Cystic Fibrosis Forum (EXP)

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  1. C

    for those who have yet to decide on transplant

    I agree with what others have said to an extent. Ldude's story is similar to mine, except I had my transplant 4.5 years ago. <br /> <br />Until I turned 23-24 I was firmly against transplant. I had read stories, seen articles and just wasn't convinced it was a good enough option. I swore up and...
  2. C

    Question for those who are knowledgable with working and ssdi !

    I haven't read all of the posts I just wanted to say it may be best to speak to not only Beth Sufian but to talk to someone within your local Social Security office. I wanted to try working before my transplant and I went through them I want to say that the amount I had to stay below a month was...
  3. C

    Question for those who are knowledgable with working and ssdi !

    I haven't read all of the posts I just wanted to say it may be best to speak to not only Beth Sufian but to talk to someone within your local Social Security office. I wanted to try working before my transplant and I went through them I want to say that the amount I had to stay below a month was...
  4. C

    Question for those who are knowledgable with working and ssdi !

    I haven't read all of the posts I just wanted to say it may be best to speak to not only Beth Sufian but to talk to someone within your local Social Security office. I wanted to try working before my transplant and I went through them I want to say that the amount I had to stay below a month was...
  5. C

    Gallbladder Removal

    There will likely be a period of time after you have your gallbladder removed where you are using the bathroom more often and your stool may likely be green. This happens with most people, by my understanding, not just CFers. For me I remember having difficulty with coughing, but holding a...
  6. C

    Gallbladder Removal

    There will likely be a period of time after you have your gallbladder removed where you are using the bathroom more often and your stool may likely be green. This happens with most people, by my understanding, not just CFers. For me I remember having difficulty with coughing, but holding a...
  7. C

    Gallbladder Removal

    There will likely be a period of time after you have your gallbladder removed where you are using the bathroom more often and your stool may likely be green. This happens with most people, by my understanding, not just CFers. For me I remember having difficulty with coughing, but holding a...
  8. C

    HELP please

    This happened to me my first year of college, and let me just say that after I dropped all of my classes I was told I should have had some type of ADA accommodation. So I would talk to someone in the Student Services or Disability Services department about this one. Also to put your mind at...
  9. C

    HELP please

    This happened to me my first year of college, and let me just say that after I dropped all of my classes I was told I should have had some type of ADA accommodation. So I would talk to someone in the Student Services or Disability Services department about this one. Also to put your mind at...
  10. C

    HELP please

    This happened to me my first year of college, and let me just say that after I dropped all of my classes I was told I should have had some type of ADA accommodation. So I would talk to someone in the Student Services or Disability Services department about this one. <br /> <br />Also to put your...
  11. C

    Transplant Center

    When I asked about transplant my doc told me he would refer me to one of the two that was closest for me to get the information I was looking to get. For me that was either UF/Shands in Gainesville or Mayo in Jacksonville Florida. I opted for Mayo because I had been to UF Shands CF Center and...
  12. C

    Transplant Center

    When I asked about transplant my doc told me he would refer me to one of the two that was closest for me to get the information I was looking to get. For me that was either UF/Shands in Gainesville or Mayo in Jacksonville Florida. I opted for Mayo because I had been to UF Shands CF Center and...
  13. C

    Transplant Center

    When I asked about transplant my doc told me he would refer me to one of the two that was closest for me to get the information I was looking to get. For me that was either UF/Shands in Gainesville or Mayo in Jacksonville Florida. I opted for Mayo because I had been to UF Shands CF Center and...
  14. C

    signs of rejection

    I don't think those are straight symptoms of rejection, but I know my center wants us to call if we unintentionally lose 10 lbs or more or unintentionally gain 10 lbs or more. Soreness or pain may be residual pain from incisions or something. I am just over 4 years out and still get incision...
  15. C

    signs of rejection

    I don't think those are straight symptoms of rejection, but I know my center wants us to call if we unintentionally lose 10 lbs or more or unintentionally gain 10 lbs or more. Soreness or pain may be residual pain from incisions or something. I am just over 4 years out and still get incision...
  16. C

    signs of rejection

    I don't think those are straight symptoms of rejection, but I know my center wants us to call if we unintentionally lose 10 lbs or more or unintentionally gain 10 lbs or more. Soreness or pain may be residual pain from incisions or something. I am just over 4 years out and still get incision...
  17. C

    Hemoptysis while on Tobi

    I used to get the same thing after about a week. It got to the point that I ended up doing (per doctors orders) two weeks on two weeks off TOBI instead of the normal 1 month on 1 month off. I had that every time I used TOBI pre transplant ... as a side note I have had to take TOBI twice post...
  18. C

    Hemoptysis while on Tobi

    I used to get the same thing after about a week. It got to the point that I ended up doing (per doctors orders) two weeks on two weeks off TOBI instead of the normal 1 month on 1 month off. I had that every time I used TOBI pre transplant ... as a side note I have had to take TOBI twice post...
  19. C

    Hemoptysis while on Tobi

    I used to get the same thing after about a week. It got to the point that I ended up doing (per doctors orders) two weeks on two weeks off TOBI instead of the normal 1 month on 1 month off. <br /> <br />I had that every time I used TOBI pre transplant ... as a side note I have had to take TOBI...
  20. C

    Dating with CF/I'm scared.

    Starkey, I am sure you will find someone that is willing to love you regardless of the health issues you may bring to the table. I personally was in a situation for a while where I was engaged and when that ended the guy actually told me that I would have a hard time finding someone that would...
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