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I haven't been around much lately and when I am I kinda just quickly scan the threads so I guess I am not up to date with what is going on now. I was jut wondering Julie what exactly is bothering you? I have seen a lot of Allie's and Emily's posts and don't find them to be anything but truthful...

I do not work. I am on SSI and am still on my dads insuance as a dependent. At this point I can't work because I am being evaluated for a TX and I am too sick to work. I did go to College and I am a Surgical Technician but got seriously ill aftert school so I never got to work officially as a...

I had no idea May was Cf month, lol. And if I have CF and don't even know then I am pretty sure that most other people don't know it either. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Hey everyone. Just wanted to let you know how it went. It was so easy. I was really scared at first but once it was over I was like wow this wasn't bad at all. I'm so glad it's over with woo hoo! <img src="i/expressions/face-icon-small-smile.gif" border="0">

Thanks guys for the explanations it helped a lot. And Jane I am being evaluated for a lung TX and it's on the list of things to do. And I am going to Faulkner hospital. I live near Boston and thats where it is, I think <img src="i/expressions/face-icon-small-smile.gif" border="0"> And I would...

I am booked for a cardiac cath tomorrow and wondered has anyone else had this done? I just wanna know what I should expect. Thanks guys!

Those are great numbers, you should be proud. And don't worry too much about the numbers it's really how you feel overall that's important. My pft's are like 17% but I feel pretty good so you gotta kinda be like eh my numbers stink but I feel good and that's great.

The Clean Freak Joy... You scored 75! You can never be too clean, and you know just what to do about germs... KILL THEM! Being such a cleanly fellow you might be ridiculed for being a germaphobe, which isn't true! Give it a few years and it may develop into Germaphobia, but right now you're just...

Can only hold mine for 11 seconds.

I am diabetic so I have a calorie and carb book and I just look up foods and see what has the most calories and go eat it. <img src="i/expressions/face-icon-small-happy.gif" border="0">

I am 5'2 and a few years ago weighed 117 pounds. I looked so good now I weigh 98 npounds. I am trying to get back to my old weight. I hope I can do it.

I used to take that when I was younger. I was on it for years. I don't remember any side effects but yet I was pretty young. Sorry I can't be much help <img src="i/expressions/face-icon-small-happy.gif" border="0">

Wow that's great, congrats. I remember I was in the paper when I was 5 years old. I was one of the first patients to move over to the new Children's in Boston. It was this big article about the move and they talked to me and took pictures. It was fun, and I remember they used a quote from me, I...

My FEV1 is 17%. Pretty bad at the moment but hopefully they will pick back up.

I have a hard time with jeans. None fit me. The only ones that do are girls size 14 so thats what I buy. Shirts are no prob it's just the jeans but thankfully the girls fit me and they are the perfect length too. I'm little so length has always been a prob for me.

I guess everyone needs some release when it comes to CF. Now I don't think smoking is the best way to rebel and take control but if you feel that's right for you then that's fine. If I'm upset or feel like there is too much going on or overwhelemed I put on a funny movie, or I go shopping or I...

I did mine I think like 7 years ago. They put me in this huge room with other people getting dialysis and other stuff. They hooked me up to an IV so they ould get blood every 30 minutes or so. Maybe they have changed it because I was there for a looooong time. Thankfully they had a TV for me...

I did it so long ago but I think I was there for 6 hours. I think they took blood either every half hour to an hour or maybe even 2 hours. But I am pretty sure it was a full 6 hours for it to be done.

Wow PFT's are 158%? Wow that's crazy. Mine are 21% lol! <img src="i/expressions/face-icon-small-happy.gif" border="0">

That was me above about not smoking and drinking, didn't sign in.