Cystic Fibrosis Forum (EXP)

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  1. D

    Question for the runners out there

    I'm also doing couch to 5k program, but I have a problem.. Sorry to kinda take over but it's important and I've unsuccessfully tried to start a new topic 3 times. I think my computer is messed up.. Anyway I'm 17 my fev1 is 17% and I'm on 4lpm oxygen. My sats are 95-99 while sitting still but I...
  2. D

    whats your fev1 ?

    17 year old male, fev1 16-18%. 4 lpm o2 24/7
  3. D

    whats your fev1 ?

    17 year old male, fev1 16-18%. 4 lpm o2 24/7
  4. D

    whats your fev1 ?

    17 year old male, fev1 16-18%. 4 lpm o2 24/7
  5. D

    What is your FEV1 Score?

    18% last november. Entered hospice and haven't rechecked again but it's most likely lower than 18 since I've had to keep bumping up my oxygen use. , oxygen 4 liters per minute 24/7
  6. D

    What is your FEV1 Score?

    18% last november. Entered hospice and haven't rechecked again but it's most likely lower than 18 since I've had to keep bumping up my oxygen use. , oxygen 4 liters per minute 24/7
  7. D

    What is your FEV1 Score?

    18% last november. Entered hospice and haven't rechecked again but it's most likely lower than 18 since I've had to keep bumping up my oxygen use. , oxygen 4 liters per minute 24/7
  8. D

    Having a bad day...

    I don't know what to say to make you feel better but I can assure you you're not alone, my last year has been almost identical to yours. last June I had a spontaneous pneumo, scariest and most painful week of my life. I stayed at home with it for a week and when I finally went in my fev1 was 14%...
  9. D

    Having a bad day...

    I don't know what to say to make you feel better but I can assure you you're not alone, my last year has been almost identical to yours. last June I had a spontaneous pneumo, scariest and most painful week of my life. I stayed at home with it for a week and when I finally went in my fev1 was 14%...
  10. D

    Having a bad day...

    I don't know what to say to make you feel better but I can assure you you're not alone, my last year has been almost identical to yours. last June I had a spontaneous pneumo, scariest and most painful week of my life. I stayed at home with it for a week and when I finally went in my fev1 was 14%...
  11. D

    please help make hospital stay better

    Mini fridge if possible! My old cf center in Atlanta had them in the rooms and when they closed that and I had to go back to the hospitals that's a big thing I missed.
  12. D

    please help make hospital stay better

    Mini fridge if possible! My old cf center in Atlanta had them in the rooms and when they closed that and I had to go back to the hospitals that's a big thing I missed.
  13. D

    please help make hospital stay better

    Mini fridge if possible! My old cf center in Atlanta had them in the rooms and when they closed that and I had to go back to the hospitals that's a big thing I missed.
  14. D

    can HTS be used in the eFlow?

    I use Hts, tobi, cayston and pulmozyme in the eflow and I think they say not to, but if you keep it clean it should be fine.
  15. D

    can HTS be used in the eFlow?

    I use Hts, tobi, cayston and pulmozyme in the eflow and I think they say not to, but if you keep it clean it should be fine.
  16. D

    can HTS be used in the eFlow?

    I use Hts, tobi, cayston and pulmozyme in the eflow and I think they say not to, but if you keep it clean it should be fine.
  17. D

    Ideal Climate?

    I live in Georgia where it's hot and humid in the summer and I like the heat but I don't like the humidity. I spent a week I Arizona visiting family awhile back and even though it was 100-103 degrees all week it wasn't as humid and I loved it. I felt like I was breathing better and I didn't ever...
  18. D

    Ideal Climate?

    I live in Georgia where it's hot and humid in the summer and I like the heat but I don't like the humidity. I spent a week I Arizona visiting family awhile back and even though it was 100-103 degrees all week it wasn't as humid and I loved it. I felt like I was breathing better and I didn't ever...
  19. D

    Ideal Climate?

    I live in Georgia where it's hot and humid in the summer and I like the heat but I don't like the humidity. I spent a week I Arizona visiting family awhile back and even though it was 100-103 degrees all week it wasn't as humid and I loved it. I felt like I was breathing better and I didn't ever...
  20. D

    Not taking enzymes?

    I went through a very long phase of about 5 years from age 11-16 where I pretty much didn't take any enzymes with anything. just rebelling I guess. I really try to take everything now but I still forget enzymes more than I should. And I have never once felt Any pain. (Tmi alert) my stools are...
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