Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. C

    Which gene type are you?

    I found out Im Delta F508 so what does that mean ?..Is this a bad strand or good?
  2. C

    Any of yall feel like youd be happier just on your own?

    I dont know if this is normal or if any of yall feel the same but I know recently i was asked to get engaged...and of course i said yes but i did tell my boyfriend i dont want to get married in my eyes its just a piece of paper..yea i know you get to dress up and blah blah but i dont want all...
  3. C

    Sooo :) my boyfriend of 2 1/2 years proposed to me last night :)

    So my boyfriend and i have been together 2 1/2 years and last night he got us a room at the Sheraton Suites in Dallas, Tx!..it had a balcony and so we were just sitting out there enjoying the view and then all of a sudden he got down on his knee and asked me to marry him <img...
  4. C

    Update!..I had my bone density scan..

    So now im just waiting to see what there going to do medicene wise..anybody out there diagnosed with this?..If so what were you given <img src="i/expressions/face-icon-small-smile.gif" border="0">
  5. C

    Sorry yall I ment carbon dioxide levels :)

    So im having a pulse oximetry test on tuesday..and depending on that ill be having a sleep study done.Has anyone been in this situation?Where you had these tests done?..im hoping all goes good!
  6. C

    Doc called and said my Carbon monoxide levels were elevated

    So now im having a pulse oximetry test done tuesday and depending on that if it comes out not good then im having to go into hospital for a sleep study..have i said that rite carbon monoxide levels bein elevated?..and has anyone had the test done before : )
  7. C

    How did you know you needed Oxygen at night

    I see my specialist tomorow and I have been getting headaches when i wake up only mild headaches..Just wanted to know how yall knew you needed Oxygen and maybe if I am needing it?..I also been experiencing a real bad achy pain right under my heart on the left side n the front its not acid...
  8. C

    What is the best way to steralize and clean nebs?

    Just needing to know yalls ways on whats easiest and what you use to clean and steralize nebs <img src="i/expressions/face-icon-small-smile.gif" border="0"> thanks!
  9. C

    Any other Cfer's get this?

    Just wanted to know if any of you get this achy sharp sore pain on the left front bottom of ur chest?...i started getin this in my last hospital stay.when i touch where it hurts it feels like its jus under my heart. And this only occurs when Im sleeping and sometimes its so sore that i have to...
  10. C

    So my boyfriends friend is in the army and wants to donate a large amount of money..

    jus needing to know the name of the place or where hed donate this money <img src="i/expressions/face-icon-small-smile.gif" border="0"> thanks!
  11. C

    Been told to use Cf Services Pharmacy

    So my clinic advised me that maybe the best way for me to go is to use the cf pharmacy..they told me for creon, cayston, and pulmozyme there is special assistance prgrams to use that can help me with high copay costs.so thats good news but wanted to see who else uses the cf pharmacy and whats...
  12. C

    NEED SOME ADVICE REGARDING MY INSURANCE COMPANYS PLEASE

    Hey so i am getting a headache from all of all this going back and fourth.ok let me start off by saying that Cigna my primary insurance has now got this thing that any maintenance medications meaning "everyday take" have to go through mail order.some new thing so they tell me today as im still...
  13. C

    Medicare coverage and Insur craziness :(

    So I hve a few questions about this medicare situation?..I recently and still do have a problem with filling my pulmozyme script. and dont know what to do <img src="i/expressions/face-icon-small-sad.gif" border="0"> now let me explain my insurance set up. ok Ive always had Cigna have had for...
  14. C

    Today i was declined refill on my pulmozyme????!

    ok so today i go to refill my pulmozyme and i been no this medication for all my life. but i recently just got my medicare part a and b and d insur in may of this year.i also do have cigna and medicaid but the medicaid is fixing to go away as of my medicare. with that said today i go and refill...
  15. C

    how do i upload a pic?

    how do i get a pic to show on my thing like some of yall do <img src="i/expressions/face-icon-small-smile.gif" border="0">
  16. C

    Sad I hate when this happens...

    Well this isnt really related to cf but i guess i need somewhere to vent out. iv been dating my man for 2yrs now we have been really good together hes always cookn for me making sure i eat good.but then he does this weird thing where hel shut his self away and not want to talk or open up about...
  17. C

    Jus found out what infection i have

    SO my doc tells me i didnt have pnemonia but i did culture staph but a specific type wich is MRSA and he notified the nurses as i am still in hospital and they immediatly put signs on my door etc. im freaked out what does this all mean <img src="i/expressions/face-icon-small-sad.gif" border="0">...
  18. C

    Being Admitted

    So im goin into the hospital i still have been running 104 fevers i been waking up shaking so bad from it. Im so ready to get some iv meds in me!!i wana be ready for the summer <img src="i/expressions/face-icon-small-smile.gif" border="0"> Il be goin this afternoon ill keep yal posted to knowing...
  19. C

    Worried :(

    Well so heres an update on me ok for the last four days i been running 102 temps n when i take asprin or ibuprofen it helps a lil but not a whole lot my throat has been hurting like my tonsils and my whole body has been so sore to where im finding it hard to walk!and my head is so sore from...
  20. C

    I had my first lung bleed yesterday

    So yesterday i didnt do anything unusual or different i had just got done eating some dinner and all of a sudden i had like all this mucus congestion in my front middle section of my chest so i coughed and tried to clear it wuldnt but i didnt strain to cough well then i realized i couldnt take a...
Top