung transplant and wondered if they would do a pancreas transplant a the same time. I have diabetes also. Keeping my sugar under control is a pain. I haven't brought this up to...
  8. M

    Kidney Failure?

    At Lex- was the pancreas tranplant offered by your CF, endocrine or transplant doc. I'm getting close to needing a lung transplant and wondered if they would do a pancreas transplant a the same time. I have diabetes also. Keeping my sugar under control is a pain. I haven't brought this up to...
  9. M

    Kidney Failure?

    At Lex- was the pancreas tranplant offered by your CF, endocrine or transplant doc. I'm getting close to needing a lung transplant and wondered if they would do a pancreas transplant a the same time. I have diabetes also. Keeping my sugar under control is a pain. I haven't brought this up to...
  10. M

    cenocepacia or b.cepacia III

    I'm 42 and have cenocepacia. Not sure how long I've had it, probably about 5-10 years. My FEV1 is in the mid thirties, but not sure if that's cepacia related or just getting older related. I don't put much thought into survival statistcis because everyone is different. I wasn't supposed to live...
  11. M

    cenocepacia or b.cepacia III

    I'm 42 and have cenocepacia. Not sure how long I've had it, probably about 5-10 years. My FEV1 is in the mid thirties, but not sure if that's cepacia related or just getting older related. I don't put much thought into survival statistcis because everyone is different. I wasn't supposed to live...
  12. M

    cenocepacia or b.cepacia III

    I'm 42 and have cenocepacia. Not sure how long I've had it, probably about 5-10 years. My FEV1 is in the mid thirties, but not sure if that's cepacia related or just getting older related. I don't put much thought into survival statistcis because everyone is different. I wasn't supposed to live...
  13. M

    Spit-rag of choice

    I tend to use tissues or paper towels. My wife and I have been together for almost twenty years. She loves me and will do anything to take care of me, but she still can't deal with the mucus. And she works at a hospital. The sight of mucus will make her gag and she dredges it when I leave a used...
  14. M

    Spit-rag of choice

    I tend to use tissues or paper towels. My wife and I have been together for almost twenty years. She loves me and will do anything to take care of me, but she still can't deal with the mucus. And she works at a hospital. The sight of mucus will make her gag and she dredges it when I leave a used...
  15. M

    Spit-rag of choice

    I tend to use tissues or paper towels. My wife and I have been together for almost twenty years. She loves me and will do anything to take care of me, but she still can't deal with the mucus. And she works at a hospital. The sight of mucus will make her gag and she dredges it when I leave a used...
  16. M

    Port and Diabetes

    Ditto on what most people have said. I've had a port for about two years and diabetes for about fifteen years. No problem with infections.
  17. M

    Port and Diabetes

    Ditto on what most people have said. I've had a port for about two years and diabetes for about fifteen years. No problem with infections.
  18. M

    Port and Diabetes

    Ditto on what most people have said. I've had a port for about two years and diabetes for about fifteen years. No problem with infections.
  19. M

    What to leave behind with loved one

    As a father who lost a son at an early age, I would like to express my opinion. Our son died of cancer when he was three. We have many memories of our son and they were not physical things that he gave us. We have many pictures, videos, clothes, toys, etc.. All these things are memories of our...
  20. M

    What to leave behind with loved one

    As a father who lost a son at an early age, I would like to express my opinion. Our son died of cancer when he was three. We have many memories of our son and they were not physical things that he gave us. We have many pictures, videos, clothes, toys, etc.. All these things are memories of our...
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