Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. D

    I am sure this question has been asked before

    Has anyone tried Mucinex in addition to what they are already using? I was watching a commercial for it the other day and wondered if it might be beneficial to add to our other mucus clearing medications like Pulmozyme or overkill ?
  2. D

    ADEKS

    My doctor usually always gave me sample bottles of ADEKS when she had them, but since she doesnt always have them i would like to buy them. My insurance already said they wont pay for them, they will only pay for generic Centrum. Thats all fine well and good, but i realy like the ADEKS and...
  3. D

    Aspergillus ~ fungus ball~ questions about both

    I had my cf check up yesterday , and my Dr. told me my sputum sample does show aspergillus. The she told me the fungus ball might not automatically be the aspergillus, it could be something else, they just dont know without doing a biopsy. I have never had either of these problems...
  4. D

    fungal infection

    Im very curious since i dont know anything about it, are there any specific symptoms of a fungal infection? Since my doctor mentioned it looks like i have a fungus ball in my lung ( and started treatment while we wait for the sputum sample results), i am now wondering if there are any symptoms i...
  5. D

    Please Pray for Daine

    My, name is Bob, i am a friend of Diane's. I just wanted to ask you to keep her in your prayrs this week. Saturday morning Diane was admited in to the hospital for hemoptysis. i will try to keep every one up to date. thank you very much
  6. D

    Hairgirl

    I have wondered this for a few years now, and yesterday after writing about it in an email ,i remembered you are a hairdresser and maybe you know the answer. All my life i had poker straight hair. even when i got a perm it went right back to straight within a month. When i was about 36 i noticed...
  7. D

    To thouse who didnt used to do treatments, but do them now

    After responding to Sonia's thread about doing treatments on time , i started to wonder if anyone else who didnt do treatments in their earlier years , and then started to............ find they HAVE to do them now whereas they didnt before. I never did any type of treatments for my lungs till i...
  8. D

    ~~Update on Jesse~~

    I got this email from Patricia today.................................... My precious Jesse David passed away last night very peacefully in my arms just minutes before 11:00pm. A memorial service will be held for Jesse David in a few weeks which I will share the details of at a later time...
  9. D

    Anyone hear from Luke?

    I just realized i havent seen Luke on here in a long time, anyone hear from him? Luke where are you?
  10. D

    My friend's son with cf ****UPDATE****

    I received this email tonight from my friends son who has cf. Please keep him in your prayers................................ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Jesse is in CHOC P-ICU again with acute kidney failure. He is incoherent due to the high blood urea levels...
  11. D

    GSH (Glutathione) Links for more info

    Here are some links for more info on GSH ( Glutathione). Everyone seems to be asking about it lately so here are some links for you to read and get better aquainted with what it is and does for us. <a target=_blank class=ftalternatingbarlinklarge...
  12. D

    Generic Zoloft?

    Wow was i surprised when i went to pick up my prescription for Zoloft today only to find they gave me the generic brand....Sertraline. I dont know why i dislike some things being generic and this is one of them. I know generics have the same active ingredient as the brand name, but i always...
  13. D

    Hypertonic Saline and hemoptysis

    My doctor suggested i post this question since she keeps asking me if i had tried Hypertonic saline and i keep telling her i am reluctant to, since i have hemoptysis problems. I remember someone saying a while back they thought the hypertonic saline was causing hemoptysis, and i dont need any...
  14. D

    *Update* Prayer request

    I need some prayers badly for my 7 year old iguana. I lost my 14 year old female Georgia, almost 3 months ago. Then 2 and a 1/2 weeks ago my Girl Jezzie ( 13 years old) passed away. Jezzie was my very first lizard, she was a Christmas gift from my ex-husband and it was very hard on me losing...
  15. D

    Maybe im just being ridiculous

    I have been doing car shows for 6 years now and at first i never told anyone i had cf. I generally don't tell anyone unless i know i am going to be close to them or actually have a reason to tel them. I decided since i am in competition i didnt want anyone to know, so if i win , i win because...
  16. D

    Noises / Iv's / coughing

    I didnt know how to title this thread so i write all of my complaints in the topic . Let me start by saying i was on iv's about a month and a half ago because i was running fevers and coughed up some blood. After two weeks of home iv's i felt much better and the bleeding ceased (YAY!!). But...
  17. D

    Odd way to put things into perspective

    I wrote an email today to a friend and realized it would might be something of interest on here so i copied and pasted......... ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ My landlord who lives right across the driveway from me, has a son who just turned 31 and has been married...
  18. D

    "Cepaciagal"

    I havent seen anything from Cepaciagal lately ( unless i missed it ) does anyone know what's up or how she is doing ? I am hoping everything's ok .
  19. D

    what a quick change

    I went to my new cf doctor on tuesday and i left pretty happy. My fev1 was still 48% as it was 3 months ago, my weight is still 122, i was feeling great <img src="i/expressions/face-icon-small-smile.gif" border="0"> . Then the next day ( wed.) i had 2 hemoptysis's, one was about 2 table...
  20. D

    might be disgusting , but has anyone done this?

    After reading the thread about swallowing sputum, i remembered a few times i had to swallow something i thought was just as disgusting. I'm sure a lot of us throw up after a coughing fit, well the other day i took my all of my medicines and shortly afterward i coughed a bit , and up came half my...
Top