Cystic Fibrosis Forum (EXP)

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  1. C

    Goin back in the hospital after home iv's for three weeks..Have some questions!

    So im goin back in as ive got that smell in my nose and the doctor thinks i may have possibly became resistant to the medicenes they had me on!..so because im also allergic to penicilen(sp)? I have to be desensitized i was told thats where a allergist comes in an gves you small doese of...
  2. C

    What is the best type of oxygen for portable use

    Liquid oxygen or the oxygen that dispenses when you breathe in?..which would last longer?
  3. C

    Need asperilligos information please im beginning to wander if i have this

    So i would like as much information nonthis as possible and what tests do i ask for?..can this be in the nose?eason i ask is because i have been on home iv's for 3 weeks my fev increasd 1%. Im stil short of breath and my nose has that weird smell and i dont gethow i could posibly have a sinus...
  4. C

    Had a 6min walk test today..oxygen dropd to 85

    So i was hoping for a better result today but not giving up hope <img src="i/expressions/face-icon-small-smile.gif" border="0"> ..i had a 6min walk test and my heart rate got up to 163 and oxygen sat was 85..my fev has increasd by 1% wich i knw is better then going any lower but after being on...
  5. C

    Anyone familiar with the DADS program?

    My dad has recently been looking at this DADS program its for people who are limited to being able to live in there own because of mental or disabilities..apareantly you can get extra money a month ..no more then 3 people can be in the household..im new to this so i have no idea how this...
  6. C

    Is there a way to gain strength back and not need oxygen help wolst exercising?

    Ive just recently got out of the hospital and on home iv's ..im earning my strength back workn out and doing cardio..i had the typical mrsa infection..im pretty good and only go in hospital twice a year sometimes only once..but i do find i can do a little more running with oxygen on..only i dont...
  7. C

    Anyone have a good workout plan that has helped you gain muscle back in your body?..as well as brought you Fev %up?

    Anyone have a good workout plan that has helped you gain muscle back in your body?..as well as brought you Fev %up? Anyone with some advice or what you do is beneficial to me!..Im wanting to gain back some muscle and get my shape back..as well bringing that fev %up!..i understand it could take...
  8. C

    Bloodsugar got to 347 tonight

    I know it was the right thing to do being on prednisone..not sure if anyones been reading my other posts but i cried cause i dont want my body dependent on it ya know <img src="i/expressions/face-icon-small-sad.gif" border="0"> realy didnt feel good though stupid steroid!
  9. C

    High blood sugars wolst on prednisone..

    Ok so i refused the insulin because i jus started diabetes education and when i went there we said we werent starting insulin just yet..also my cf doc said she didnt want to start that either..well this on call doctor thats covering for the weekend called it in.. I refused because i didn feel...
  10. C

    Anyone in the hospital?

    Just seein if anyone else is in hospital to <img src="i/expressions/face-icon-small-smile.gif" border="0"> lol
  11. C

    Admitted into hospital yesterday

    I was admitted yesterday got a good chest infection and been very short of breath and would get burning in my neck and would start to sweat and couldnt think straight...realizing my oxygen level was proly very low..started runnin low fevers and nt sleeping at all in the night..so i realize my...
  12. C

    Anyone experience muscle spasms or cramps in their tounge?

    So im concerned as ive never had these muscle spasms in my tounge..they startd like a month ago..im not on anything new an dont know whats causing it. Today i finaly decided to call the doctor cause i thought that maybe somethig should be said as usualy the spasms happend on the side of my...
  13. C

    Whose with somebody and the parents throw insulting comments at you?

    Ive been with my bf for 3 1/2 yrs..and his mom always in some way wants to tell me im lazy and wishes she could just sit around all day and play?!...she knws i have cf she knows im diabetic..she knows how i am...this morning she told me to get out of the dam bed and all i do is sleep in and lay...
  14. C

    Menstrual Cycle changes?

    Ive began to notice that im having periods twice a month now but when they happen its not even lasting more a day?..i used to be heavy for 3-4 days...could this be related in some way why im not gaining weight? Im concernd with my changes im seeing <img...
  15. C

    Gaining weight tips?

    Im curious what other ways i can gain weight...i eat theee good meals a day and deink 4 packets of the schandi shakes a day!..thats 2400 calories just in drinks..i never used to struggle and now i am im weighing 113 pounds an i should be 125...any tips my friends and bf think its crazy with...
  16. C

    Sugars dropping 2 hour after eating?

    What does this mean...i ate a plate full of nachos with cheese avacado spicy pork and then ate some chocolate sticks :-/ shouldnt it be higher?
  17. C

    Need advice!..Sinus concern :(

    I've been not feeling to great lung wise..and now I have been getting blurred vision, sinus pressure and pain, a nasty taste of clump mucus with a nasty nasty taste <img src="i/expressions/face-icon-small-sad.gif" border="0">...im doin sinus rinses 2 times a day and I'm dry which is not...
  18. C

    Thursdayday i start Diabetes Education.

    <br>
  19. C

    You can now get vitamins and supplements free!

    I went to my cf doctor couple weeks ago and they now have this program called "Newborn Screening" and its government funded there hoping it stays forever but it helps you to gte your vitamins and like schandi shakes or other supplements free!! I was just aproved and they send it to your house...
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