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I saw this on another thread and didn't want to take over the thread so I started a new one. Why is it that CFers have a pouch (or pooch) belly? No matter how many crunches or exercise I do I still have that layer of fat that will not go away. Is it a CF thing? Do most people on here have it...

Hi all- So in the last couple of weeks I have gained about 10 lbs. I haven't been eating more or differently and I have felt pretty bad actually. Usually if I am sick I would lose weight so I am perplexed. I am not happy about the weight gain. Any ideas of what this could be, or if this is a...

So I just talked to my nurse about the two of these. She said they are not indorsing the eflow yet. They say that they won't until the meds that would go into it are tested. I guess that the eflow tobi is an old version and they don't like the idea of using a smaller amount of the current Tobi...

I know this has been talked about to death but my computer won't let me go to any old blogs or any old messages for some reason. It has before but not now. Who is on GSH or NAC. Which one do you take and why do you take that one? Also where did you get it. Once again I know that I have asked...

Am I the only one on predisone all the time? I am on it every other day and have been my whole life. I read a lot about how people do doses of it when they are sick and when I am sick I get bumped to everyday but I feel I am the only one on it all the time. Thanks!

Ok I know this has been written about to death but I had a question. In Chicago Magazine a woman wrote about a medicine that is being tested that would thin mucus significantly. She said that it is currently under testing but that an aresol has been approved. What is she talking about? Is it...

Ok so I finished my IVs a little over a week ago and now I am sick again. How is that possible? I have a horrible sore throat and it is going down to my lungs. I thought that IVs would get this all out of me. I am also on cipro, how is it possible to just get off IVs, be on an antibioitic and...

Ok, maybe it is just me but I realized today that I can't laugh. I don't think I have been able to laugh for some time now. Whenever I start I turn bright red and start coughing and then can't breathe. My lung function is at 50% and I feel like I should be able to laugh Is anyone else like...

I am going over to a friends house tonight and was wondering if I could drink alcohol with a PICC line in. I am on tobra and ceftaz and I have never been told not to. I know that it can lessen the strength of antibiotics but I am not planning on drinking a lot at all. just one glass of wine. Is...

Ok, so I couldn't flush my PICC again right now and I called the nurse on call and he said that it is probably a clot. He told me that tomorrow he will call my doctor and get medicine to undo the clot. My question is, has anyone ever had this medicine? Is it a flush or what? I don't see how it...

So I tried to flush my PICC with saline and it wouldn't work. I made sure each of the tighteners were undone and yet it still wouldn't work. I finally put my arm up and it flushed but now the medicine isn't going in and no matter how much I move my arm I don't think it is working. Help please

How many of you still work when you have IVs. I am a teacher and planned to go back to work on Monday. I got my PICC on Tuesday so I would be working the majority of my time with the PICC line in. I know that you are supposed to rest with IVs and that is impossible at work given that I am on my...

Hi all, So I was just put on IVs yesterday and had my first dose of Ceftaz (is that right?) and Tobra. They drew blood to check my tobra levels. The nurse said that my glucose level was 182 which is high. I get my blood drawn every year (i got it in June) and they have never said anything about...

So I am getting the dreaded PICC line on Tuesday. How long does it take to get. I read online it takes 4 to 5 hours to get one in and that seems really long to me. Also, any showering tips. I tried washing my hair with one hand and that went terribly. I usually (only had one in my life though)...

So my mom went to the Chicago CF conference and asked about the eflow. She said that a lot of the respiratory therapists and drs said that no one should use it, that they are still testing it. Does anyone know where to find an article that said that the CFF approved it, or something that says...

So my mom went to the Chicago CF conference and asked about the eflow. She said that a lot of the respiratory therapists and drs said that no one should use it, that they are still testing it. Does anyone know where to find an article that said that the CFF approved it, or something that says...

Hi all, My boyfriend and I were talking tonight and he said something that really hurt and i wondered it anyone else ever got this from their spouses or sig. others. I asked him (as a joke as we were watching Dancing with the Stars) if he ever wished I was more active. He immediately said yes...

Ok so I have decided to be more active with my medicine(my boyfriend is making me). I went off of HS for a long time because I got too tired doing it but I feel horrible and want to start it again. I have totally forgotten how to mix it. I have 10% and 3%. How do I mix it? I have the syringes...

Hi everyone, I hope all are well- I just found out today that I have to get a PICC during Thanksgiving. The other two times I got them I was so depressed that I did nothing but medicine. I didn't go out or really anything at all. I am determined not to be like that now. So, what types of...

Ok yes this is somewhat off topic and I am sorry but it has been plaguing me for a year. Does anyone else wear the patch? I wear it on my butt and by the end of the week it is so gross! It have moved and I have band-aid stuff all over my butt and I don't know what to do about it. I gotta say I...