Cystic Fibrosis Forum (EXP)

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  1. D

    Im happy and i want everyone to know about it

    Last Sat. I competed in a car show in Merchantville N.J. They had over 850 cars, and it takes quite a bit of time to get my car ready , with an engine so clean you can eat off of it. There are two classes in this show ~ stock ( which means the car is in its original form) ~ modified ( it can be...
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    I know im not the only one who doesnt do this

    For the first time in months i went into the Birthday section and noticed most posts have no replies. The only ones with replies were the ones that were in here ~ the Adults section ~ first. I almost never go in that section and from the looks of it , i dont think i am the only one who doesnt...
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    Feeling like a guinea pig

    I was talking to my nurse about 2 weeks ago and found out that my Doctor never had a cf patient ( or any ) that had an aspergilloma (fungus ball). I remember her telling me she consulted with my last cf Doctor (who left to go to a different hospital) and sure enough he hasnt dealt with it before...
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    Probiotics question

    Who uses what brand of Probiotics? I havent used any in ages and i am always on oral antibiotics, and am now on iv's and i was thinking .... what am i waiting for? Can someone suggest a brand ? And where to get it ? Must it be refrigerated ? and any other tidbits you can think of............
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    This is the only way to do it

    I just wanted to see what all the new emoticons looked like............... <img src="i/expressions/bathroom.gif" border="0"> <img src="i/expressions/coughing.gif" border="0"> <img src="i/expressions/dog.gif" border="0"> <img src="i/expressions/iv.gif" border="0"> <img...
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    Anyone use a food dehydrator to make your own snacks?

    I am thinking of buying a food dehydrator to make my own fruit snacks and things. I have changed a few things in my diet recently and i am no longer eating cookies, cakes, chocolate covered granola bars, etc. But last night i was thinking i really miss my fruit snacks, and thought i could...
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    Tomorrows the day for cat scan 3

    Well, tomorrow is the day for my third cat scan to see how well we are progressing with getting the fungus ball ( aspergilloma) to shrink. I have a feeling i may be coming home with iv's though <img src="">. I am feeling congested , coughing more, and feeling like its time. But i wont be unhappy...
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    I just noticed something yesterday

    IM NOT DIZZY ANYMORE YAAAAAYYYYYYY!!!!!!!!!!!!!!!!!! <img src="i/expressions/face-icon-small-happy.gif" border="0"> <img src="i/expressions/face-icon-small-happy.gif" border="0"> <img src="i/expressions/face-icon-small-happy.gif" border="0"> <img src="i/expressions/face-icon-small-happy.gif"...
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    Question for whoever is in charge

    I am very curious about something and after reading the post about last nights chat, i feel compelled to ask this question.... When someone comes on the board and is constantly <b>rude</b>, ignorant, hurtful to others, and very<b> consistantly</b> starts trouble, when do you decide its time to...
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    Another (different ) cf site

    I dont know if this was ever posted before, but here is a link to another different cf site. Its kind of cool ! <a target=_blank class=ftalternatingbarlinklarge href="http://bewg.brightforums.com/index.php?mforum=bewg">http://bewg.brightforums.com/index.php?mforum=bewg</a>
  11. D

    I am going for my cat scan tomorrow

    I am going for my cat scan tomorrow to see what is going on with the fungus ball in my left lung. Please keep me in your thoughts and prayers that it has shrunk , or at least not grown. I am worried..............
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    went to see the ENT

    I went to my Appt. on Wed. to see the ENT and he said nothing appears to be wrong. Tomorrow it will be 6 weeks and yes its still here, but granted it IS getting less severe, OR i am just getting used to it one or the other ( hard to tell) The ENT said there are some people that just...
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    Does this happen to you also?

    A friend of mine from my car club passed away on Thursday morning from Leukemia. I have been friends with he and his wife ( and kids) for about 5-6 years and his funeral is tomorrow morning. I cant explain what i am feeling since i heard about his death, except for saying i feel more fearful...
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    Sidestream

    I found out from my nurse today that the sidestream isnt discontinued. Respironex is making them now . <img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0"> YAY!!
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    Went to see my cf doctor today and im not happy

    I had my cat scans done today. One of my lungs to see if the fungus ball shrunk and then a cat scan of my head for the dizziness. Then i went and saw my cf Doctor afterwards. She saw both of my cat scans and told me she doesnt know much about cat scans of the head but she didnt see anything that...
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    16 days

    It has been 16 days since i started having dizziness and vertigo. Unfortunately it has gotten worse and way more annoying and worrisome. I have an appt. with a neurologist tomorrow and i am scared out of my wits that he will tell me something terrible is wrong. I started taking antivert...
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    Dizziness ~ Vertigo

    I have been having dizziness for exactly 11 days now. I talked to my Doctor Mon. about it and talked to one of her collegues today. They seem to think it is from an inner ear imbalance. I agree it probably is, but i am wondering if anyone else has experienced this and if you found something to...
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    Know your medications

    I went on Sunday to pick up my prescriptions, one of them being Biaxin ( an antibiotic) . That night when it came time to take one i noticed the pills were different. Now this has happened many times and i always call the Pharmacist and he tells me it is from a different manufacturer , hence...
  19. D

    What do you do ?

    I have always wondered about this .... Where do you spit out mucus ? Do you spit it into the toilet, the sink, a cup, a tissue? I always wondered where everyone else did this. I use those tiny little 3 oz. plastic dixie cups ( not the bathroom paper ones). Once its full, i throw it out and get...
  20. D

    Is there a logical reason for this?

    For the past few weeks maybe about a month or more i can only post during the day time. At night , when i try to post a response to a thread, a box pops up and says i am unauthorized to login ( even though i AM logged in). What's up with that? Any one know whats going on?
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