Cystic Fibrosis Forum (EXP)

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  1. L

    How To Clean Your Toothbrush

    Some people really like to go overboard when it comes to re-using items around the home. Just as "out there" are some of the ideas that people have about how to clean certain things. Things are disposable for a reason. I don't think it's necessary or prudent to waste time cleaning certain...
  2. L

    Make the most of it

    If you were to be told that today will be the last day of your life, what three important things will you do? <a target=_blank class=ftalternatingbarlinklarge href="http://www.helium.com/tm/131045">Read my answer here</a> I'm not the sort of person who dwells on thoughts of death in a morbid...
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    Food Additives Explained

    <i>Introduction and Background</i> Most mainstream commercial-grade food products contain additives of some sort. Simply put, an additive is anything that is not naturally part of the food. In other words, they are something that is added to promote flavor, appearance, smell, shelf-life, even...
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    Can't vs. Shouldn't

    I was never told that I couldn't do something. Despite being told by doctors that I might not live to see my 10th birthday, my parents never discouraged me from doing things based solely on what "might" happen because of cystic fibrosis. At the same time, they encouraged and guided me in the...
  5. L

    Why Is the Sky Blue?

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.helium.com/tm/115698">Why The Sky is Blue</a>
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    Articles about Nutrition

    Hi Folks, I thought you'd like to benefit from the compendium of knowledge that I've gathered together into a collection of brief articles about nutrition. The topics are sort of all over the place. I've written from my own point of view as well as my experiences as a CFer who has been around...
  7. L

    AIR-CF2 Trial

    Does anyone have any information about the inhalation of lysine for the treatment of PA?
  8. L

    A Simple Request

    Dear Forum Community Members, When I first found this site I was excited to see the way that categories and subcategories were laid out. I hoped that by clicking on the appropriately labeled forum headings that I would find information helpful or pertinent to that category. That has not been...
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    Another Update about My Work Schedule

    Today's meeting with my supervisor went VERY VERY well. He was more understanding and reasonable as I could have hoped. Not that I expected him to be otherwise, but as I'm sure many of you have felt, there's a certain degree of uneasyness experienced when we lay it on the line with some people...
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    Changes in my work schedule

    As some of you know, I work as an environmental scientist for a consulting firm. I love the flexibility of the job. However, the scariest part is that in consulting we have to be very proactive about bringing in work. I've reached an interesting crossroads in my work. I'm no longer the "newbie"...
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    Article with a Positive Spin

    <b>New therapies extending lives of cystic fibrosis patients </b> Wednesday, April 19, 2006 By Mark Roth, Pittsburgh Post-Gazette Twice a day, 6-year-old Madison Mathias puts on a black electronic vest, climbs onto a comfy couch in her family room, and vibrates. Madison has cystic fibrosis...
  12. L

    Someone's Karma just ran over my Dogma

    Just thought I'd let the cool upperclassmen know that this little freshman has been hospitalized. But no one will care, since I'm not one of the cool kids.
  13. L

    Beyond the Medical Descriptions

    <span style=" color: rgb(0, 0, 0);">I found this story online and was very impressed by how well it metaphorically describes life with chronic illness. Those of us who live each day with CF sometimes have a hard time explaining to others what exactly it takes to maintain a sense of normalcy. If...
  14. L

    I Hope This Makes You Smile

    Have you ever noticed how easy it is to look on something with a positive attitude when you're not stuck in the middle of it? Seeing as how I've been having a good run of health lately, I thought I'd share with you a little song that I have written about just a few of the "pleasantries" that are...
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    Recommended Reading

    <h2>CF and Nutrition; Recommended Reading</h2> <div class="blogpost"> <div style=" clear: both;"></div> <a onblur= "try {parent.deselectBloggerImageGracefully();} catch(e) {}" href= "http://photos1.blogger.com/blogger/6730/506/1600/foods.jpg"><img alt="" style= " margin-top: 0pt; width: 164px...
  16. L

    CF and Nutrition

    <h2>CF and Nutrition; Recommended Reading</h2> <div class="blogpost"> <div style=" clear: both;"></div> <a onblur= "try {parent.deselectBloggerImageGracefully();} catch(e) {}" href= "http://photos1.blogger.com/blogger/6730/506/1600/foods.jpg"><img alt="" style= " margin-top: 0pt; width: 164px...
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    Compliance

    <h2>Compliance: Because We've Got Enough to Deal With</h2> <div class="blogpost"> <div style=" clear: both;"></div> <a onblur= "try {parent.deselectBloggerImageGracefully();} catch(e) {}" href= "http://photos1.blogger.com/blogger/6730/506/1600/biohaz_stickerS.jpg"> <img style= " margin-top...
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    Fresh Start

    Okay okay okay. This has gotten to the point of being crazy. Before we take another step on this wretched path that seems to be strewn with eggshells, can we please drop the issue from the CF carriers post.<br> <br> <br> Plenty of hot buttons were pushed on all sides, and just about everyone has...
  19. L

    Crushed But Not Consumed

    <h3 class="post-title">-</h3>
  20. L

    Idea for a Fund-Raiser

    We've all seen the 65 Roses calendars with a different floral arrangement for each month. We've seen the Faces of CF calendar that TOBI has done. Let's take that idea and run with it a bit beyond what was prudent... I came up with this idea and I have no way to implement it. I'm hoping maybe...
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