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Gilead Sciences(GILD Quote - Cramer on GILD - Stock Picks) said late Tuesday that U.S. regulators refused to approve the company's experimental cystic fibrosis drug.The Food and Drug Administration issued Gilead a complete response letter for aztreonam lysine, an inhaled antibiotic used to treat...

Today was my first day back to work since i got sick and was in the hospital in July. I have been doing housekeeping for 19 years for this same family and watched the kids grow up, go to college, get married etc. While i was in the hospital my Boss who is a Dr. (and so is her husband) decided...

I was telling my Dr. yesterday about the poem " the boxing match" written by a cf'er, after my Dr. started to tell me that using meds as prescribed is like being in the boxing ring and giving the opponent ( infection) the one two punch. I thought he had read that poem but he never knw of it and...

I just found out Rami, is not currently receivimg the help that was stated in the article about him receiving help because the post was 2 years old. BUT if you have any extra medicine you can donate you can still donate it to him thru the same organization . I realized this when i saw...

<b>I saw this on another board and thought i'd post it here since we need all the help we can get........... So far the cf foundation is ahead <img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0"></b> This takes 5...

Out of total curiousity i am wondering who on the site has cepacia, what strain ( genomovar) and how long have you had it and what are your current pft's? ~ Ive had cepacia 11 years now+ ~ Genomovar III ~ my current fev1 was 39% but i am still on iv's and fully expect that number to rise (my...

<b>OK tomorrow is my 2 week visit to my Dr. after being in the hospital. When i left the hospital my fev1 was at 33%. Low for me but i kind of expected that since i was still on oxygen . Last week i was mostly off of oxygen and they went up to 35%. I was disappointed they werent higher, but...

I started using oral GSH a little over 5 years ago. I had pretty good results with it....weight gain, energy boost, pft's went up a bit, got sick less often and when i did get sick it wasnt as severe . I was taking 4000 mg. per day(1000mg. 4 times a day spaced about 4 hours apart) I was on it...

I started iv's 2 weeks ago on Thursday because i dont want to inhale Colistin. I find it way easier to do it iv, so my Dr. decided to add Meripenim in the mix and things wer5e going nicely. Yesterday i start with the ol' scratchy raw sore throat and stuffy nose. ugggggggggg I know colds are...

Last night my BF and i were talking, and i mentioned that i have a lot of guilt in me when it comes to my disease and my family. He cannot understand why i feel any guilt for what my cf does to me and how my family worries. I dont know about anyone else, but i HATE thinking that my parents and...

<b>My mother couldnt wait to call me to tell me she saw on the news that Legendary Philles Baseball player Mike Schmidt has started his own business making and selling wine.<img src="i/expressions/wine.gif" border="0"> When asked how much he expects to make, he said "nothing" I am donating...

AS some of you may remember i was very sick with pneumonia and pleurisy and in the hospital 2 weeks. When i got there ( under protest, i truely didnt want to go ) i could barely stand straight because it was hard to breathe. My O2 sats were low and the idea of doing a pft was out of the...

Well here we go for round two. Once again i have the same dizziness i had for almost 2 and a half months last year. But i am thinking i found the culprit. Last time i had this dizziness was about a week after i had been off of iv Tobramycin. Sure enough i had been on Tobramycin for a month this...

My Dr. prescribed Colistin ( Colistimethate sodium) for me to do iv instead of inhaling it since inhaling it makes me so short of breath. I am wondering if anyone else has used it and how well it worked for you?

I cant believe i forgot to mention this. While i was in the Hospital, i requested a new nebulizer every treatment. At first the RT's said it wont go over well because everyone uses the same one for 24 hours no matter how many treatments in that 24 hour period. Then they explained how they tap...

I am so sad . I got off of iv's 2 weeks ago and really didnt feel great but i was so sick of doing them after almost 4 weeks. The nurse tried to insert a midline and it just would not thread, she tried 3 different sites ( in the same arm) and still no luck so i did them peripherally, which was...

You may remember i was on here talking about hemoptysis and thinking it was caused by an iv antibiotic. Then after thinking about it...... it made sense that it may actually be caused by the Pulmozyme. So i stopped using it for a week and sure enough no blood at all. BUT i started feeling crappy...

I have a few questions for those who have stopped using Pulmozyme because of hemoptysis. Other than hypertonic saline did you try anything else? Like maybe Mucinex? If you did replace it with Mucinex , did it help? Does anyone have any published reports about Pulmozyme causing hemoptysis...

Well i wrote about my hemoptysis while on iv's and today my Dr. changed my one iv med . I had coughed up blood Thursday, Friday, Sunday and once again tonight. The last thing i want to do is have another embolization, but obviously i will if i have to. Please say a prayer for me that this...

When i asked my Dr. to put me on iv's i requested something different that the same ol' Merrem and Tobramycin. She gave me Zosyn and Merrem. I started to feel much better pretty quickly after starting the iv's but i started having streaks after a few days of starting the meds. I figured it may...