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Okay I feel a little confused reading this post. I was under the impression that Narcolepsy was the tendency to get tired and actually go to sleep or take naps throughout a day. In reading the original post it sounds like you are saying Narcolepsy would cause you to wake up and not be able to go...

I think it is really difficult to take recommendations for transplant centers honestly. I would more evaluate first if there is an area or a climate that you may fair better living in. For instance, pre transplant I had difficulty when I was in cold weather, so I never would have chosen a...

I have a friend whose daughter (around age 7) had a liver transplant and saw marked improvement in lung function afterward. Their situation is a little different though. Her daughter has CF and Alpha1. The alpha 1 is what caused her to need a liver transplant. Anyhow, in terms of lung...

I have a friend whose daughter (around age 7) had a liver transplant and saw marked improvement in lung function afterward. Their situation is a little different though. Her daughter has CF and Alpha1. The alpha 1 is what caused her to need a liver transplant. Anyhow, in terms of lung...

I remember waking up and was extremely tired the first day, but anxious at the same time. The inundation of medication was exhausting and I was almost narcoleptic. I would be listening to people talk and trying to talk (more whisper after the vent came out) and would just fall asleep mid...

I remember waking up and was extremely tired the first day, but anxious at the same time. The inundation of medication was exhausting and I was almost narcoleptic. I would be listening to people talk and trying to talk (more whisper after the vent came out) and would just fall asleep mid...

I am DDF508 - diagnosed on my first birthday. About to turn 30 in a few months, diagnosed with CFRD at 17. Had Double lung transplant at 24. As for if someone can have more than one mutation at a time - Yes. You need to have two mutations of the gene that causes CF to have CF. Those mutations...

I am DDF508 - diagnosed on my first birthday. About to turn 30 in a few months, diagnosed with CFRD at 17. Had Double lung transplant at 24. As for if someone can have more than one mutation at a time - Yes. You need to have two mutations of the gene that causes CF to have CF. Those mutations...

I had red man syndrome with Vanco as well - it wasn't anything like what you described however. For me two alternatives worked if I had to use Vanc and that was to dose with benadryl and keep the med at the normal dosage speed or to cut the dosage rate in half with no benadryl. My docs...

I had red man syndrome with Vanco as well - it wasn't anything like what you described however. For me two alternatives worked if I had to use Vanc and that was to dose with benadryl and keep the med at the normal dosage speed or to cut the dosage rate in half with no benadryl. My docs...

I started working about 8 months after my transplant and started going back to school 6 months after I started working. I am now 4 yrs post transplant and have the same job I started working 8 months post transplant. I now work full time about 38 hours a week and go to school part time. I find...

I started working about 8 months after my transplant and started going back to school 6 months after I started working. I am now 4 yrs post transplant and have the same job I started working 8 months post transplant. I now work full time about 38 hours a week and go to school part time. I find...

I found one of the best ways to administer the gent. sinus wash was to get a bulb syringe from babys r us and use one squirt for each side of my nose. I used the rinses for 6 months twice a day before I started having any issues with ringing in my ears. I still have to use them every now and...

I found one of the best ways to administer the gent. sinus wash was to get a bulb syringe from babys r us and use one squirt for each side of my nose. I used the rinses for 6 months twice a day before I started having any issues with ringing in my ears. I still have to use them every now and...

I found one of the best ways to administer the gent. sinus wash was to get a bulb syringe from babys r us and use one squirt for each side of my nose. <br /> <br />I used the rinses for 6 months twice a day before I started having any issues with ringing in my ears. I still have to use them...

I have had this happen to me once, and it was taken care of VERY quickly. I say have your doc write an order for manual CPT with each neb treatment and they have to give that to you. <br><br>I was the same as you pre transplant I preferred manual CPT as I felt it was more effective. I would...

I have had this happen to me once, and it was taken care of VERY quickly. I say have your doc write an order for manual CPT with each neb treatment and they have to give that to you. <br><br>I was the same as you pre transplant I preferred manual CPT as I felt it was more effective. I would...

I have had this happen to me once, and it was taken care of VERY quickly. I say have your doc write an order for manual CPT with each neb treatment and they have to give that to you. <br><br>I was the same as you pre transplant I preferred manual CPT as I felt it was more effective. I would...

I agree with what others have said to an extent. Ldude's story is similar to mine, except I had my transplant 4.5 years ago. Until I turned 23-24 I was firmly against transplant. I had read stories, seen articles and just wasn't convinced it was a good enough option. I swore up and down that I...

I agree with what others have said to an extent. Ldude's story is similar to mine, except I had my transplant 4.5 years ago. Until I turned 23-24 I was firmly against transplant. I had read stories, seen articles and just wasn't convinced it was a good enough option. I swore up and down that I...