Cystic Fibrosis Forum (EXP)

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  1. B

    calculating proper enzyme dosage

    my son is taking Pancrease MT16's-4 with meals and 1-2 with snacks depending on the snack size. it seems that here lately he's had more smell (bm odor)and i'm thinking we may need to up it. i never see these mentioned, are they not used much? blopunky's mom
  2. B

    calculating proper enzyme dosage

    my son is taking Pancrease MT16's-4 with meals and 1-2 with snacks depending on the snack size. it seems that here lately he's had more smell (bm odor)and i'm thinking we may need to up it. i never see these mentioned, are they not used much? blopunky's mom
  3. B

    Liver Problems??

    my 8 year old also takes urso. the 250mg twice daily. When he was around 3or4 one of his liver panels showed an elevated enzyme level, his ped. G.I. dr. put him on the urso. and a med. called lactulose-it's a liquid we have to have flavor added to because it tastes so bad. The first time he...
  4. B

    Liver Problems??

    my 8 year old also takes urso. the 250mg twice daily. When he was around 3or4 one of his liver panels showed an elevated enzyme level, his ped. G.I. dr. put him on the urso. and a med. called lactulose-it's a liquid we have to have flavor added to because it tastes so bad. The first time he...
  5. B

    Liver Problems??

    my 8 year old also takes urso. the 250mg twice daily. When he was around 3or4 one of his liver panels showed an elevated enzyme level, his ped. G.I. dr. put him on the urso. and a med. called lactulose-it's a liquid we have to have flavor added to because it tastes so bad. The first time he...
  6. B

    Nebulizer cleaning question

    thanks-he has to go in to get his flu shot soon and I'll ask his pulmonologist about which one(pari) for tobi.<img src="i/expressions/face-icon-small-happy.gif" border="0"> blopunky's mom
  7. B

    Nebulizer cleaning question

    thanks-he has to go in to get his flu shot soon and I'll ask his pulmonologist about which one(pari) for tobi.<img src="i/expressions/face-icon-small-happy.gif" border="0"> blopunky's mom
  8. B

    Nebulizer cleaning question

    thanks-he has to go in to get his flu shot soon and I'll ask his pulmonologist about which one(pari) for tobi.<img src="i/expressions/face-icon-small-happy.gif" border="0"> blopunky's mom
  9. B

    CHoking Cough

    christi-when my son was little he would cough and gag over and over until he would vomit. This was horrible but after he would at least be able to breathe better. I tried doing extra breathing treatments but it only made him hyper and cranky. I raised the head part of the mattress in his baby...
  10. B

    CHoking Cough

    christi-when my son was little he would cough and gag over and over until he would vomit. This was horrible but after he would at least be able to breathe better. I tried doing extra breathing treatments but it only made him hyper and cranky. I raised the head part of the mattress in his baby...
  11. B

    CHoking Cough

    christi-when my son was little he would cough and gag over and over until he would vomit. This was horrible but after he would at least be able to breathe better. I tried doing extra breathing treatments but it only made him hyper and cranky. I raised the head part of the mattress in his baby...
  12. B

    Tony Blair helps my Tx Hosp, so can u!

    voted as well! It would be wonderful if he wins. Anything to help!
  13. B

    Tony Blair helps my Tx Hosp, so can u!

    voted as well! It would be wonderful if he wins. Anything to help!
  14. B

    Tony Blair helps my Tx Hosp, so can u!

    voted as well! It would be wonderful if he wins. Anything to help!
  15. B

    Nebulizer cleaning question

    Hey! I use the pari for tobi and the side stream for his pulmo. and a neb with a mask(he still uses the dinosaur one!) for his albuterol. I labeled the hoses for al. and tobi with the first letters on the bottom rubbery part. Our pulmonologist suggested I use different tubes as the...
  16. B

    Nebulizer cleaning question

    Hey! I use the pari for tobi and the side stream for his pulmo. and a neb with a mask(he still uses the dinosaur one!) for his albuterol. I labeled the hoses for al. and tobi with the first letters on the bottom rubbery part. Our pulmonologist suggested I use different tubes as the...
  17. B

    Nebulizer cleaning question

    Hey! I use the pari for tobi and the side stream for his pulmo. and a neb with a mask(he still uses the dinosaur one!) for his albuterol. I labeled the hoses for al. and tobi with the first letters on the bottom rubbery part. Our pulmonologist suggested I use different tubes as the...
  18. B

    How can you tell when your child is sick?

    well-I am noticing that my son gets into his "moody"  behavior. Like right now, my oldest son has a cold and then my daughter got it and I knew it would only be a matter of time before blopunky got it. Sure enough he is blowing out gobs of green. I know this is maybe just coincidence, but the...
  19. B

    How can you tell when your child is sick?

    well-I am noticing that my son gets into his "moody"  behavior. Like right now, my oldest son has a cold and then my daughter got it and I knew it would only be a matter of time before blopunky got it. Sure enough he is blowing out gobs of green. I know this is maybe just coincidence, but the...
  20. B

    How can you tell when your child is sick?

    well-I am noticing that my son gets into his "moody"  behavior. Like right now, my oldest son has a cold and then my daughter got it and I knew it would only be a matter of time before blopunky got it. Sure enough he is blowing out gobs of green. I know this is maybe just coincidence, but the...
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