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I'm joining the iv club later today <img src="i/expressions/iv.gif" border="0"> Its so odd.... I felt like crap last week, sore throat, was short of breath and tired , low grade fevers etc. Then on Sun. i felt pretty energetic and not as out of breath, i felt pretty darned good and got a...

I am just full of questions these days. I was on iv's Last Oct to early November. Which is only 3 months ago. I am starting to feel crappy, sore throat, low grade fevers ( with cepacia this happens sometimes even when i am well), getting short of breath easier, and i am giving myself till...

I am curious as to how others view themselves as being in the definition of mild, moderate or severe. What is your fev1 and where do you classify yourself. My fev1 last time was 42% and rising I view myself as mildly moderate. The reason i view myself as this is because i am pretty active, i...

I am curious to see who has what along with their cf ....whether it be cf related to cf or not. I'll start .... I have <b>cf - diagnosed at 3 years old diabetes - diagnosed at 15 years old mitral valve prolapse ( heart murmer) - diagnosed in my teens hemoptysis problems ( 3 embolizations)...

Lately i have been having some odd things going on with my hips and knees. While i am driving to work everythings fine, when i get out of the car my hips start to hurt and i almost walk with a limp till it starts to feel better. I normally walk pretty fast but when i get out of the car and start...

I have been getting this most annoying pain in my throat for the past year or more. If i talk too much or too loud , or when i sing, i get this muscle pain in my throat. Its not a sore throat kind of pain or an allergic reaction, it just feels like my throat tenses up. Sometimes i get it...

For those who have had a transplant, did your finger clubbing go away afterwards? or even reduce? The reason i ask is because i am still confused as to what<b> exactly</b> causes clubbing. I always hear it is oxygen not reaching the extremeties correctly, but have a hard time with that since i...

Today is my 43rd Birthday and yesterday i had to go for my clinic appt. You may remember about a month ago i wrote about my pft's and weight being down. <i>In early Dec. they were</i> fev1 - 38% fvc - 62% weight 111 <i> In late Dec.</i> fev1 - 40% fcv - 65% weight 112 <i>Yesterday...

Recently i was shopping in my local store and saw that "Vitamin Water" was on sale. I read the label and decided ok its not too much carbs so i'll try it. Its 13 grams of carbs per serving with 2.5 servings per bottle. WOW did i take an instant liking to this stuff !! I didnt try it for the...

Have you ever heard a song you instantly decided was dedicated to your cf? or your life with cf? I have a few that i can remember off the top of my head they are....... <b>Fighter</b>....Christina Aguliera <b>I'm still standing</b>.... Elton John <b> It's the world i know</b>.... Collective...

Well i am on my way up <img src="i/expressions/face-icon-small-smile.gif" border="0"> . If you will remember 2 weeks ago i went for my clinic visit and was greatly disappointed. My fev1 was 38%, fvc 62% which is greatly unacceptable to me and my weight was 111 ( down from 122 before the...

Well, after being depressed all night and most of today i have decided that the time for sadness and greiving over my bad #'s is <b>OVER</b>. I have picked myself up, dusted off and i am going to kick some cf a$$. I started out today by having breakfast ( 2 waffles drenched in butter and a glass...

Tomorrow is the day i am going for my 4th cat scan for the aspergilloma ( fungus ball) in my left lung. I am not expecing to hear anyting outrageous since the last time i was there my Dr. said they dont think it will ever shrink. She feels we can only keep it from growing. UGGGGGG......... I...

I have been worried about my cat for some time now because he has this tumor on his shoulder that i knew eventually would have to come off. It has grown to 4 times its size in the last few months, and he is almost 18 years old . His surgery is scheduled for this thursday the 6th. My Mother told...

I have been single for about 9-1/2 years now. I didnt want a serious boyfriend because of my cf, nor did i ever plan to marry again. When i was married i was very healthy with very high pfts so there was nothing i couldnt do. Now things are different, i am 42 with pfts in the mid 40's and...

I am curious if anyone on here is on antibiotics <b>all</b> of the time prophilactically? Im not talking about zithromax every day or every mon.-wed.- friday, i mean the more hardcore stuff like Minocycline, Cipro, Cefaclor, Doxycycline, Bactrim, Augmentin etc. I have been on them since...

Here are some pics from the Cf Benefit Car show yesterday. There were a <b>lot</b> of cars there, and i had a great time. I didnt win at the show but i won the race on the way home. <img src="i/expressions/devil.gif" border="0"> This one guy kept challenging me and i finally pulled up to him at...

<b>6th Annual cystic fibrosis benefit car show. Sunday August 5th at Peddlers Village , Lahaska Pa. Registration 10 am - noon. All proceeds from the show will be used to benefit Cystic Fibrosis Research and will also be used to sponsor a local individual with CF that is in need of financial...

I had been on oral GSH for about 4+ years and since getting the fungus ball i had cut down my dose. I always wondered if it was really helping me in any way since it is so hard to tell after you are on it for a long time. Well a bit over a month ago i stopped taking it to see if it would help or...

Wed. is the day for my 4th cat scan to see if the aspergilloma ( fungus ball) has shrunk. In some ways i look forward to finding out and in some ways i just dont want to know. Its the sitting and waiting for my doctor to come in after the scan and tell me whats going on that is most difficult...