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Okay I know I am not a mom, (except to my little puppy) But I love reading about the kids on here and how they are doing, what they are up to, and I am dying to hear about their first days of school. PLus I want pictures.. I was reading about the school lunch ideas but I thought it would be fun...

I didn't want to leave this post up for to long,so I erased it.. Julie I will be calling you, I also spoke to Beth S who was very helpful..

I am starting VFend on Monday and I was wondering if anyone had and personal experienc with it and its side effects..... The biggest one I am worried about is the visual disturbances and not throwing it up.. I by very nature of being me, am a puker when it comes to medications.. I even sometimes...

Can anyone tell me if you are being treated for this, what your symptoms are, did you go on prednisone, the antifunal or what drug did you take for it... Thanks

Hey, I just wanted you to know I was thinking of you, praying for you and your family and sending all my love I can.. I hope you are still peaking around on here.. If you need to be quiet for now that is fine, if you need to journal we are here, ready to listen.. We love you, we love that you...

I am just wondering for those who do HTS do you do Pulmozyme also? I have always done Pulmozyme twice a day but now that I am on HTS, going to start 7 percent tonight, I am doing Pulmozyme just once a day? ALso about TObi I was told I can do it once a day, every day with no break in between as...

I am looking for a counter top sterilizer that I can use to clean my neb cups with..I can not tolerate boiling or washing them anymore.. I am doing four nebs three times a day sometimes and it is to much What do you guys use? I don't need to run the dishwasher everyday so I don't know what to do..

I am in a big pinch, I lost my insurance in NJ and my new insurance prescription max that they will pay a year is 6 thousand dollars which I am already over that and it is March.. I need help getting Pulmozyme and Tobi.. I have no idea how to go about getting assistance, I am going to talk to...

I know pulmozyme can go in the Pari Ultra 2 in either the sidestream or the Pari cup but I just got the Pari sprint cups and I don't know what I can use them with.. We used to have a diagram that showed what nebulizer and med could go together and I for the life of me can't find it.... Any...

I know pulmozyme can go in the Pari Ultra 2 in either the sidestream or the Pari cup but I just got the Pari sprint cups and I don't know what I can use them with.. We used to have a diagram that showed what nebulizer and med could go together and I for the life of me can't find it.... Any...

I just sent you a long PM ... a overshare kind of PM but I don't know if you got it or not and I can't seem to PM you back for some reason,.... did you get it?

I have always used the Hill ROm 104 vest, to be honest I don't really like it at all, This time in the hospital they set me up with the older version on the HillRom..which I thought was really amazing and would love to trade it my new vest for the old one.. My RT who is amazing, sent me with...

Had a little scare with a mucus plug last night... then of course comes the broncospasm... they started me on Bi pap today and I really seem to be able to get deep breaths with this... Have you guys ever used this before, did you like it? Thanks for any help Jennifer

Hey Guys I just had a quick question.. I am in the hospital and I was having trouble with some mucus plugs. Yesterday they started me on the IPV machine with hypertonic saline.. It seems like it helped though I call the machine satan on stick because it feels like the same way it felt when I was...

Hey Guys I just had a quick question.. I am in the hospital and I was having trouble with some mucus plugs. Yesterday they started me on the IPV machine with hypertonic saline.. It seems like it helped though I call the machine satan on stick because it feels like the same way it felt when I was...

I am beginning to wonder if my lack of voice, severe voice strain etc is from acid reflux.. I was recently on a very high dose of Pred for quite a while, I got sick flying home from NJ and I have not been better since then.. I have gone from bad cough, sinus infection, no voice, and I go round...

I am back on IVS, Tobra, Ceftaz and Vanco, I am on 2 grams of Vanco, that is infusing every 12 hours, it is set to infuse over 4 hours.. but I am still getting red cheeks, itchy skin and scalp and I am not able to take Benadryl before work because it makes me to tired..anyone have any other...

When I was first dx with CF, remember I was an adult.. I had the hardest time not taking what ppl said literally... I remember being in chat with my friend Christy.. and I had talked to her a few times and the next thing you know she told me she was going to the slammer..... Do you know for a...

I just wanted everyone to know how amazing Mel is... I have been able to meet her in person a few times, and she is my friend but I wanted to say that I have been in a real funk lately for various reasons and she just doesn't quit on me.. She has a bunch of her own things going on and she...

I want to see pictures of the cutie pies enjoying their Easter... I only saw one parent post pictures.....