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Nice - I hadn't thought of giving the parents a letter. We are meeting with DD's teachers to discuss her care but a letter to the parents further helps the process! I would add that your son may cough at times but not to let their child be unnecessarily concerned that he's contagious.
DD started using the Neilmed flush two nights ago per the recommendation of her RT. She's such a trooper - she didn't fight it for more than a second or two. At any rate, her RT thought she would have a lot of drainage upon flushing and that I "would be surprised at how much gunk comes out"...
Aven - I love her name! Congrats!
DD was diagnosed via newborn screening - the results came during a hospitalization at two weeks old. She is also homozygous dd508. She was hospitalized due to an exacerbation possibly brought on by aspiration during delivery - may not have been CF-related at...
Boil x 10 mins prior to each use. If using the mask, I spray it with PureGreen24 and let it sit while boiling the nebs. I rinse it with the boiled water...
Hi all...DD routinely cultures Staph A., but it was at a much higher concentration this last culture. Her doctor never called with the results (we're now 3 weeks out) but we did ask her nurse about the culture. She informed us that DD cultured Staph A. at 4+ and wondered if she's having...
I certainly remember you and actually think of you often!! Lost you on Facebook, too. I'm sorry about your fears...which are totally justified. But, I totally agree with PatPat. God has gotten us this far. I'm glad you're back - I hope you find comfort here...
DD has had CPT since two weeks old...first manually, then with the vest once big enough. I agree with prevention, prevention, prevention. Don't wait until symptoms progress. Who knows how long those symptoms would take to present themselves if more preventative action had been taken? Her xrays...
Just an FYI, our genetic counselor was less informative than my own knowledge base. She told us to consider abortion if our son (first born, no CF) had CF via amniocentesis. I found meeting with a genetic counselor to be of absolutely no help. Your odds are as stated above...25% CF, 25%...
If you routinely have blood work done, you may have an idea of whether or not you need to supplement. Granted...blood work only tells you what your values are today...fluctuations in electrolytes are common....
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