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I moved this topic from the original thread so that it would not derail Irishgirl's questions about IV vitamins. I'm sure it's not secret to many that my husband and I chose not to have children. As a scientist and a former researcher and data analyst, I have brought a lot to bear on that...

At my last appointment (a month ago) my doc said he was going to give me a month to make some definite progress, otherwise he'd admit me yet again. (The last admission was in May.) My pfts were up just a smidge from the last time, but it was progress. The fact that I didn't lose ground was...

I don't know how many of you are planning to apply for this or if you've even heard about it before now, but I wanted to let you know about this excellent opportunity. Here's some info about it: The Cystic Fibrosis Achievers' Award program is designed specifically for persons with CF. Each...

I'm not usually prone to hemoptysis in the summer. Winter is when I have the most trouble, especially when stinging cold air makes me cough w/o being able to catch a decent breath. Lately I've been keeping a close eye on my sats because they had been hovering around 93 and 94%. I know that...

My husband is, as my extended family says, "a gem." He began a relationship with me knowing full-well about cystic fibrosis. Although he couldn't possibly have understood it in all its mucus-producing glory, he took it upon himself to learn what he could about it. Throughout out dating years, he...

About three weeks ago I posted the news that a fellow CFer who happened to be a newlywed, received a double lung transplant. Today there was an update in the Los Angeles Downtown News online about his story and how things are going. I spoke on the phone with Danielle a little while ago and she...

Recently someone (I think it was Sakasuka) mentioned how the Danish approach to tune-ups must work because Denmark has such high survival numbers. Well, that may be the case, but I think that like here, the number may be artificially inflated since only those who attend CF Care centers are being...

I was on my way downstairs to get a snack before starting my evening meds, and I slipped. My feet shot out from under me and I landed flat on my back on the stairs. My husband had to help me up. Now I'm sitting in the recliner, hurting like heck and wondering how on earth I'm going to handle...

Thursday morning I got a phone call from my publisher, Joyce. It was so great to hear from her. As the release date for <i>Dear Future Husband</i> draws ever closer, my excitement about the whole thing just keeps growing. Joyce has been wonderful about keeping me in the loop about everything...

The topic of what methods we use to clean and disinfect nebulizer parts has come up before. I've recently found an easier, faster, safer way to do it than the traditional "boil on the stove" solution. <b>The drawback of stove-top boiling</b> If you have a gas stove, using the burner emits a...

As some of you know, this has been a very rough year for me with my health. I've been on disability from work since Thanksgiving. I was due to return in May, but was hospitalized again. In the last calendar year I've been admitted about 7 times. Because of this, my doc has kept me on a VERY...

I have a premixed sinus flush that I really like. It's a little on the strong side (not sure of the concentration) but it's in a really handy mess-free bottle. It's called SaltAire Sinus Relief. I like that I don't have to mix it. Does anyone else have any favorite sinus flush products they...

I first cultured cepacia about 10 years ago. And when I say cepacia, I mean the big ugly version that made my doctors cry when they gave my family the diagnosis. That was 10 years ago. The extent of my lung disease has dramatically decreased because of this formidable monster. For some...

With all that goes on around here, the moderators certainly have their work cut out for them. So many posts, so many members, and so many topics! It's enough to make my head spin! I know that depending on our individual circumstances, health status, heck, even blood sugars, our moods and...

TheInkDoll, (Frankie) has lost her battle with CF. She was 25.

Hey everyone, don't forget to stop by my Understanding CF blog. I've got a new poll, and a great "career spotlight" on one of our own CFers! <a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/">Understanding CF</a>

Thanks for checking in Allie. I'll call off the hounds now <img src="i/expressions/face-icon-small-smile.gif" border="0">

Okay, so my husband tells me I'm a bit behind the times, but this afternoon while doing my vest I found this <a target=_blank class=ftalternatingbarlinklarge href="http://www.youtube.com/watch?v=VrXUVSxeZYQ">Weird Al Song about the Pancreas</a> on Youtube. I laughed so hard I got plenty of...

<i>An ancient CFer meeteth three young adults bidden to a care center, and detaineth one. </i> It is an ancient CFer, And he stoppeth one of three. `By thy thin frame and oxygen hose, Now wherefore stopp'st thou me ? The clinic's doors are opened wide, And I am next of kin ; The patients...

I have a new vest, and am demo-ing the Quake to see if I can't improve my FEV1. So far I'm REALLY pleased with how much gunk is coming up during and after each vest treatment. The vest I had before never did that. Today as I was relaxing in the bath I felt a few oysters on the rise, and I was...