Cystic Fibrosis Forum (EXP)

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  1. S

    Plugs, plugs, and maybe more plugs

    Ok so I have had a pain in my side/back for about two months on and off. I figured it was a plug because it did get better with advil and my doc said that if it was a collapsed lung it wouldn't. Of course without advil i feel like someone is stabbing me. Anyway, yesterday i was coughing and...
  2. S

    Not working

    Hi everyone! I hope everyone is doing well (ok, well as good as you can be<img src="i/expressions/face-icon-small-smile.gif" border="0"> ). I have a question for those who do not work. If you don't work what do you do all day? I just took a teaching job and now realize that it was a huge...
  3. S

    B. Cepacia

    I have been reading up on it and was wondering just how you get B. Cepacia. I know you can get it from other people, soil, and water but anything else? Most importantly, does this mean I should not have tap water or ever rinse out my nebulizers with water?<img...
  4. S

    Switching Drs

    Has anyone switched doctors because they didn't like theirs? I do not feel I am getting the best treatment although my children's hospital reccomended me to this adult program. I would like to switch to another doctor but there is only one other adult program in Chicago, which is where I live...
  5. S

    Vest

    I think this might have already been posted before but I can't find out. Does everyone like the vest who has it? Have you tried any other airway clearance and found that works the best? I have the acapella and it gets nothing up. I have always had problems getting stuff up but i know it is...
  6. S

    Vest

    I think this might have already been posted before but I can't find out. Does everyone like the vest who has it? Have you tried any other airway clearance and found that works the best? I have the acapella and it gets nothing up. I have always had problems getting stuff up but i know it is...
  7. S

    IVs

    Has anyone ever refused getting IVs? Can you even do that? I am scheduled to get IVs on July 12th because my lung function is down (45 down from 52) and I am hopefully going to teach in the fall. This was all before I started HS and exercising and I am already feeling A LOT better. Normally I...
  8. S

    Shingles

    So i woke up today with a rash and went to the doctor only to be told it is shingles! she said that i got it because my immune system was down from being sick, i was on steroids (prednisone), and under a lot of stress.Luckily the pain isn't too bad yet but i heard it can get pretty bad makes me...
  9. S

    collapsed and partially collapsed lungs

    So I have a horrible shotting pain in my back/side area. I can barely move that side of the body. I called my doctor and she said that it doesn't sound like a full collapse because i can do my treatments and breathe deep (although it kills when i do that or when I cough) Is is possible that I...
  10. S

    PLEASE HELP! Bruising

    So I am at the end of my rope. I have so many bruises on my legs it is disgusting. not all of them hurt either. I am taking every vitamin supplement, including iron and Adek and Vitamin C. I have gone down on Predinosone, which I thought might cause it but it is much worse now. I am sick of...
  11. S

    Handicap Sign

    Hi guys- I was wondering how low is your lung function for the people who had handicapped signs. I had one when I was in the high 30s but now I am in the 50s and don't know if I qualify. It doesn't seem like it with the research I have done but it is really hard for me to walk sometimes so I was...
  12. S

    CF and jobs

    This is the first time I have ever started a new post. How exciting!<img src="i/expressions/face-icon-small-smile.gif" border="0"> Anyway, i was wondering how people who do not work support themselves. Especially those who are my age and not getting social security My dad still supports me...
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