Cystic Fibrosis Forum (EXP)

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  1. J

    AMAZING NEWS

    I am so, so, so, so, sooooooooooooo, excited... Today it is offical that I am recieving a FULL SCholarship to the Univerisity of Phoenix.... I am already an RN, but I am getting the chance to get my BSN with a track to my Masters for FREE.... wahooooooooooooo... This is so unbelievable to me, I...
  2. J

    Anyone Get back from Mels Party

    Gosh I keep checking to see if anyone posted about Mels party.. I am so anxious to see pictures and here how it went!!!!
  3. J

    TV and Children

    I totally know this is off topic and I don't care..... I have seen so much death in children and very serious injuries lately and I just want to warn parents, and if this post saves one precious childs head.. then it will be worth the ppl fussing at me for posting off topic.. Please, please...
  4. J

    Cant get back into chat

    Sorry Lindsey I cant get back into chat for some reason... and bye to everyone else .. I hate computers
  5. J

    ANyone Have Update On Reece

    I don't have Leahs number to call her but I was wondering if anyone had an update on him.... I am so anxious to hear how things are... THanks
  6. J

    Deaccessing a Port

    Hey guys how much Heparin do you use before you deaccess the port. I am going to taking my needle out in the next few days and I am not sure what the procedure is.. How much saline first and then how much Heparin? Thanks so much
  7. J

    RSV HELP

    Hey guys, I am at my wits end and I need help, as you know I was in the middle of being treated for a CF exacerbation but I was still working a little over two weeks ago, I took care of a baby, actually several that had RSV, the children were admitted for Resp distress etc. Because RSV is a...
  8. J

    PORT Help Please

    My port seems to have a kink in it of some sort.. I have been coughing so hard the past few days that they think maybe a coughed a kink in my port.. They changed the needle to a bigger size needle, changed the dressing.. They still cant get any blood out at all and it is barely flusing. My meds...
  9. J

    CF Help

    Hey Guys, As many of you know who read my blog I have been having really hard times with my health... and I just started a new job..... I am really trying to find ways to more secure my job, because working right now seems almost impossible... (doing 14 hours a day IVs and also I just had the...
  10. J

    Need Input From Caregivers

    I am really on a mission and I need help from caregivers.... I have been really feeling like I need to find ways to help be a better "patient" to the ppl who love me and help take care of me As a caregiver, can you tell me things you hate, things you appreciate, things that make you weary and...
  11. J

    HELP.. PICC question

    I have a double PICC line in.. one of my lines hardly flushes at all and gives NO blood return, the other one give a good blood return but flushes sluggishly.. I know if it clots I can go to the hospital and get TPA administered..I am not sure what I can do at home.. I gave extra heparin in my...
  12. J

    Oxygen Help

    I have a question.. My oxygen is humidified which is wonderful, I don't feel dried out at all but... the question I have is about every five minutes or so.. I get a squirt of water that shoots into my nose.. it is leaking into my tubing... Is this normal? or what should I do to prevent this from...
  13. J

    WHere Can I get Hypertonic Saline

    Hi, Anyone know where I can get 7 percent hypertonic saline? I can't find a place in SC that will compound it for me...? Thanks
  14. J

    Columbia SC Clinic

    Anyone have any experience with Columbia SC CF clinic.. ( adults) ? I am going there next week and I have a laundry list of things to go over with them... I am really hoping that they are a great team. I do have an appointment with my team in NJ because I am going there next week for a vist...
  15. J

    To My Friends on Thanksgiving

    Dear Friends, (that is all of you on here) Today I wanted you all to know that I hold you in my heart. Today is a good day for me and I am filled with peace, and joy that overwhelms me and I will blog more about that later but back to you. THough my heart is filled with joy, a part of my heart...
  16. J

    Kaylee Maze

    Hi Guys, Below is a link about Kaylee, I know other ppl have posted on here before about her.. SHe is just a little girl, she had a lung transplant but went into rejection about a year ago, She is now real sick and in a coma at home... I don't know them but I have read her blog every day for...
  17. J

    Painful Detour

    I am just giving an update, I am still in the hospital, I spent the last two days in more pain then I ever felt in my life.. ( and I have felt a lot of pain before) I ended up with another illieus and I was partiallly obstructed.... I was in agony. I literally cried for two straight days.. My...
  18. J

    Miss you Guys

    I can't get into chat and it is driving me bonkers today.. I really miss you guys... My hospital doesn't allow chats to be on the internet..I am having an antsy day... I am so bored and so ready to get out of here..... I have seen my RT ONE time today only, other then a few minutes ago when I...
  19. J

    In the Hospital

    ... I was admitted today into the hospital. I am not at the hospital where I work, I am at my CF hospital.. YIPPIE.. They are so nice to me and very quick about getting things done. . I will get IV steroids.. Wahoo bring on the craziness... and IV antibiotics.. and some CPT.. I was admitted...
  20. J

    Coughing to the point of Vomit

    Anyone have some magically cure for not vomiting while coughing.. Last night was such a pain in the neck.. I was coughing so hard I just kept throwing up... Doesn't make for a restful nights sleep. I can't tell if it is post nasal cough/sinus or what but it stinks... even if I surpress my cough...
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