Cystic Fibrosis Forum (EXP)

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  1. C

    Passing time in the hospital

    For me I have a portable DVD player and I just bring in tons of movies to watch. I also bring in stuff to do my nails. That's always fun. And I bring my ipod as well, helps pass the time.
  2. C

    Passing time in the hospital

    For me I have a portable DVD player and I just bring in tons of movies to watch. I also bring in stuff to do my nails. That's always fun. And I bring my ipod as well, helps pass the time.
  3. C

    Passing time in the hospital

    For me I have a portable DVD player and I just bring in tons of movies to watch. I also bring in stuff to do my nails. That's always fun. And I bring my ipod as well, helps pass the time.
  4. C

    Passing time in the hospital

    For me I have a portable DVD player and I just bring in tons of movies to watch. I also bring in stuff to do my nails. That's always fun. And I bring my ipod as well, helps pass the time.
  5. C

    Passing time in the hospital

    For me I have a portable DVD player and I just bring in tons of movies to watch. I also bring in stuff to do my nails. That's always fun. And I bring my ipod as well, helps pass the time.
  6. C

    Transplant

    Hey everyone, I haven't been on here in a looooong time. I just thought I would stop by and update everyone. I just got my transplant March 29th and I am doing awesome! It feels so great to be able to breathe! I am out all the time with my friends going everywhere and anywhere and no more oxygen...
  7. C

    Transplant

    Hey everyone, I haven't been on here in a looooong time. I just thought I would stop by and update everyone. I just got my transplant March 29th and I am doing awesome! It feels so great to be able to breathe! I am out all the time with my friends going everywhere and anywhere and no more oxygen...
  8. C

    Transplant

    Hey everyone, I haven't been on here in a looooong time. I just thought I would stop by and update everyone. I just got my transplant March 29th and I am doing awesome! It feels so great to be able to breathe! I am out all the time with my friends going everywhere and anywhere and no more oxygen...
  9. C

    Transplant

    Hey everyone, I haven't been on here in a looooong time. I just thought I would stop by and update everyone. I just got my transplant March 29th and I am doing awesome! It feels so great to be able to breathe! I am out all the time with my friends going everywhere and anywhere and no more oxygen...
  10. C

    Transplant

    Hey everyone, I haven't been on here in a looooong time. I just thought I would stop by and update everyone. I just got my transplant March 29th and I am doing awesome! It feels so great to be able to breathe! I am out all the time with my friends going everywhere and anywhere and no more oxygen...
  11. C

    So which mutation do you have

    I have double copies of E60X. My brother has the same as well. I guess it's one of the rarest I'm told. I have crummy lungs, my PFT's are about 12% right now. I am on the TX list and I can't wait to get my new lungs, woo hoo! <img src="i/expressions/face-icon-small-smile.gif" border="0">
  12. C

    So which mutation do you have

    I have double copies of E60X. My brother has the same as well. I guess it's one of the rarest I'm told. I have crummy lungs, my PFT's are about 12% right now. I am on the TX list and I can't wait to get my new lungs, woo hoo! <img src="i/expressions/face-icon-small-smile.gif" border="0">
  13. C

    So which mutation do you have

    I have double copies of E60X. My brother has the same as well. I guess it's one of the rarest I'm told. I have crummy lungs, my PFT's are about 12% right now. I am on the TX list and I can't wait to get my new lungs, woo hoo! <img src="i/expressions/face-icon-small-smile.gif" border="0">
  14. C

    Tattoos

    Thanks guys. Another question my mom keeps telling me since I a goin to have a ling tX at some point that it isn't allowed wheich i find very doubtful. I would think it's perfectly fine for someone to get a tattoo eve if they are going for a lung TX. If anyone knows please let e know even though...
  15. C

    Tattoos

    Hey does anyone know any good sites to look at tattoos? I was looking for Irish or Celtic designs. Thanks guys.
  16. C

    Dry Mouth

    Well when I had dry mouth and was thirsty all the time I went in for a docs appt because my mom thought it might be diabetes and sure enough it was. Now I am not saying that's it but it might be a possibility maybe you should talk to your doctor and bring that up to him/her.
  17. C

    How many adults here have or had G-Tubes?

    I have had my g-tube for about 2 years now and it's worked pretty well.I just wasn't able to do it myself and I am so glad I have my tube.
  18. C

    for those on insulin

    I get that only when I alcohol my skin and don't let it dry. And sometimes when I have to inject a big amount like 20 units or more then it tends to hurt a little because I am pushing so much in at once. And you should always clean the skin first, you don't want to get any infections.
  19. C

    Why it's "good" to have CF...

    Why it's Never having to play gym in HS Can eat anything you want and not have to worry about becoming huge Using my handicap card whenever I wanna, tee hee!
  20. C

    Questions about Colistin

    Sonia I mix mine the same as yours. I have a question though mine starts to foam when I start and it starts oozing out the neb and no matter how long I let it sit for it always starts to foam. Is there anyway to stop this from happening?
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