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2roses, i wish your daughter a quick recovery from her wisdom teeth surgery. My son had his done in the hospital under anesthesia, and it worked out really well. Definetly a lot safer having it done there. Good luck.

DmT145, I admit i do not know really anything about how nitrous oxide works, and honestly did not claim to. I was simply sharing our experience with it, and the fact that it is not recommended for anyone with cystic fibrosis. That was my only intention. As can be seen by the posts on here...

Thank you Ratatosk. We did try an electric toothbrush a few year, it was one that sings. I still had to brush them for him. He has severe sensory issues. We can only use baby toothpaste on him. The feelng of the tooth brush in his mouth, he hates, and will do anything to avoid it if he...

Thats what happened to him. He was also seeing things that were not there, and very violent, and trying to run away. It was horrible. very intersting that you both had similar experiences. They had only given him 5 milagrams. he had the same experience with Sinulair (for allergies).

Thank you imported-Momto 2. I know that he also has issues with pain meds wearing off quickly, or not working at all. Forget Morphine. It has no effect on him. I think another reason the dentist may have wanted to avoid the novocane is that my son has many drug allergies, including difficulty...

Hi Carol H, you did not mention how old your grandson is. ADHD is tough on the kid and the parents. Kids typically are not timid, they are actually quite the opposite. They are hyper, have severe difficulty with concentration and paying attention and are impulsive. They act like they run by...

Thank you LL and cfgf28. This is definetly not going to be a situation that is repeated. He will never have nitrus oxide again. I did not have to sign any type of release or anything. I think the thought was that with the possibility of my son getting super upset the nitrus was the best...

My son has autism, and believe me if MMS was helping kids with autism, i would have heard about it. as far as your quote "MMS is helping the autistic children get back to normal is not only offensive, but has honestly infuriated me. I understand you feel very strongly about MMS, i do not...

I think you should contact your cf center right away about this. I have not heard of this being an issue for anyone before, but i do know there are different kinds of enzymes. Maybe you need a different brand. my son experienced the complete opposite when he started taking creon enzymes. It...

Thank you everyone. I hope many see this and learn that nitrous oxide isn't a good idea to use if you have cf. Scared me to death. wouldnt want anyone else to experience this.

So sorry for what your sweet grandson is going through. So hard to feel like noone else is like you. I love your idea for ways for the kids to talk and become friends. They are the only ones who know what each of them are going through. the support they can get from each other they cannot get...

Hi! My post is for anyone who has had nitrous oxide during a dental procedure either adults or children with cf. My son had a small cavity that needed taken care of, and the dentist thought "giggle gas" would be best rather than giving him a shot. The dentist is the head of the dental...

Hi Jaimers! My son got good news today. The port study showed that his port is working properly. they had to play with it to get the blood draw, but after moving his arm all around, they got it. They feel t is ok for now, but if it keeps being unreliable for blood draws, they will need to...

Thank you. Going to look into this.

Hi scanfloraine, probably not much help because my son has only ever had the fecal elastase test. Do not really know much about the pancreatic stimulation test. I was wondering though if your child has been tested for celiac disease? My son also has it along with cf, and he had constant...

Thank you. He has a lot going on besides cf, and i am thinking this will be a minor issue also. I will let you know how it goes. Take care.

Thank you Jaimers. I am thinking the clot busting meds will do the trick. I am wondering though, and didn't think to ask the surgeon, if there is any concern that he has a bleeding disorder, and has experienced a very severe bleed requiring transfusions, amd a bunch of smaller ones. I will...

Just spoke to the on call surgeron. I am going to take him next week for them to administer the clot busting med to see if that works. If not, he will be scheduled for a new port. Hoping they can do it on wednesday since he will be at the hospitalnfor other reasons. Thank you again for...

Thank you nmw0615. I am so hoping next time it works fine. Being able for them to get blood drawn from the port is a must for him. He has special needs, and holding him down to have blood drawn or an iv placed is just terrifying to him. So with yours, if i am understanding right, iv's...

Hi everyone. My son had a port placed this past april and did not go well. His lung was punctured twice, he developed a phneomothorax, and ended up needing a chest tube and a week in the hospital. Until January there were no issues. It had worked perfectly. After his infusions in january...