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Sometimes it's just good to vent, and I can relate to the temper thing, lol. We all feel frustrated from time to time with what either we or our children are going through. Some days it just gets the better of us. We vent, we move on. Hope you are feeling better with this. Take care.

Not sure how to answer your post, but am sorry if you have ever felt like you have not received support, or anyone else for that matter has not felt supported. I think most of us try to be supportive of each other, but i think it could be something we could all improve on in our daily lives...

I hope he feel better, and has a healthy as possible winter. Results should not have been complete the same day. That does not seem right at all. I would definetly question that.

I'm pretty sure h flu and staph aureus are pretty normal growths in both cf and non cf patients. My son has cultured these a few times and was told they do not treat either unless there are symptoms. Sounds like the augmentin being used should cover this. Unfortunately it is the time of year...

My son is similar to you. He has cf, and a host of other conditions including celiac disease, and allergies to milk, dairy, soy, and rice. I understand how limiting it is. He also has autism, and will only willingly eat certain foods. He is currently age 18, height 5'5, and weight is 75 lbs...

If you can't get into your cf doc, call his pcp. You do not want to wait on this, especially with the holidays coming. I hope he is ok. my son has the M470V also. Though not considered to be disease causing, that may change at some point. My son is diagnosed with cf based on 1 positive and 5...

I am sorry I have no thoughts on this, but feel bad you have not received a response. It's a busy time of year, and I am thinking maybe the the members who are so much more knowledgable, have been busy with the upcoming holiday celebrations. hang in there. As difficult as it is without a clear...

My son had his placed in April. The director of the transplant team placed it. We love it how, but while it was being placed the doctor punctured his lung twice, causing it to collapse. Ended up with a one week hospital stay and a chest tube. N the bright side, the port has worked perfectly.

My son has this mutation. He has had 1 positive and 5 high borderline sweat tests ranging from 55-59. The positive one was 64. He is pancreatic insufficient, takes enzymes, and does 12 hours of feelings through his g tube every day. He is 5ft 5 in. and weighs just 75 pounds. He recently...

Please except my condolences for loss of your sweet friend Barbara. I will say a prayer for you and her family.

A mutation can be changed to be classified as disease causing in the future. The best thing you can do to keep your peace of mind is to periodically check the cystic fibrosis mutation database online. I would doubt the doctor would notify you of the change, so your best bet is to check the...

Thamks Gammaw for the advice. Cannot really see anything from looking up his nose. Whatever it is,it does feel bigger than a few days ago. Going to see his doc. On Tuesday, and he is very through so I have no doubt he will get to the bottom of it.

Thank you both for replying. I am hoping they go the x Ray route. He has autism, and there is no way they are gonna put a tube down to his sinuses without a huge meltdown. Could you ever feel the polyps from feeling where your Sinus is under your skn, or are they unable to be felt through...

Must son, (recently turned 18), has something a little odd going. One week ago it looked like his forhead above his left eyebrow was swollen. I felt around, and found a hard, solid, small, about the size of a grain of rice, just below, the inside part of his eyebrow. It feels as hard as a...

My son just turned 18. He has passed 3 in the last year. The nephrologist said people with cf are at a higher risk of them when there are dehydration issues. They did a 24 hr urine on him twice. Dehydration was an issue, and not enough citrate in his urine. Will need to take potassium...

I think if you still have so many concerns and unanswered questions, you need to see another doctor. If that means traveling outside of your area, that's what you should do. Call and make an appointment, and start gathering your medical records, you need a second opinion. You are going to get...

Thanks Bill, i took your advice, i did call. Going in the morning fior an x ray or earlier if any symptoms develop. Spoke with the doc. on call they are expecting us first thing. Thank you madmax33. Appreciate the feedback. He still has no other symotoms except the pain. I will be keeping...

Hi everyone. My son had a collapsed lung back in April that required a chest tube. He had no symptoms, only a drop on oxygen while sleeping. It happened while he was having his port placed. He recovered 100%. last night he began to complain of right shoulder blade pain. He had not done...

I am no where as experienced as most people on here, but i would say that a FEV1that is 99% is an amazing number forsomeone over the age of 50. My son is 17, and his number is lower. I am sure others will reply and maybe be more helpful.

They will definetly have them same day.