Search results

I'm impressed! I have never had any good service from CVS. I even was told that it was ok, it wasn't on the shelf that long, when I went to pick up Pulmozyme and they removed it from the shelf to give it to me, the box was not even cool. I refused it, took down the lot number and had them...

We purchased TriCare Prime when my husband retired. So everything would remain the same from A/D to retiree status. Since we were primarily concerned about our two daughters, we didn't look into much outside of their CF care. FYI, transplant is covered at 100%! We paid zero, out of pocket for a...

Hi, I'm sorry to say, sounds like your veins are shot. I'm surprised your docs haven't suggested a picc line or a port a cath. The antibiotics they run through your line to treat a CF exacerbation are so very harsh that most CF'ers eventually have to move on from a peripheral line to a picc line...

You should have received a letter from your pharmacy telling you that Novartis decided to limit who could order TOBI. I called them (Novartis) when we received the letter from our Target pharmacy telling us they would no longer be able to order the medication. I told Novartis that I thought it...

I'm so glad you are able to purchase their supplement. We/my husband, became a lifetime member of MOAA so that we'd never forget to renew and it was not outrageous to just pay the lifetime membership.

So good to hear that Garran is doing so well! It is an amazing process isn't it?! You do tend to disconnect a bit after transplant. May he continue to do well and you all LIVE a "normal" life! Do it all and love every minute!

Same here, All parts into the sterilizer the CF pharmacy sent with the first filled prescription. DO NOT ever put the metal piece into the dishwasher for sterilizing, if you ever consider trying that out. It can not withstand the heat and will damage it. I called them to ask them when I got a...

My daughter was diagnosed with Crohn's in March 2011. After discussions with her CF doc, her GI decided to put her on Budesonide and she has not had any problems with it. She's on 9mg a day and says she can tell when she's slacked off and not taken it. She doesn't suffer from muscle and joint...

If your husband is an officer, check into MOAA's supplement, Mediplus. We purchased this when my husband retired from the AF. You have to become a member of MOAA then can purchase the Mediplus. It's been so very worth it! I don't know the criteria other than you have to be an officer. It takes...

You need to call Pari, who is the maker of the Altera neb. I don't know what the vinegar might do to the little mesh part in the metal piece. In most everything else, it is acceptable to use vinegar to descale. I had previousely thought I should be able to put the altera pieces in my brand new...

One thing to consider, if your tx center is against new tattos post tx, before deciding to go against the "rules"... the possibility of being turned down for a second tx by your center for non-compliance, in the event you were to ever need a second tx. It is a wonderful thought and a great way...

Hi, The best place to start is to get a good ole military installation map from the px or go to military.com where you can go to all the Army Posts and see where they are located. Now, I am sure that his job determines which bases he can be sent to (at least that is how it is in the AF, not...

I use Super Target pharmacy for all of Rachel's CF meds except Cayston. They've never had any trouble getting anything in if it's M-Th, it's in the next day unless there is a supplier problem and that would effect all pharmacies. I've even had them volunteer to check other pharmacies that have a...

I agree with Cheryl

You are so very welcome!

You are so very welcome!

Liquid oxygen. It's not too heavy. You can fill it up before you are heading out, the amount of time it lasts depends on the flow you require. We carried a spare tank with us when ever we went out. There are a couple of different types. Helios is good but it is a demand system, we didn't know...

Liquid oxygen. It's not too heavy. You can fill it up before you are heading out, the amount of time it lasts depends on the flow you require. We carried a spare tank with us when ever we went out. There are a couple of different types. Helios is good but it is a demand system, we didn't know...

My heart breaks to hear this. I feel as if I have been under a rock and somehow missed this news until now. Marjolein was such an inspiration. Despite the obsticles that seemed to jump in her way, she was determined to jump each and every one of them with all she had. My thoughts and prayers are...

My heart breaks to hear this. I feel as if I have been under a rock and somehow missed this news until now. Marjolein was such an inspiration. Despite the obsticles that seemed to jump in her way, she was determined to jump each and every one of them with all she had. My thoughts and prayers are...