Cystic Fibrosis Forum (EXP)

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  1. C

    Hours of work...

    Finally, some cool CF stuff. I love love love this idea! What a great job. My favorite is the "Sorry about your cold". I have some minor suggestions/requests to throw into the mix, too: I have a hard time reading the "fight cystic fibrosis now" tagline on some of the shirts. For the Cure CF...
  2. C

    Sleeping

    Is six too many? <img src="i/expressions/face-icon-small-smile.gif" border="0"> I use 5 to prop myself up, and one between my knees. So comfy. The propping up is to avoid reflux, which is not good to have after transplant.
  3. C

    He's a college graduate!!!!!!!!!

    Way to go Mark!
  4. C

    Immediately after a transplant

    My transplant was 7 years ago... Do you feel pain or are you too drugged up? --Yes, I felt pain. It hurt a lot! When I first woke up I remember pushing a button to get pain meds, but it wasn't relieving me, because it would only give a dose every half hour, despite how often I pushed it. They...
  5. C

    Relationship question

    I have to echo what everyone else has said so far. If anything, having CF made me more selective. CF is crappy and sucks energy; why bring crappy people in who will make it worse? I only wanted to let people in who would 'get it' and love me in every way. I did worry that love would never...
  6. C

    where are you from?

    I grew up in Minocqua, WI, and now live in San Francisco, CA. The winters were harsh in WI, and I love the SF climate.
  7. C

    Honesty wanted

    Hi Allie,<br> You don't know me, but I've read many of your posts and your blog, and just want to say thanks for sharing so much of yourself with us. Here's my take on my husband and me.<br> ,<br> I was amazed to read Sonia's response because it echoes many of my experiences. This will probably...
  8. C

    CFRD and FRUSTRATED!

    Hi Sonia,<br> One of the things that makes CFRD different from types 1 and 2 is the timing. Many people with CFRD still make some insulin, but because of CF-related blockages in the pancreas, the insulin is released later than a normal person's. So if you have a meal and cover it with...
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