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Thought the title would catch somebody's attention! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'm very frustrated with finding an effective enzyme formulation for my daughter. She's done "well" with Pancrease (waiting for it to become available...where are you Pancreaze?!)...

How often does your little one vomit? My daughter has begun to vomit at least once daily (during meals) for the past week. She's not "ill" in the sense that there are no other symptoms to coincide with the vomiting other than a strong gag reflex. She just turned two-years-old and seldom eats...

Please share your experiences with Stanford's CF Center (pediatric). Exam protocol/procedures...therapy/medication guidelines...anything you want to share. We are considering a FOURTH doctor change. My oh my. Why do you feel or not feel that Stanford provides top care?

Ellie has had a runny nose for about a week. She coughs once or twice daily (a single cough, not a "fit"). I think her brother had the same "bug" a week ago, but he's already over it. Silly question, but am I correct in assuming that this may be the same "bug" but CF is prolonging her recovery...

Out of curiosity, is nasal discharge thicker for an individual with CF as opposed to one without CF? My daughter has a runny nose as does her brother (no CF)...I'm assuming they caught the same "bug". There is no difference in the consistency of their discharge. Have you noticed a difference...

Anybody see Dr. Chipps with Sutter in Nor Cal? We just found out that his associate, Dr. Myrza Perez, isn't returning after having a baby. We've only seen Dr. Perez since switching to Sutter. The reason for our insurance and prior CF center switch was so that we could see her! Now she's not...

Ellie's nutritionist appointment went well today! She is now 60-65 weight:length %, 70-75% overall weight, and 90-95% in length! We switched doctors/dietician less than a year ago because they weren't very aggressive yet kept stressing how important nutrition is with CF. Curiously, they were...

Have any of you started your children in the public school system then altered your plan by changing to homeschool or private school (or vice versa)? Did you notice any changes in your child's health upon doing so? I was just reading one of the other threads regarding the difficulties of simply...

My daughter is 1.5 yrs old. Her weight gain was incredibly slow and tedious until we started adding protein (e.g., meat) into her diet. There is still visible oil separation in her stools and she is far from having formed BMs. Has anyone else discovered that you or your child does well/better...

Should nebulizer tubing be sterilized after each use - especially considering that medications/moisture don't enter the tubing?(provided your nebulizer is working properly!) If you do sterilize, how long do you consider the tubing to be "clean"? Example, if boiling or cleaning in the...

I understand both treat PA, is there greater benefit in using AZLI over TOBI? Resistant PA may be more susceptible to AZLI than TOBI? Do you think they will be prescribed concurrently in treating PA? Is it too early to state when one would be warranted over the other?

For those of you who have been treated with TOBI as well as IV Tobramycin at some point - have you noticed fewer hospital stays since the advent of the inhaled form?

Curious....

Anyone know the calculation?

My daughter is just over 1.5 yrs old and only coughs when she's having a screaming fit. <img src="i/expressions/face-icon-small-smile.gif" border="0"> My question...has your little one (or yourself) seldom coughed yet still cultured pseudomonas, or anything other than staph? She has cultured...

Perhaps a paranoid mama here...my daughter's fingertips may appear to have early clubbing (my observation only). I know this can be a result of various processes associated with CF. At what age did you observe this trait with yourself or another CF patient? It is usually something you observe in...

Anyone taking Zenpep? Benefits of this particular enzyme formulation?

My daughter's weight to length % went up from 11% to 22% over the last three months. We've adjusted her enzymes from four Pancrease MT4s to 6 Pancrease MT4's per feeding. We've had greater success with Pancrease than Creon. She was stooling 6-7x daily while taking Creon. Now she has 2-4...

Mallory Code passed away this evening, she was in her mid-twenties. You can google her name and find that she was a junior golf champion, among many other talents. She didn't let CF slow her down and lived life to the fullest. She was a family friend to my husband. She had a strong faith in our...

A little background...we started our 16 month old on Pulmozyme four days ago due to "changes" in her XRAYs. Her doctor stressed that we start her on Pulmozyme as she believes the "changes" are due to mucus build-up...she has cultured staph since diagnosis at two months old. Her doctor doesn't...