Cystic Fibrosis Forum (EXP)

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  1. I

    Lake Water

    We grappled with this on our recent camping trip. I do beleive there is some risk. After all, pseudomonas is EVERYWHERE and the lakes in the area, and the area where were camped have been having issues with e. coli. <br /> <br />However, trips like the one we were on are a pretty big part of...
  2. I

    Bactrim = Exhaustion

    Bactrim does this to Emily, too. It gets better, the further along she is on the course, but at first, she is tired, CRABBY, and complains of headaches. Usually by about 5 days in she's back to normal. Hope you can catch up on your sleep and feel better soon!
  3. I

    Bactrim = Exhaustion

    Bactrim does this to Emily, too. It gets better, the further along she is on the course, but at first, she is tired, CRABBY, and complains of headaches. Usually by about 5 days in she's back to normal. Hope you can catch up on your sleep and feel better soon!
  4. I

    Bactrim = Exhaustion

    Bactrim does this to Emily, too. It gets better, the further along she is on the course, but at first, she is tired, CRABBY, and complains of headaches. Usually by about 5 days in she's back to normal. <br /> <br />Hope you can catch up on your sleep and feel better soon!
  5. I

    I need help fast...

    Awwww, Heather, your post made me get all teary! What a wonderful offer of help! You are the best. Christina, I hope something works out for you. Juggling everything and maintaining your health must be a real challenge. I'll keep my fingers crossed for you!
  6. I

    I need help fast...

    Awwww, Heather, your post made me get all teary! What a wonderful offer of help! You are the best. Christina, I hope something works out for you. Juggling everything and maintaining your health must be a real challenge. I'll keep my fingers crossed for you!
  7. I

    I need help fast...

    Awwww, Heather, your post made me get all teary! What a wonderful offer of help! You are the best. <br /> <br />Christina, I hope something works out for you. Juggling everything and maintaining your health must be a real challenge. I'll keep my fingers crossed for you!
  8. I

    Lake Water

    We also watch the Department of Natural Resources website to keep an eye on bacteria type/count, and We wouldn't let Emily swim in anything that was out of the comfort zone. Nor would I, probably. FOrtunately, she things lakes are "icky" and usually just plays on the sand. (I know, not much...
  9. I

    Lake Water

    We also watch the Department of Natural Resources website to keep an eye on bacteria type/count, and We wouldn't let Emily swim in anything that was out of the comfort zone. Nor would I, probably. FOrtunately, she things lakes are "icky" and usually just plays on the sand. (I know, not much...
  10. I

    Lake Water

    We also watch the Department of Natural Resources website to keep an eye on bacteria type/count, and We wouldn't let Emily swim in anything that was out of the comfort zone. Nor would I, probably. <br /> <br />FOrtunately, she things lakes are "icky" and usually just plays on the sand. (I...
  11. I

    For those with tube feeders

    *sigh* Just another gross thing I get to look forward to! But, I'll make note of it in case we can't find another viable option. Thanks for sharing!
  12. I

    For those with tube feeders

    *sigh* Just another gross thing I get to look forward to! But, I'll make note of it in case we can't find another viable option. Thanks for sharing!
  13. I

    For those with tube feeders

    *sigh* Just another gross thing I get to look forward to! But, I'll make note of it in case we can't find another viable option. Thanks for sharing!
  14. I

    Transplant...... :/

    I have no personal experiences to share, but, if you haven't already, I really think you should read Piper's blog, from start to finish. <a target=_blank class=ftalternatingbarlinklarge href="http://amatteroflifeandbreath.blogspot.com/ ">http://amatteroflifeandbreath.blogspot.com/ </a> Piper...
  15. I

    Transplant...... :/

    I have no personal experiences to share, but, if you haven't already, I really think you should read Piper's blog, from start to finish. <a target=_blank class=ftalternatingbarlinklarge href="http://amatteroflifeandbreath.blogspot.com/ ">http://amatteroflifeandbreath.blogspot.com/ </a> Piper...
  16. I

    Transplant...... :/

    I have no personal experiences to share, but, if you haven't already, I really think you should read Piper's blog, from start to finish. <br /> <br /><a target=_blank class=ftalternatingbarlinklarge href="http://amatteroflifeandbreath.blogspot.com/ ">http://amatteroflifeandbreath.blogspot.com/...
  17. I

    Would anyone like these books?

    Karla - Our center has about 3-4 CF Ed nights a year. The topics vary. Some are more geared for parents, and others, like the last one, were for adolescent CF'ers and parents. Sometimes the center staff are the preseters, and other times they bring in speakers. One of the best ones I...
  18. I

    Would anyone like these books?

    Karla - Our center has about 3-4 CF Ed nights a year. The topics vary. Some are more geared for parents, and others, like the last one, were for adolescent CF'ers and parents. Sometimes the center staff are the preseters, and other times they bring in speakers. One of the best ones I...
  19. I

    Would anyone like these books?

    Karla - <br /> <br />Our center has about 3-4 CF Ed nights a year. The topics vary. Some are more geared for parents, and others, like the last one, were for adolescent CF'ers and parents. Sometimes the center staff are the preseters, and other times they bring in speakers. One of the best...
  20. I

    Would anyone like these books?

    I really like that TOBI booklet! I picked one up the last time the Novartis rep was at a CF Ed night, and there were two more tucked inside some insulated backpacks that they gave us last clinic visit. I tucked them away, figuring that we can cut them up and make a kick-butt science project...
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