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My short term disability ends this weekend, and I'm scheduled to return to work on the 23rd. However, I'm still on IVs for the next 5 weeks. I'm hoping that I qualify for 6 weeks of leave under the FMLA.
Has anyone used this? If so, what were your experiences.
The following site:
<a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com">Blogging about CF</a> Has now officially come to life. It's new, so there are only a few articles on there, but I hope you'll stop by and check it out.
Thanks! And be...
When I first started going to my adult CF clinic, I loved it. I liked having a doctor that knew more about CF than I did. I have a TREMENDOUSLY competent team when I was still seeing a pediatrician at my other CF clinic. They had plenty of specialists on staff who were ALWAYS at every...
Wow, I never had so much trouble getting discharged. There was all kinds of miscommunication, and it was looking like I'd have to stay one more night. Hubby and I were mighty Teed off about that. We put up a good fight, and I was finally released 2 hours ago. It's SO good to be home.
Thank you...
I'm stunned. My lung function has dropped again and so it's back to the hospital I go. This makes 7 times in less than a year.
I'm devastated by the news and struggling to contain my emotions. Living shouldn't be this damn hard.
Chances are, either you or someone you know is struggling with addiction of some sort. Statistics show that every day, 5,000 will try cocaine for the first time.
Meet Judith Ann Hillard, author of <i>The Other Woman at the Well</i>. Her book is a truthful accounting of addiction overcome. I...
I'm working on a book about CF. Specifically a children's book that will be used as a teaching tool, possibly in the CF Team Clinic setting. I would like to involve a fellow CFer as the illustrator if at all possible.
If you are interested please send me a PM. If you have a sample of your...
For those of you who don't know, I had a new port placed on Tuesday. I was allowed to keep the old port as a souvenir, and so in the interest of education and knowledge-sharing, I thought I'd share the pictures with you. Don't worry, it's nothing too racy or gross. Quite tame in fact.
<a...
Today was the big day! I got my blood transfusion, which was a little more than I expected. I got 2 units of "FFP" (fresh, frozen platelets) mmmm....
Basically, they gave me everything that's in blood except the red blood cells. Boy was it cold going in!
For all my nerves about being "awake"...
A portion of the earnings generated by these articles I've written will be donated to the Cystic Fibrosis Foundation. So please, read them and pass the links along:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.helium.com/tm/220657">What is a Free Radical</a>
<a...
I don't know the real names of many people on here, nor to I care to. I feel very strongly about maintaining my privacy on this site and protecting the right to privacy of others. Obviously, the administrators of this site feel that way too, or they wouldn't ask us to create usernames.
In...
Woo hoo! I got the audio to sync up with the slides. If you've already watched the slide show, you might want to watch it again with the audio so it makes more sense. I'm glad to hear how many of you found this helpful. I figure, if I'm going to be a guinea pig, I might as well be the kind that...
Hey folks. I'm feeling particularly comfortable with myself these days, and I was wondering if anyone would be interested in seeing a slide show (or similar) of me accessing and flushing my own port?
It's due for a change tonight, so I'm going to go ahead and document the process. I can always...
According to Axcan pharmaceuticals, AquADEKs were supposed to be ready for purchase online by February. I checked out their website just over a week ago and they were not yet set up for online orders. So I went to SourceCF and ordered the competitor's product. So far I'm REALLY happy with it...
It's a wonderful thing to be able to share information that we find elsewhere on the internet. We all have different interests and thanks to our combined efforts we can help educate each other by shedding new light on topics that other people may not even think about.
There are so many...
<i>For fast-acting relief, try slowing down. --Lily Tomlin
</i>
I'm trying to eat more fruits. I think my body chemistry is a bit out of whack because I'm craving things that aren't good for me. So, instead of reaching for the thing I think I want, I am feeding myself what I know my body...
<a target=_blank class=ftalternatingbarlinklarge href="http://www.helium.com/tm/131136">The Different Forms of Depression</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://www.helium.com/tm/131093">Mental Health and Diet</a>
<a target=_blank class=ftalternatingbarlinklarge...
I posted this in the nutrition section of the forum, but since there are only a few people there who would see this, I thought I'd put it here too. From what I've noticed about the nutrition forum, a lot of the articles posted in there are geared toward people who already have a very narrow...
The main dangers associated with cured meats are as follows:
-nitrates can cause adverse reactions for asthma and allergy sufferers
-high levels of tyamine can trigger migraines
-tyamine can react dangerously with certain medications
-cured meats are extremely high in sodium
-meat fillers used...
I've probably posted it before, but the topic came up again as a result of a post about dishwasher issues and neb cup cleaning, so I thought I'd share it again for the benefit of the newbies.
<b>
Compliance: Because We've Got Enough to Deal With</b>
Cleanliness becomes more important when...
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