Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. D

    Not taking enzymes?

    I went through a very long phase of about 5 years from age 11-16 where I pretty much didn't take any enzymes with anything. just rebelling I guess. I really try to take everything now but I still forget enzymes more than I should. And I have never once felt Any pain. (Tmi alert) my stools are...
  2. D

    Not taking enzymes?

    I went through a very long phase of about 5 years from age 11-16 where I pretty much didn't take any enzymes with anything. just rebelling I guess. I really try to take everything now but I still forget enzymes more than I should. And I have never once felt Any pain. (Tmi alert) my stools are...
  3. D

    FEV1 with or without albuterol

    My most recent test back In November was 18% without albuterol and 20% with so I normally have a small increase, but sometimes the numbers are the same with and without.
  4. D

    FEV1 with or without albuterol

    My most recent test back In November was 18% without albuterol and 20% with so I normally have a small increase, but sometimes the numbers are the same with and without.
  5. D

    FEV1 with or without albuterol

    My most recent test back In November was 18% without albuterol and 20% with so I normally have a small increase, but sometimes the numbers are the same with and without.
  6. D

    What to leave behind with loved one

    No Im not bitter at all, I'm a pretty happy person, and I didn't mean to sound hostile, it's hard to read tones and intentions though typed words. And about the pep talk I just meant that I know it helps a lot of people with grave outlooks but I'm pretty positive and optomistic about life. No...
  7. D

    What to leave behind with loved one

    No Im not bitter at all, I'm a pretty happy person, and I didn't mean to sound hostile, it's hard to read tones and intentions though typed words. And about the pep talk I just meant that I know it helps a lot of people with grave outlooks but I'm pretty positive and optomistic about life. No...
  8. D

    What to leave behind with loved one

    No Im not bitter at all, I'm a pretty happy person, and I didn't mean to sound hostile, it's hard to read tones and intentions though typed words. And about the pep talk I just meant that I know it helps a lot of people with grave outlooks but I'm pretty positive and optomistic about life. No...
  9. D

    What to leave behind with loved one

    @ Cysticly funny, No there's nothing morbid or depressing about my life. And I do all my treatments and I do exercise, but my dad is a healthy 50 year old man and my fev1 is 18 % and I'm on 5lpm oxygen 24/7 and have chosen not to go on the transplant list. so I'm just being realistic. So thanks...
  10. D

    What to leave behind with loved one

    @ Cysticly funny, No there's nothing morbid or depressing about my life. And I do all my treatments and I do exercise, but my dad is a healthy 50 year old man and my fev1 is 18 % and I'm on 5lpm oxygen 24/7 and have chosen not to go on the transplant list. so I'm just being realistic. So thanks...
  11. D

    What to leave behind with loved one

    @ Cysticly funny, No there's nothing morbid or depressing about my life. And I do all my treatments and I do exercise, but my dad is a healthy 50 year old man and my fev1 is 18 % and I'm on 5lpm oxygen 24/7 and have chosen not to go on the transplant list. so I'm just being realistic. So thanks...
  12. D

    What to leave behind with loved one

    My grandad had a ring that he wore and after he died my dad got the ring and when I was a little boy and I'd see it on my dads dresser I would put it on my finger and imagine getting to own it one day, not in a greedy way but In a loving way since passing the ring down to the son in the family...
  13. D

    What to leave behind with loved one

    My grandad had a ring that he wore and after he died my dad got the ring and when I was a little boy and I'd see it on my dads dresser I would put it on my finger and imagine getting to own it one day, not in a greedy way but In a loving way since passing the ring down to the son in the family...
  14. D

    What to leave behind with loved one

    My grandad had a ring that he wore and after he died my dad got the ring and when I was a little boy and I'd see it on my dads dresser I would put it on my finger and imagine getting to own it one day, not in a greedy way but In a loving way since passing the ring down to the son in the family...
  15. D

    What is the end of life for a CFer like?

    I'd also like to hear the bleeding plan, I've never had massive bleeding but I have coughed up blood plenty of times. And I'll try to give a little less scary answer, most people i've talked to who have had friends or family die of cf said they went very peacefully. I was told I had less than a...
  16. D

    Broken Rib???

    That's possible, it could also just be a strained or pulled muscle and it could be a pneumothorax, which shouldn't be left untreated. Since its been a couple weeks and hasnt gotten better I would go get a chest xray to make sure things are ok.
  17. D

    Broken Rib???

    That's possible, it could also just be a strained or pulled muscle and it could be a pneumothorax, which shouldn't be left untreated. Since its been a couple weeks and hasnt gotten better I would go get a chest xray to make sure things are ok.
  18. D

    Broken Rib???

    That's possible, it could also just be a strained or pulled muscle and it could be a pneumothorax, which shouldn't be left untreated. Since its been a couple weeks and hasnt gotten better I would go get a chest xray to make sure things are ok.
  19. D

    High heart rate problems

    Well I'm under hospice care and my lung function is around 18% so heartrate being 100-120 is pretty much expected my o2 sats have been good around 97. And hospice nurse comes once a week and listens,checks heartrate,o2, and blood pressure which has been normal, but the 4 days of really high...
  20. D

    High heart rate problems

    Well I'm under hospice care and my lung function is around 18% so heartrate being 100-120 is pretty much expected my o2 sats have been good around 97. And hospice nurse comes once a week and listens,checks heartrate,o2, and blood pressure which has been normal, but the 4 days of really high...
Top