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Emily is almost 5 and has been on both HTS and Pulmozyme since she was very young. I can't remember exactly right now, but I'll guess she was under 18 months when starting both. She just finished the ISIS clinical trial for HTS, and resumed 7% HTS. We are fairly certain that she did not have...

Emily is almost 5 and has been on both HTS and Pulmozyme since she was very young. I can't remember exactly right now, but I'll guess she was under 18 months when starting both. <br /> <br />She just finished the ISIS clinical trial for HTS, and resumed 7% HTS. We are fairly certain that she...

Oooh, I forgot... CFRI (Cystic Fibrosis Research Institute) puts out a very good booklet called Cystic Fibrosis in the Classroom. It's a very handy resource and gives a good explanation of the disease and the child's needs. You can probably get this from your clinic, or directly from CFRI...

Oooh, I forgot... CFRI (Cystic Fibrosis Research Institute) puts out a very good booklet called Cystic Fibrosis in the Classroom. It's a very handy resource and gives a good explanation of the disease and the child's needs. You can probably get this from your clinic, or directly from CFRI...

Oooh, I forgot... <br /> <br />CFRI (Cystic Fibrosis Research Institute) puts out a very good booklet called Cystic Fibrosis in the Classroom. It's a very handy resource and gives a good explanation of the disease and the child's needs. You can probably get this from your clinic, or directly...

I used Lisa Greene's sample letter on HappyHeartFamilies and modified it a bit to fit Emily. It's very personal and warm feeling...I think it makes the teachers feel like part of the team. <a target=_blank class=ftalternatingbarlinklarge...

I used Lisa Greene's sample letter on HappyHeartFamilies and modified it a bit to fit Emily. It's very personal and warm feeling...I think it makes the teachers feel like part of the team. <a target=_blank class=ftalternatingbarlinklarge...

I used Lisa Greene's sample letter on HappyHeartFamilies and modified it a bit to fit Emily. It's very personal and warm feeling...I think it makes the teachers feel like part of the team. <br /> <br /><a target=_blank class=ftalternatingbarlinklarge...

Please PM me your address. I still have our baby ones, and I think, some that are still in plastic wrap. We'll never have use for them again. I'd happily send them to you! You can send me a PM here, or e-mail me at tdraxler@yahoo.com<img src="i/expressions/face-icon-small-happy.gif" border="0">

Please PM me your address. I still have our baby ones, and I think, some that are still in plastic wrap. We'll never have use for them again. I'd happily send them to you! You can send me a PM here, or e-mail me at tdraxler@yahoo.com<img src="i/expressions/face-icon-small-happy.gif" border="0">

Please PM me your address. I still have our baby ones, and I think, some that are still in plastic wrap. We'll never have use for them again. I'd happily send them to you! <br /> <br />You can send me a PM here, or e-mail me at tdraxler@yahoo.com<img...

That's fabulous! You know, my Emily went on an eating spree not long after she got her tube, too. I remember thinking that it was almost like the nutrition from the tube feeds started a growth spurt that she had to eat to keep up with! Doesn't matter to me how it works, I'm just glad it...

That's fabulous! You know, my Emily went on an eating spree not long after she got her tube, too. I remember thinking that it was almost like the nutrition from the tube feeds started a growth spurt that she had to eat to keep up with! Doesn't matter to me how it works, I'm just glad it...

That's fabulous! You know, my Emily went on an eating spree not long after she got her tube, too. I remember thinking that it was almost like the nutrition from the tube feeds started a growth spurt that she had to eat to keep up with! Doesn't matter to me how it works, I'm just glad it...

My Emily is 4 1/2. When she was about 2 1/2 or almost 3, she had picked a dandelion to give me. When she noticed that I had taken it out of it's glass on the counter and thrown it away, I explained that it had died. She immediately asked if it had CF and was that why it died. That broke my...

My Emily is 4 1/2. When she was about 2 1/2 or almost 3, she had picked a dandelion to give me. When she noticed that I had taken it out of it's glass on the counter and thrown it away, I explained that it had died. She immediately asked if it had CF and was that why it died. That broke my...

My Emily is 4 1/2. When she was about 2 1/2 or almost 3, she had picked a dandelion to give me. When she noticed that I had taken it out of it's glass on the counter and thrown it away, I explained that it had died. She immediately asked if it had CF and was that why it died. <br /> <br...

prayers on the way.... thanks for letting us know, Terri. Update when you know something more. Love you, Jada!

prayers on the way.... thanks for letting us know, Terri. Update when you know something more. Love you, Jada!

prayers on the way.... thanks for letting us know, Terri. Update when you know something more. Love you, Jada!