Cystic Fibrosis Forum (EXP)

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    Flovent vs. advair

    I know flovent is the same steroid as advair but is it just as good? Anyone on this?..how has this helped you if so <img src="i/expressions/face-icon-small-smile.gif" border="0">
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    Advair

    My doctor started me on advair today So I was just wandering who else takes this and did you see a difference in breathing right away?..and has it helped you? Or is there anything that i need to be aware of :-) thanks!
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    What allergy medicenes do you take that helps?

    So i never knew we can take allergy medicenes..iv always sufferd and been tight chested thinking its just apart of my low fev..my doctor told me to try Clairitin or Zyrtec..so i trie clairitin 24hour 10mg white small tablet...i felt great within 45 mins!..i didnt feel the tight wheeziness and...
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    Looking for a pink pulse ox

    Looking for a pink pulse ox <img src="i/expressions/face-icon-small-smile.gif" border="0"> ..im also curious to know where you can get cute pouches to go with them i love leopard print lol any suggestions? Thanks!
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    Sudden rapid heartbeat?

    Im suposed to be going home tomorow and im nervous i had rapid reponse team in my room because all of a sudden my chest got tight and my heart was racing!..the other night this happend to buy they assumed since chest xray was clear and oxygen was great that it was dehydration and gave me a...
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    Another Cf documentary being aired on Oprah channel tomorow!

    So happy to see another Cf documentary being aired tomorow <img src="i/expressions/face-icon-small-happy.gif" border="0"> just not sure what time!? On oprah!
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    I have been posting alot and im sorry if i sometimes dont make sense..i do this on my iphone :) ..i had rapid response called in my room last night

    I have been posting alot and im sorry if i sometimes dont make sense..i do this on my iphone :) ..i had rapid response called in my room last night So an update i did end up having a blood patch placed and a new chest tube thanks to my transplant team!..my cf doctor told me there was nothing...
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    Help! Need advice!..I had a spontaneous pneumothorax and now im being told that transplant is my only option?

    Help! Need advice!..I had a spontaneous pneumothorax and now im being told that transplant is my only option? Just over a week ago i i was told i didnt need to start transplant evaluation because i was to healthy and theyd just continue to see me every time i saw my cf doctor..well just over a...
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    IMPORTANT!..Need to know what you people have had done to help your pnuemathoraxes!

    My doctor is telling me there is nothing they can do to patch or staple this pneumo i have..shes also telling me cause im very healthy outside of this pnuemo that happend i could be on the transplant for a year ?..an wolst waiting in the meantime ill have a chest tube in and just wait!?..i find...
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    Need some help for those who've had Pneumothoaxes

    Anyone whose had experience could you please tell me them and what they did to help you they wont do the stapleing because it would cause more problem for transplant..please share your experiences i am still in the hospital and there trying to figure what to do..i was taking off suction...
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    Result from the pneumathorax is i need a lung transplant

    I need alot of support..my lung has healed 80% but 20% is still not reinflating there looking at taking me off suction tomorow to see how i tolerate that..id i tolerate that ok then ill have a smaller tube put in and be sent home as well tomorow im starting my transplant evaluation so il be...
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    Neumathorax and colapsed lung? Heres my story i never had one before

    Mine happend monday and i was all on my own no coughing or anything different to have set it off. I had woke up and sat up and just all of a sudden could t breathe!..i thought well maybe i just need nebulizers and i went to try and get them and something just really didnt feel right it brought...
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    My lung collapsed

    I been doing great feeling fine..well i was deprived my pulmozyme for two weeks because medicare decided they werent going to cover two boxes a month because its to expensive?..so cause i was short of the medicene i was without for two weeks..i then start it back up started running the fevers...
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    Anyone need Schandi shakes?..I have a bunch of strawberry flavor i dont drink and looking to help another Cfer out ;)

    Anyone need Schandi shakes?..I have a bunch of strawberry flavor i dont drink and looking to help another Cfer out ;) If you would like these just let me know im thinking i have 25 boxes? I dont like the strawberry im a chocolate person lol! And the pharmacy i get these through wont take them...
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    Medicare no longer will cover two boxes of Pulmozyme a month was told its "To expensive?"

    Medicare no longer will cover two boxes of Pulmozyme a month was told its "To expensive?" I was informed today that medicare no longer will cover pulmozyme two boxes anyway because of the cost?...im blown away what do they expect me to do?..they will only allow one refill a month..i do...
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    Frustrated

    Im curious to know if there has been anyone who has gotten there oxygen up and fev beter to and what did you do?..im normal sitting my sats are 96 but ince i start walking i drop to 86..i want so hard to get better !..my fev% is 31 my determined and will do anything an everything to get this...
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    Zosyn and Vanc people please read

    Have any of you noticed a weird tingle or like someone is lightly using a needle and poking you all over your body?..because i at first thought i had dry skin badly from being in the hospital but its not..i notice its one of the iv's an it only happens when its being hooked up and i take these...
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    CF documentary on Tlc Wednesday at 9pm(central)10pm (eastern)

    Cf documentary on Tlc wednesday! The girl is told she has 6months to live and needs her double lung transplant and shes fixing to be married. Was making this aware for everyone who may have not known!
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    Infuriated!..Respiratory nurse takes my neb cups and washes them in sink and goes to put them in the bag hanging for next treatment????

    Infuriated!..Respiratory nurse takes my neb cups and washes them in sink and goes to put them in the bag hanging for next treatment???? Ive never had a nurse take my neb cups and rinse them in the sink!..i cant use tap water let alone to do my sinus rinses!..this to me is a big no no!..also...
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    Bronchoscopy info please

    So im feeling overwhelmd at the moment been put back in hospital..an were now doing a bronch i want to know what to expect and what happens..were doing this to see if i have cepecia deep down in my lungs since i did culture it 3 yrs ago but since have not..she said theyd go in through my nose :-/
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