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My son does not gave an insulin pump, but he had to have his tailbone removed and he was not able to use his vest for about 5 weeks. He used the acupella. I will say it wasn't as good for him as the vest, but he also has developmental disabilities. We did see a drop in his pft's, but they...

Thank you both. I feel so much better. Seems like in life, as i am sure you both know, when ut rains it pours, lol. Thats how its been around here lately. Just one thing after another. Nice to know this can be cleared up with just a phone call.

Hi guys! Anyone ever have issues with their Hillrom compressor? Yesterday my sons just stopped working. No warning signs at all. It has 512 hours of usage on it. Not sure what is typical for these machines before they start havibg problems. I plan on callng the company in the morning...

Mrkdale, wow, thank you so much. I did not know that product even existed, and i am doubting our dietician does either. I would think it would work well for him since his formula, (the only one he can have), is neocate jr. I am going to call them Monday morning, amd request a sample. thank you...

Maybe try putting in a call to her cf clinic and ask. When we have forgotten on a few occassion, we just rode it out. Maybe it is still early enough for it to pass and get her to school in the afternoon. Hope she feels better in time.

Thanks Kristan. I have thought about the possibility of another sesitivity, but we are seriously running out of foods for him. I am hoping the duocal will be helpful to him. I have not really ever given much thought to a holistic doctor, but it is something for us to think about. i am going to...

Hey, thanks so much. I am going to order that book tomorrow. So glad it has helped with your son. Any thoughts are welcome and appreciated.

Thanks Melissa75. Going to give plaintains a try. He is one picky kid. Sooner or later he will hopefully add a few foods that are higher calories. In the neantine, we will add the duocal and see if thst helps. take care, and thanks again.

Hi Melissa75. Thank you for responding. The 7 foods he will willingly eat are scrambled eggs(without milk), pasta (plain), corn chex cereal (dry only), torilla chips, french fries, popcorn, and green beans. The only other thing, i dont count as food is bananna popsicles. No other flavor...

Hi cam. So happy the blood has stopped. That must be so frightening. I hope they soon find the reason for the change in health. I agree with believingjesus. You are in good hands in pittsburgh. My son goes to the cf clinic there at Children's Hospital. He will be tranfering to the adult...

So Sorry you have been through so much. Its hard when you are sick and can't find out what is causing it. Sounds like they are finally on the right track. the fact that you are 26 and have had really no lung involvement is a great thing for you. It is actually amazing. they may decide on...

Thank you so much. I understand what you mean. My daughter is in her 3rd year of college, and husband works a lot also. I think we have we have a lot in commn. Its nice having somene who gets it. I feel the same. Messange me anytime. We both are gonna have good days and bad. As long as...

Hey believingjesus, nice to hear from you. Jacob only takes small drinks of water throughout the day. Not a fan of drinking, another reason for the g tube. Still haven't heard back from anyone about a possible new formula. As long as he has an unlimited supply of bananna popsickes, he's...

My son has struggled so hard with weight. He is 5'5, and weighs 76 pounds. He is pancreatic insufficent, enzymes are not the issue. He is allergic to gluten, milk, dairy, soy, and rice. Plus he has autism and because of textures and tastes he will only willingly eat 7 foods. He does have a...

I love it. Thank you for sharing. Your wife is amazing!

Hi Cutecurlz. Though I am not sure what is causing this problem for you, i honestly don't think you should wait until next Friday to be seen. If you have lost 10 pounds this quickly, to me it sounds like you should be seen sooner. That seems like a lot of weight to loose in such a short time...

My son had s picc before his port. He needed it or a couple months, but i think they can last for about 3 before needing removed or replaced. Not sure about placing since my son was sedated becsuse he would have flipped out, but when they took his out, it was no big deal, no pain either...

Thank you welshwih and believingjesus. Saying a prayer for everyones continued good health.

Believingjesus, i just wanted to also explain that my son will be getting ssi, not disability. They are two seperate programs. SSI is a needs based program for people who do not have enough work credits to apply for disability, and have little to no resources. They are not allowed to have...

Thank you for the kind words. I wish your son and entire family the best of health. Tske care.