Cystic Fibrosis Forum (EXP)

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  1. M

    What to leave behind with loved one

    <p>As a father who lost a son at an early age, I would like to express my opinion. Our son died of cancer when he was three. We have many memories of our son and they were not physical things that he gave us. We have many pictures, videos, clothes, toys, etc.. All these things are memories of...
  2. M

    To do or not to do

    My wife and I have been struggling with these same questions since my doctors first mentioned transplant over a year ago. I went through the eval process and they say I'm not "sick enough" yet. We have two boys ages 8 and 11. The boys know I am sick and will need a lung transplant. I don't think...
  3. M

    To do or not to do

    My wife and I have been struggling with these same questions since my doctors first mentioned transplant over a year ago. I went through the eval process and they say I'm not "sick enough" yet. We have two boys ages 8 and 11. The boys know I am sick and will need a lung transplant. I don't think...
  4. M

    To do or not to do

    My wife and I have been struggling with these same questions since my doctors first mentioned transplant over a year ago. I went through the eval process and they say I'm not "sick enough" yet. We have two boys ages 8 and 11. The boys know I am sick and will need a lung transplant. I don't think...
  5. M

    hospital stay vs. home iv's

    cf4life, the RT's staying in the room is an order that came from our docs. It's my understanding that some the CFers weren't doing thier treatments properly or didn't want to do them at all. It didn't make sense to me. If I'm sick enough to be in the hospital, then I'll do whatever it takes to...
  6. M

    hospital stay vs. home iv's

    cf4life, the RT's staying in the room is an order that came from our docs. It's my understanding that some the CFers weren't doing thier treatments properly or didn't want to do them at all. It didn't make sense to me. If I'm sick enough to be in the hospital, then I'll do whatever it takes to...
  7. M

    hospital stay vs. home iv's

    cf4life, the RT's staying in the room is an order that came from our docs. It's my understanding that some the CFers weren't doing thier treatments properly or didn't want to do them at all. It didn't make sense to me. If I'm sick enough to be in the hospital, then I'll do whatever it takes to...
  8. M

    hospital stay vs. home iv's

    I would prefer to do the IV's at home, but my docs would rather have me in the hospital for 10-14 days. Their reasoning is that I will be too active at home and not get enough rest, which is probably true. My biggest negative about about being in the hospital is that the RT's have to stay in the...
  9. M

    hospital stay vs. home iv's

    I would prefer to do the IV's at home, but my docs would rather have me in the hospital for 10-14 days. Their reasoning is that I will be too active at home and not get enough rest, which is probably true. My biggest negative about about being in the hospital is that the RT's have to stay in the...
  10. M

    hospital stay vs. home iv's

    I would prefer to do the IV's at home, but my docs would rather have me in the hospital for 10-14 days. Their reasoning is that I will be too active at home and not get enough rest, which is probably true. My biggest negative about about being in the hospital is that the RT's have to stay in the...
  11. M

    Vest comparison

    For those of you who have had multiple vests, does your insurance pay for the different vests? I've had the HillRom Model 103 for many years and was told if I want a new machine, I would have to pay for it myself. I haven't checked in a few years so maybe things are different now. Plus, I'm...
  12. M

    Vest comparison

    For those of you who have had multiple vests, does your insurance pay for the different vests? I've had the HillRom Model 103 for many years and was told if I want a new machine, I would have to pay for it myself. I haven't checked in a few years so maybe things are different now. Plus, I'm...
  13. M

    Vest comparison

    For those of you who have had multiple vests, does your insurance pay for the different vests? I've had the HillRom Model 103 for many years and was told if I want a new machine, I would have to pay for it myself. I haven't checked in a few years so maybe things are different now. Plus, I'm...
  14. M

    UPMC

    I think it stands for University of Pittsburgh Medical Center. I have not been transplanted yet, but had my eval done at UPMC.
  15. M

    UPMC

    I think it stands for University of Pittsburgh Medical Center. I have not been transplanted yet, but had my eval done at UPMC.
  16. M

    UPMC

    I think it stands for University of Pittsburgh Medical Center. I have not been transplanted yet, but had my eval done at UPMC.
  17. M

    What to pack

    I'm not listed yet, but it's getting close. Here are some things I thought of to pack. We have to drive on the turnpike to get to my transplant hospital, so I want to have some cash on hand. I will also have a bottle of pills and snacks, I'm a diabetic, in case it's a dry run and I need to eat...
  18. M

    What to pack

    I'm not listed yet, but it's getting close. Here are some things I thought of to pack. We have to drive on the turnpike to get to my transplant hospital, so I want to have some cash on hand. I will also have a bottle of pills and snacks, I'm a diabetic, in case it's a dry run and I need to eat...
  19. M

    What to pack

    I'm not listed yet, but it's getting close. Here are some things I thought of to pack. We have to drive on the turnpike to get to my transplant hospital, so I want to have some cash on hand. I will also have a bottle of pills and snacks, I'm a diabetic, in case it's a dry run and I need to eat...
  20. M

    home oxygen

    You did not indicate if you are using an Oxygen Concentrator or just O2 tanks. If you are using a concentrator, then your medical supply company should have humidifier bottles availble that connect to the concentrator. I use distilled H2O in the humidifier bottle connected to my concentrator...
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